Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Food Symptom Or...


Fairy Dancer

Recommended Posts

Fairy Dancer Contributor

I have been getting a strange set of symptoms recently, however, I have been weaning off of some antidepressants so don't know what is due to what at the moment.

The symptom that concerns me is intermittent and seems to come and go randomly. It's not every day but seems to happen a few times each week. It is also getting more intense feeling each time it happens (or seems to be). Basically it starts out as itching in one or two locations and then turns into itching everywhere. I then start having breathing problems where my breathing is slow and laboured and it is hard to breath in deeply. This can be accompanied by wheezing but as I am a smoker I usually put any wheezing down to that. However the wheezing is worse than it normally is during these itching attacks. I will also feel very light headed, dizzy and my hands and feet will feel ice cold. If I wait for long enough the itching will morph into an itching, pin pricking/pain/stinging sensation all over my skin.

Now I can stop the attack by taking a quarter of a tablet of the antidepressant I am weaning off, which makes me think withdrawal symptom. On the other hand, my brand of antidepressant can be used as an antihistamine (although it is not often used as such as there are other antihistamines that make you less drowsy on the market) so that makes me think possible allergy....

If it is an allergy, the itching starts a few hours after eating so it is not an immediate reaction...is it possible for a reaction be delayed?

Also, the only common ingredient I could find in the foods I had eaten at the time was soya and soya lecithin. For foods with soya directly in the ingredients the reaction was stronger and for the foods that may contain soya due to cross contamination (warning on label) the reaction was milder. Also, some contained only soya lecithin which I read people with allergies can tolerate (although it does depend on how much of the food I have consumed in those instances).

Could it be an allergic reaction to soya and soya Lecithin? Or is it likely to be some strange medication withdrawal symptom?

Any opinions?

I will run it past my dr if it gets any worse or continues, for now though I am managing it by taking a small dose of the antidepressant when it occurs as 30 minutes after taking just 7.5 mg the itching and breathing problems will stop .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

It is ironic you should post this right now---because I have been reading about this very topic as I have burning skin sensations and sometimes am very itchy (and have shortness of breath )and this BURNING is very intense at times (since Feb. 2008) which I had hoped would resolve by now (a year since DX and being gluten-free). Very painful and I am tired of it. It is random and delayed and I cannot pin it on any food.

My doc is stumped and can only say it is a histamine response. But, I have no allergies detected via testing whatsoever.

:unsure:

I do NOT consume soy products or dairy products, either. BUT, like you, I do sometimes use foods with soy lecithin and wonder if it is a problem when used in higher doses?

Recently, while talking with another member who has bizarre reactions to some foods as well, she and I discussed food additives, such as MSG (which KILLS me) etc. as being the culprits when we veer off a plain whole foods diet and eat anything packaged or processed.

Then, I read this post, written by Skylark (whom I have quoted twice today already :) ) and it rang true--and validated the many articles I had read on what could be keeping me from healing entirely.

Skylark posted:

"I also think a lot of our reactions have nothing to do with antibodies and are to food chemicals, lectins, and alkaloids. Grains and beans contain lectins that can give us give us trouble. Nightshades contain alkaloids and lectins. Aged cheeses, red wine, chocolate, hung meat, and fermented foods tend to contain amino acids that are neurotransmitter precursors. MSG (natural or manufactured) and Aspartame give some people trouble because they contain neurotransmitters. Salicylates are another problem chemical, particularly for folks with damaged intestines. Again, gut dysbiosis plays a role because of both increased permeability to food chemicals and lack of symbiotic bacteria that can digest problem food chemicals. Have a look at this website. It's fascinating."

Open Original Shared Link

Soybean is on the list of foods that causes these reactions.

This is me. Ever since I added back in cheeses, wine, chocolate, etc....The burning skin, some shortness of breath, occasional tachycardia, insomnia, flushing, swollen eyes, skin eruptions, anxiety, mood dips, fatigue, continuing muscle joint pain became MORE noticeable again. Am I better since DX? Yes...but it still happens.

I get very ill from MSG. Ditto for methol, mint, etc. Topical or teas. Can't "do" perfume or be near colognes.

Just a thought for you. Maybe it will help?

Also, this goes without saying, but hon, please quit smoking. It does you no good. (I am an ex--20 years now)

Best wishes!

ravenwoodglass Mentor

Since you noticed it seems to happen after having something with soy you could try dropping soy from you diet and see if it stops happening.

IrishHeart Veteran

Since you noticed it seems to happen after having something with soy you could try dropping soy from you diet and see if it stops happening.

Gosh, Yes, I should have just said this FIRST. Take out soy!

We should always go with the obvious first. Thanks, Raven. :)

The additional info is just FYI :)

Disregard if it does not apply to you. ;)

kareng Grand Master

Here's another thought. Could it be something you do after you eat? Like wash dishes? Lotion? Cleaning solution? Some of the dishwasher packets make me itch and not always where I touch them. I touch them with my fingers but the top part (not palm) itches and burns. Fortunately, its not a big deal right now for me. I don't run the dishwasher everyday or someone else starts it, so it wouldn't happen every day.

Takala Enthusiast

Delayed reaction possible ? Yup!

Every once in a great while, randomly, I get something similar if I have eaten a non organic, processed dairy product.

I am suspicious of the chemicals and antibiotics they must pump into those poor cows, I suspect it's residue.

I don't know if you have one yet, but you ought to get a "rescue" inhaler for emergencies, because what you are describing is the same sensations of the beginnings of a mini- asthma attack. Taking something that acts as an antihistamine is the right thing to do, as it can knock it down before it really takes off. Drinking coffee in an emergency can do the same thing as it acts to expand the airways, as does chocolate. (see link: Open Original Shared Link ) Get a few doses of otc antihistamine into your purse or wallet, like right now, and carry it with you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748

    Gk1414
    Newest Member
    Gk1414
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.