Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Daughter With Anxiety


GFmomanddaughter

Recommended Posts

GFmomanddaughter Newbie

My daughter (10 yrs old) has been gluten free for about 1 year now. She was doing great until she accidentally ate 2 cookies she thought was gluten-free (beginning of January). Ever since then she has not been able to sleep at night. Complaining her tummy burns. When she comes to bed with me she settles down and sleeps but then mom doesn't get any rest. I really need some advice on what is going on. It's going on 4 weeks now. Is she still experiencing anxiety from the gluten? What can I do to help her sleep at night in her own bed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Well, it could be from the glutening. Could be she wants to sleep with you...my son is 9 and if we give him half a chance he's in our bed.

What about laying down in her bed, waiting til she falls asleep and sneaking out? Or, if she wanders in later walk her back and do it again.

Its tough. My son is very persistent when he wants something, and he wanted to sleep with us for a loooong time.

mommida Enthusiast

Lack of vitamin B12 can cause anxiety. Perhaps the glutening damaged her gut where she has become a bit deficient. Are there any outside issues that are stressing her out? Girls this age can be especially cruel. :o

GFmomanddaughter Newbie

Well, it could be from the glutening. Could be she wants to sleep with you...my son is 9 and if we give him half a chance he's in our bed.

What about laying down in her bed, waiting til she falls asleep and sneaking out? Or, if she wanders in later walk her back and do it again.

Its tough. My son is very persistent when he wants something, and he wanted to sleep with us for a loooong time.

I've tried laying down with her and walking her back to bed tucking her in but 30 minutes later she is back up and says she can't sleep. I was working with her about 1 1/2 hours during the night but nothing worked. Now out of desperation I put her in bed with me right away so we both can get some sleep. Not sure what else to do.

GFmomanddaughter Newbie

Lack of vitamin B12 can cause anxiety. Perhaps the glutening damaged her gut where she has become a bit deficient. Are there any outside issues that are stressing her out? Girls this age can be especially cruel. :o

Thanks, I will check out the B12. I really feel like there is more to it then any outside issues. She wants to go to school and most of the girls want to play with her. You're right 4th grade is a tough year but so far so good. :)

kwylee Apprentice

Your daughter's "tummy burning" is exactly what I had for 2 weeks after accidentally drinking a cup of herbal tea that contained barley malt. I have been strictly gluten free for almost a year and a half, and I never even had measurable stomach problems before going gluten-free (just neuro), but now of course I feel it when my body comes into contact with gluten. It took 2 full weeks or more for my tummy to stop the feeling like it was burning, especially at night when I was laying down. Not a cramp, but a feeling like it was sensitive and inflamed that progressively lessened and lessened. But I really watched eating anything with acid content while that was going on and it helped. I can't do dairy otherwise I would have tried yogurt to ease things. But I can also identify with her anxiety maybe going hand in hand with her tummy burning.

Googles Community Regular

I would say that maybe it was insomnia, but her being able to go to sleep when she is in your bed doesn't suggest that. (I get really bad insomnia when I get glutened.) You might want to learn some relaxation strategies to teach your daughter so that she can use them to get back to sleep at night. Some good ones are deep breathing and progressive muscle relaxation. Are there any other behavioral changes lately that might be influencing this besides the gluten?

Sometimes while you don't get the sleep you want when you have to parent, sometimes it just means biting the bullet and putting her back to bed when she wants to sleep with you. Letting this go on for longer will not make getting her back in bed any easier. Sit down with her during the day to find out what happens when she wakes up at night and comes into your room. Is she anxious, or having nightmares, or missing you? These things can be dealt with directly but you need to talk about them during the day. If she is able to describe what is happening, that is half the way to being able to fix the problem. Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFmomanddaughter Newbie

Sounds so much like what she is experiencing. I will talk with her some more and see if it is lessening up.

Thanks

mommida Enthusiast

I just know that when our kids are feeling "off" we parents go into wtf did I miss on the gluten radar mode and beat ourselves up. :rolleyes:

My daughter went from gluten free 4 1/2- 5 years healthy, to really sick. It was so close to her usual gluten reaction, I was going crazy looking for "hidden gluten". She was scoped and diagnosed with Eosinophilic Esophagitus. (Now they have determined there is an association with Celiac.) EE makes it harder to sleep and causes malnutrition too. If this seems to persist or worsens, she may need to be looked at by a a ped. gastro. (interesting enough ~ kids with EE just say their stomach hurts. So I am concerned she is complaining about "burning".)

But, you are aware of her getting glutened, and this may just need some time to heal.

ravenwoodglass Mentor

I've tried laying down with her and walking her back to bed tucking her in but 30 minutes later she is back up and says she can't sleep. I was working with her about 1 1/2 hours during the night but nothing worked. Now out of desperation I put her in bed with me right away so we both can get some sleep. Not sure what else to do.

Instead of her falling asleep in your bed could you try laying down with her in her bed? The walk back to her bed may be waking her up too much.

Do you have a regular bed time routine? Having my kids go to bed but telling them they could read for 1/2 hour or I would read to them helped them to relax a bit. A warm tub bath 1/2 hour before bedtime can also help relax her.

Some find making a pallet on the floor next to Mom's bed is helpful. Tell her she is welcome to come in if she wakes in the night but she must get quietly into the pallet without waking you up. Let her know that if she has a nightmare or is feeling ill that it is okay to wake you but only then. That might help her feel more secure but allow you to sleep.

revenant Enthusiast

There are many possibilities when it comes to anxiety and unusually enough they sometimes all come together, cause eachother, feed eachother, etc.

You sure she's not getting slightly glutened? I originally went gluten free because I have anxiety also, and gluten definitely can strike up intense anxiety. I have discovered that my anxiety is mainly caused by an overgrowth of candida albicans, a yeast that resides in the intestine and feeds on sugar and secretes hundreds of neurotoxins, it is also very reactive to grains (especially glutenous ones). I think that this is the most feesible cause of your daughters problems simply because you say she only started having this after eating the cookies. If you feed these yeast gluten, they feed on the sugars in the blood from gluten and quickly their colonies grow in the intestines. They can continue to feed on other sugars and maintain their level, until you adhere to a candida diet. Candida albicans has also been known to be able to cause food intolerances by puncturing little holes in the intestine where the undigested proteins are able to escape into the blood stream, so it is very common among people with food intolerances.

Hypoglycemia is also another possibility, low blood sugar can cause both anxiety and insomnia. As for tummy burning, this could be caused by over-acid body or low stomach acid. Try eating less acidic foods like red meat and milk and more alkalizing foods like vegetables and lemon water.

Lastly some people mentioned B12 deficiency, that can also cause anxiety. B12 deficiency despite ingestion of animal products is also commonly linked to an overgrowth of candida albicans, because candida albicans can eat up B12 levels because yeasts are made of large amounts of B12. Magnesium deficiency can also create anxiety.

mamaw Community Regular

Everyone gave good thoughts... Maybe give her some digestive enzymes & probiotics which I feel is very important on the gluten-free diet...

Blessings

srall Contributor

My 8 1/2 year old had terrible anxiety before going gluten free. I'm so glad that issue resolved. However we both need big doses of vitamin B every day and if we miss we get deficient right away. The B has really calmed my daughter down. I'm still trying to get my daughter off sugar, so I believe that this has an effect as well. We both need daily probiotics as well.

As for the sleeping: Since my daughter was clingy from the get go, up until going gluten free, I finally had to make a rule in my house that mama got to sleep in whichever bed was going to get her (me) the most sleep that night. I bought my daughter a queen bed and my husband and I have a king bed. So, I have very little judgment about co-sleeping. Sometimes we go through a patch where I sleep in my daughter's bed for a few days, then I'm back to my bed. If she has a nightmare she's welcome to crawl in with me. We've also tried a pallet on the floor and that has worked also.

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.