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Calling On All Veteran Celiac Posters

TTNOGluten

By TTNOGluten
in Coping with Celiac Disease

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TTNOGluten Explorer
TTNOGluten
Posted

Well the past few weeks have been interesting for some new diagnostic studies, was hoping that all the veteran celiac folks could shed some insight. I have been seeing a gastro for 2 months now who I really like, he takes time and is very thorough. I had another EGD 2 weeks ago and an entire battery of celiac labs completed again, which shows normal biopsies and all may labs having retruned to normal, including TTG Iga, Igg, antigliadin Iga, Igg, and deamidated gliadin. This is all good news, obviously as he states I am remaining gluten free to see this improvement, however I still get many of the same symptoms everday. Pretty much continous epigasttri gnawing with slight nausea, constant pain into my rib cage on the right and midback, and occaaionally on the left, and still frequent bloating and burping???

Gallbladder is out as of Dec. 13th, showed chronic cholecystitis. Limiting much of the processed foods, also have casein allergy, which I have removed from my diet, if it does slip in it is very infrequent. Still feel lousy though.

The Gastro is confused as isn't sure if these are manifestations of celiac still lingering, with everything else improved?? I guess what I am curious or wondering about is if patients cont. to feel like this even after there intestines and labs get better, and if so for how long??

Anyone with experience on this, or who has a similar process??

Thanks again in advance

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Lisa Mentor
Lisa
Posted

Try to eliminate dairy products and see if your symptoms are relieved. Or perhaps you have developed another intolerance.

TTNOGluten Explorer
TTNOGluten
Posted
  • Author

I have removed the dairy(casien) from my diet as well. NO real change

mommida Enthusiast
mommida
Posted

I have the same symptoms too. I also had my gall bladder removed. I do know of other intolerances that have developed since going gluten free. Pretty easy to figure out lobster makes me vomit. Foods with high iron content give me "D' and cramping.

If you figure anything out let me know. I'm sick of doctors treating me like a headtrip and I have to pay for the service. :angry:

Skylark Collaborator
Skylark
Posted

I think you probably have another food intolerance. Both dairy and nightshades (potato, tomato, etc.) get me. There are folks on the board intolerant to soy, and some to corn.

Austin Guy Contributor
Austin Guy
Posted

I found out a few months ago I was intolerant to corn, but until recently did not know that most vitamin C supplements are made from corn. So are magnesium stearate and stearic acid that labels state are derived from vegetable sources. Once I figured this out and quit supplements containing these I finally felt better.

GFinDC Veteran
GFinDC
Posted

Could it be you have an ulcer?

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Roda Rising Star
Roda
Posted

Did they check for H pylori when they did your scope?

Avalon451 Apprentice
Avalon451
Posted

You could do an elimination diet for a couple of months (get back to just plain meat and veggies), let things heal up and settle down, and then add stuff back in one by one to see what's bothering you.

mushroom Proficient
mushroom
Posted

I think you probably have another food intolerance. Both dairy and nightshades (potato, tomato, etc.) get me. There are folks on the board intolerant to soy, and some to corn.

And some like me intolerant to corn, soy, nightshades and legumes. It took me a couple of years to figure out or (in some cases) develop them. :rolleyes:

health nut Newbie
health nut
Posted

Holy cow- you pretty much have all the exact symptoms I do. I had my gallbladder out last year but have off/on had pretty much exactly those symptoms. For me they did an MRCP (an MRI of my bile duct) to make sure there still wasn't something obstructing it even though I don't have a gallbladder anymore. That was negative but I'm still having problems and now they think it might be Sphincter of Odi Dysmotility-- this is where the sphincter that empties from the bile duct into the GI tract doesn't function properly. I haven't had the test for this yet, but I'll be making an appointment when I start having symptoms again. These may be things you want to be bring up to your doctor if they haven't thought of it already. Your symptoms really sound more related to a problem in the area of your bile duct- especially the pain into the back, that is almost classic for that.

Good luck!!

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