Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here, Need Advice


2Boys4Me

Recommended Posts

2Boys4Me Enthusiast

Hi All,

I'm new here. My 5.5 year old son was just confirmed as Celiac a couple of days ago (positive bloodwork and biopsy).

I've been browsing gluten-free cookbooks from the library, but I'm confused. What's the difference between potato flour and potato starch? Or tapioca flour and tapioca starch.

I can SEE the difference between corn flour and starch, but I'm wondering if the others are interchangeable?

I have to try to make hamburger buns for an upcoming barbecue. The only ones I've found in store so far were labelled as "gluten-reduced".

Thanks,

Linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mstrain Rookie

From what I understand, tapioca flour and tapioca starch are the same thing, however, potato starch and potato flour are very different. Someone please verify! :)

Jnkmnky Collaborator

I wouldn't feed a celiac "gluten reduced" anything. It has to be gluten free. Do you have time to order on line from kinnikinnick or chebe for buns for your bbq?

Open Original Shared Link

Open Original Shared Link

I recommend all of the products from these two companies. They are very good. I order tons at a time and save on shipping as it is $10 for up to $200 worth of foods at Kinnikinnick. Donuts, chocolate chip muffins, bagels, white tapioca rice bread, pizza crusts....all great.

mstrain Rookie
I order tons at a time and save on shipping as it is $10 for up to $200 worth of foods at Kinnikinnick.  Donuts, chocolate chip muffins, bagels, white tapioca rice bread, pizza crusts....all great.

<{POST_SNAPBACK}>

About how long does it take for kinnikinnick to ship? I placed my first order last Tuesday and I cannot wait to try their donuts, buns and pizza crust!

Jnkmnky Collaborator

My last order got here QUICKLY. Previous orders have been up to 10 days. We were totally breadless for way too long one time and that's not doable with three kids. :blink:

lovegrov Collaborator

Potator starch and potato flour are cp,pletely different. One cannot be subsituted for the other. However, potato starch and potato starch flour are the same.

richard

2Boys4Me Enthusiast
Potator starch and potato flour are cp,pletely different. One cannot be subsituted for the other. However, potato starch and potato starch flour are the same.

richard

<{POST_SNAPBACK}>

Well, I am glad they make everything so easy for us :P .

I will not feed him gluten reduced at all, it must be gluten-free. The Kinnikinnick HQ is a mere 3 hour drive away, but I don't think they can ship in time for Wednesday. I don't think Chebe is available in Canada, but I hear people raving about it all the time, I wish we could get it.

I will try to make the buns and see what sort of disaster I end up with. Maybe we can shape the hamburger like a hot dog...they had Kinnikinnick hot dog buns at the Safeway.

Linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Japsnoet Explorer
I have to try to make hamburger buns for an upcoming barbecue

The gluten-free gourmet bakes bread by Bette Hagman has on page 176- 177p a recipe for yummy Hamburger buns. :rolleyes:

All the best with the baking. :)

Kasey'sMom Enthusiast

Hi Linda,

As others have mentioned potato flour and potato starch are not the same. I just fished out a couple of my books to see if I could find a some details for you. :)

"Potato Starch or Potato Starch Flour" is made from raw white potatos. "Potato Flour" is made from cooked potatos.

Potato starch is good for breading because it browns and crips well. (I tried it on chicken the other day.) Potato four is not good for breading but is good for thickening sauces.

Potato starch is OK for cakes if additional leavening is added. Potato flour works well for things like cookies when combined with other flours.

** The two books I got the information from are, "The Allergy Self-Help Cookbook"-Marjorie Hurt Jones, RN and "My Kid's Allergic to Everything, Dessert Cookbook"-Marry Harris and Wilma Nachsin.

I hope this helps as you start trying new recipes and making your own. :)

Canadian Karen Community Regular

Linda,

If you live in Canada, do you have any of the Loblaws Superstores close to you? They usually have a whole gluten free aisle and also all the gluten-free breads, etc. in a special frozen section.......

Good Luck!

Karen

2Boys4Me Enthusiast

Canadian Karen,

I'm in Calgary, we don't have Loblaw's superstores here, but we have "the real Canadian Superstore" that has sort of mixed in the baking aisle some gluten-free mixes, but I didn't see anything in the frozen section. Then again, I had two kids with me, it was a Saturday afternoon, and I was getting a teeny bit frustrated at all the other label reading and people huffing because I was stopped in a particular section for a lengthy amount of time reading labels. On the bright side, I did find some gluten-free corn pop type and gluten-free corn flake type cereals.

I did find potato starch and the experiment with the buns will take place Tuesday.

If it turns into a disaster, I did find a "Celimix" for hamburger buns at Co-op, but it was $4.99 and only makes 4 buns :blink: !

So, who thinks what is more economical: baking from scratch, mix or mail order?

(Canadian) Linda

Guest Lucy

My son hated the kinniknick (whatever the spelling) buns. He loves their sandwich bread. He just eats the burger without buns now. He doesn't even mind.

I read someone else hear uses empty tuna cans to bake her buns in. Gives them a nice round appearance and shape. Just a little hint. I'm no bun baker, never have, but maybe someday I'll find the energy.

grantschoep Contributor
My son hated the kinniknick (whatever the spelling)  buns.  He loves their sandwich bread.  He just eats the burger without buns now.  He doesn't even mind.

I read someone else hear uses empty tuna cans to bake her buns in.  Gives them a nice round appearance and shape.  Just a little hint.  I'm no bun baker,  never have,  but maybe someday I'll find the energy.

<{POST_SNAPBACK}>

That would be me. But I just copied that from my Dad, who I got the gluten-free bread recipe from. I still am slow on the tuna can collection thing. Only have 3 so far. I just don't care for tuna sandwhiches much any more with out bread. Oh wait, I need the tuna cans to make bread. But I need the bread to eat the tuna... hmm...

Oh yeah, thats what girlfriends are for. She is collecting cans for me.

bluesky8130 Rookie

2Boys4Me

do you have a Sobey's near you? I am in Winnipeg and I have noticed that Sobey's and large Safeway stores have a good selection of gluten-free mixes. They are called "Celi-Mix" and are in the baking section. At Sobey's they also have some gluten-free breads and cookies.

Check out these places that I found for you

Bakeries

Canyon Meadows Bakery (281-3313)

11625 Elbow Dr SW

Co-op Bakery

Beddington Centre (299-4407) Shawnessy Centre (299-4434)

~ gluten-free bread, jelly roll, cookies and muffins

Earth`s Oven (686-4810)

2133b 33 Ave SW

~ gluten-free breads including a wonderful lactose & gluten-free rice bread

Lakeview Bakery (246-6127)

Lakeview Shopping Centre

~ Has a variety of gluten-free breads available; call to check which days they are baked fresh

I don't know how close they are for you...but its a start. You can check out Open Original Shared Link for more links & info.

Hope it helps.

My hubby just got diagnosed so I am going through the learning curve to and it is soooo frustrating.

Kim in Winnipeg

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.