Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Food Symptom Or...


Fairy Dancer

Recommended Posts

Fairy Dancer Contributor

I have been getting a strange set of symptoms recently, however, I have been weaning off of some antidepressants so don't know what is due to what at the moment.

The symptom that concerns me is intermittent and seems to come and go randomly. It's not every day but seems to happen a few times each week. It is also getting more intense feeling each time it happens (or seems to be). Basically it starts out as itching in one or two locations and then turns into itching everywhere. I then start having breathing problems where my breathing is slow and laboured and it is hard to breath in deeply. This can be accompanied by wheezing but as I am a smoker I usually put any wheezing down to that. However the wheezing is worse than it normally is during these itching attacks. I will also feel very light headed, dizzy and my hands and feet will feel ice cold. If I wait for long enough the itching will morph into an itching, pin pricking/pain/stinging sensation all over my skin.

Now I can stop the attack by taking a quarter of a tablet of the antidepressant I am weaning off, which makes me think withdrawal symptom. On the other hand, my brand of antidepressant can be used as an antihistamine (although it is not often used as such as there are other antihistamines that make you less drowsy on the market) so that makes me think possible allergy....

If it is an allergy, the itching starts a few hours after eating so it is not an immediate reaction...is it possible for a reaction be delayed?

Also, the only common ingredient I could find in the foods I had eaten at the time was soya and soya lecithin. For foods with soya directly in the ingredients the reaction was stronger and for the foods that may contain soya due to cross contamination (warning on label) the reaction was milder. Also, some contained only soya lecithin which I read people with allergies can tolerate (although it does depend on how much of the food I have consumed in those instances).

Could it be an allergic reaction to soya and soya Lecithin? Or is it likely to be some strange medication withdrawal symptom?

Any opinions?

I will run it past my dr if it gets any worse or continues, for now though I am managing it by taking a small dose of the antidepressant when it occurs as 30 minutes after taking just 7.5 mg the itching and breathing problems will stop .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

It is ironic you should post this right now---because I have been reading about this very topic as I have burning skin sensations and sometimes am very itchy (and have shortness of breath )and this BURNING is very intense at times (since Feb. 2008) which I had hoped would resolve by now (a year since DX and being gluten-free). Very painful and I am tired of it. It is random and delayed and I cannot pin it on any food.

My doc is stumped and can only say it is a histamine response. But, I have no allergies detected via testing whatsoever.

:unsure:

I do NOT consume soy products or dairy products, either. BUT, like you, I do sometimes use foods with soy lecithin and wonder if it is a problem when used in higher doses?

Recently, while talking with another member who has bizarre reactions to some foods as well, she and I discussed food additives, such as MSG (which KILLS me) etc. as being the culprits when we veer off a plain whole foods diet and eat anything packaged or processed.

Then, I read this post, written by Skylark (whom I have quoted twice today already :) ) and it rang true--and validated the many articles I had read on what could be keeping me from healing entirely.

Skylark posted:

"I also think a lot of our reactions have nothing to do with antibodies and are to food chemicals, lectins, and alkaloids. Grains and beans contain lectins that can give us give us trouble. Nightshades contain alkaloids and lectins. Aged cheeses, red wine, chocolate, hung meat, and fermented foods tend to contain amino acids that are neurotransmitter precursors. MSG (natural or manufactured) and Aspartame give some people trouble because they contain neurotransmitters. Salicylates are another problem chemical, particularly for folks with damaged intestines. Again, gut dysbiosis plays a role because of both increased permeability to food chemicals and lack of symbiotic bacteria that can digest problem food chemicals. Have a look at this website. It's fascinating."

Open Original Shared Link

Soybean is on the list of foods that causes these reactions.

This is me. Ever since I added back in cheeses, wine, chocolate, etc....The burning skin, some shortness of breath, occasional tachycardia, insomnia, flushing, swollen eyes, skin eruptions, anxiety, mood dips, fatigue, continuing muscle joint pain became MORE noticeable again. Am I better since DX? Yes...but it still happens.

I get very ill from MSG. Ditto for methol, mint, etc. Topical or teas. Can't "do" perfume or be near colognes.

Just a thought for you. Maybe it will help?

Also, this goes without saying, but hon, please quit smoking. It does you no good. (I am an ex--20 years now)

Best wishes!

ravenwoodglass Mentor

Since you noticed it seems to happen after having something with soy you could try dropping soy from you diet and see if it stops happening.

IrishHeart Veteran

Since you noticed it seems to happen after having something with soy you could try dropping soy from you diet and see if it stops happening.

Gosh, Yes, I should have just said this FIRST. Take out soy!

We should always go with the obvious first. Thanks, Raven. :)

The additional info is just FYI :)

Disregard if it does not apply to you. ;)

kareng Grand Master

Here's another thought. Could it be something you do after you eat? Like wash dishes? Lotion? Cleaning solution? Some of the dishwasher packets make me itch and not always where I touch them. I touch them with my fingers but the top part (not palm) itches and burns. Fortunately, its not a big deal right now for me. I don't run the dishwasher everyday or someone else starts it, so it wouldn't happen every day.

Takala Enthusiast

Delayed reaction possible ? Yup!

Every once in a great while, randomly, I get something similar if I have eaten a non organic, processed dairy product.

I am suspicious of the chemicals and antibiotics they must pump into those poor cows, I suspect it's residue.

I don't know if you have one yet, but you ought to get a "rescue" inhaler for emergencies, because what you are describing is the same sensations of the beginnings of a mini- asthma attack. Taking something that acts as an antihistamine is the right thing to do, as it can knock it down before it really takes off. Drinking coffee in an emergency can do the same thing as it acts to expand the airways, as does chocolate. (see link: Open Original Shared Link ) Get a few doses of otc antihistamine into your purse or wallet, like right now, and carry it with you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,343
    • Most Online (within 30 mins)
      7,748

    Cubfan67
    Newest Member
    Cubfan67
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...