Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Comments From Others


Googles

Recommended Posts

Googles Community Regular

Does it annoy you when others make comments about your celiac. I was at practicum the other day and one of the interns brought in cookies. We were all waiting in the little kitchenette area and one of the staff (as people were eating cookies) 'at least you don't have to worry about eating these'. It was so frustrating. I just was like "uh, huh." When I really wanted to say was, "WTF? I wish I could eat those things. It would make my life a lot easier." Ugh. I know she was just trying to make it less awkward, and I realized this right after I took a breath. I wish people weren't uncomfortable eating around me. I've gotten over it (most of the time) when people eat around me. I wish they would be comfortable. I don't even have gluten cravings after getting glutened any more (knock on wood). I wish I could just tell people in my life to not worry about me and food and they would believe me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I understand. Funny how it usually isn't about YOU but about them, isn't it?

I can't knock people too much, I remember the days of blissful ignorance....

thleensd Enthusiast

LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-)

Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( :P ) and so as I walked past an aquaintance eating cookies at the table (that smelled #$%^&* good, darnit!) I said, "mmm, cookies!" She said, "yeah! Oh, and you should try the Roca! ..ur, uh um... wait, you can't have any, can...voice trails off...SORRY!"

I just laughed and waved her off. I don't keep track of what people do and don't eat, so it's just funny. My celiac disease made me very ill, so it was kind of high profile.

I'm glad they care. I wish it wasn't awkward. Oh well.

AVR1962 Collaborator

I like the thought that was in your head, probably would have shocked them to have the words actually come out of your mouth. They have no clue!!

Yesterday morning I was cooking myself some sausage for breakfast and husband says with this pouty whine in his voice, "oh eating what I can't have." BS! He has problems with gout so he had to limit his meats, or at least is supposed to. If he gets too much meat on a continual basis he will get a flare-up in his toe. However, he does take daily meds for this and they can increase the dosage, it's not like there is no solution. I turned to him and told him that actually he could ahve the sausage if he just ate less meat the rest of the day. Who was it that totally pigged out and gorged themselves at the Christmas dinner buffet we went to recently, regradless of that 6 oz meat guideline? And who was stuck eating salad and fruit because everything was loaded with gluten? Who is going without? Ugh, people!!!

pricklypear1971 Community Regular

LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-)

Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( :P ) and so as I walked past an aquaintance eating cookies at the table (that smelled #$%^&* good, darnit!) I said, "mmm, cookies!" She said, "yeah! Oh, and you should try the Roca! ..ur, uh um... wait, you can't have any, can...voice trails off...SORRY!"

I just laughed and waved her off. I don't keep track of what people do and don't eat, so it's just funny. My celiac disease made me very ill, so it was kind of high profile.

I'm glad they care. I wish it wasn't awkward. Oh well.

I would have laughed and said "I can have cookies, just not THOSE".

Yeah, people don't get the part about glutenous foods making me see rat poison. I gave NO DESIRE to eat it.

I do look at stuff and think "how can I recreate THAT???". but that's really the extent of it.

Sure, there are a few things that pull at my heart strings but it just ain't worth it.

lynnelise Apprentice

My husband was being pouty about being the DD at his own company Christmas party. It's a fancy dinner at a lovely resort with the best food and I can't eat anything but salad. You better believe I'm taking advantage of the open bar! lol! Trust me I love food, I'd much rather pig out at the dinner than drink!!!

Aside from celiac I have chronic mono so I feel beyond tired and generally horrible the majority of the time. I get a lot of people who say they understand because "I was too tired to get to the gym this morning" or "the holidays wear everybody out". I guess they are trying to be supportive but really they are just minimizing my concerns.

bumblebee-carnival Newbie

I'm back in college and one of my teachers bought the class pizza on our last day. She said to me, "Have some pizza." I said, "Thanks, but I am gluten intolerant." She looked at me and said, "You want a breadstick?" Me and another girl looked at each other and started cracking up. I said, "Um, thank you, no." She then turned around and said, "Wait? What did you say?" Then we all started laughing. Her brother has celiac, so she knew all about it and had just heard me wrong. But it was hilarious at the time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I'm back in college and one of my teachers bought the class pizza on our last day. She said to me, "Have some pizza." I said, "Thanks, but I am gluten intolerant." She looked at me and said, "You want a breadstick?" Me and another girl looked at each other and started cracking up. I said, "Um, thank you, no." She then turned around and said, "Wait? What did you say?" Then we all started laughing. Her brother has celiac, so she knew all about it and had just heard me wrong. But it was hilarious at the time.

Glad you have a sense of humor, bumblebee! It goes a long way when we run into moments like this!

Googles Community Regular

So at the same position, my supervisor was giving all the interns candy. She said that as she was packing it up she was hoping that I would be able to eat what she got. She had caught me on a day where I was really tired and had to literally think hard as to if I could eat the Hershey kisses she had given me (given they were out of the original package so I didn't just have an ingredient list). She was so sweet to think about that. She knows because as my supervisor I had to tell her for any accommodations I might need, but it was so sweet of her to think of me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.