Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Food Symptom Or...


Fairy Dancer

Recommended Posts

Fairy Dancer Contributor

I have been getting a strange set of symptoms recently, however, I have been weaning off of some antidepressants so don't know what is due to what at the moment.

The symptom that concerns me is intermittent and seems to come and go randomly. It's not every day but seems to happen a few times each week. It is also getting more intense feeling each time it happens (or seems to be). Basically it starts out as itching in one or two locations and then turns into itching everywhere. I then start having breathing problems where my breathing is slow and laboured and it is hard to breath in deeply. This can be accompanied by wheezing but as I am a smoker I usually put any wheezing down to that. However the wheezing is worse than it normally is during these itching attacks. I will also feel very light headed, dizzy and my hands and feet will feel ice cold. If I wait for long enough the itching will morph into an itching, pin pricking/pain/stinging sensation all over my skin.

Now I can stop the attack by taking a quarter of a tablet of the antidepressant I am weaning off, which makes me think withdrawal symptom. On the other hand, my brand of antidepressant can be used as an antihistamine (although it is not often used as such as there are other antihistamines that make you less drowsy on the market) so that makes me think possible allergy....

If it is an allergy, the itching starts a few hours after eating so it is not an immediate reaction...is it possible for a reaction be delayed?

Also, the only common ingredient I could find in the foods I had eaten at the time was soya and soya lecithin. For foods with soya directly in the ingredients the reaction was stronger and for the foods that may contain soya due to cross contamination (warning on label) the reaction was milder. Also, some contained only soya lecithin which I read people with allergies can tolerate (although it does depend on how much of the food I have consumed in those instances).

Could it be an allergic reaction to soya and soya Lecithin? Or is it likely to be some strange medication withdrawal symptom?

Any opinions?

I will run it past my dr if it gets any worse or continues, for now though I am managing it by taking a small dose of the antidepressant when it occurs as 30 minutes after taking just 7.5 mg the itching and breathing problems will stop .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

It is ironic you should post this right now---because I have been reading about this very topic as I have burning skin sensations and sometimes am very itchy (and have shortness of breath )and this BURNING is very intense at times (since Feb. 2008) which I had hoped would resolve by now (a year since DX and being gluten-free). Very painful and I am tired of it. It is random and delayed and I cannot pin it on any food.

My doc is stumped and can only say it is a histamine response. But, I have no allergies detected via testing whatsoever.

:unsure:

I do NOT consume soy products or dairy products, either. BUT, like you, I do sometimes use foods with soy lecithin and wonder if it is a problem when used in higher doses?

Recently, while talking with another member who has bizarre reactions to some foods as well, she and I discussed food additives, such as MSG (which KILLS me) etc. as being the culprits when we veer off a plain whole foods diet and eat anything packaged or processed.

Then, I read this post, written by Skylark (whom I have quoted twice today already :) ) and it rang true--and validated the many articles I had read on what could be keeping me from healing entirely.

Skylark posted:

"I also think a lot of our reactions have nothing to do with antibodies and are to food chemicals, lectins, and alkaloids. Grains and beans contain lectins that can give us give us trouble. Nightshades contain alkaloids and lectins. Aged cheeses, red wine, chocolate, hung meat, and fermented foods tend to contain amino acids that are neurotransmitter precursors. MSG (natural or manufactured) and Aspartame give some people trouble because they contain neurotransmitters. Salicylates are another problem chemical, particularly for folks with damaged intestines. Again, gut dysbiosis plays a role because of both increased permeability to food chemicals and lack of symbiotic bacteria that can digest problem food chemicals. Have a look at this website. It's fascinating."

Open Original Shared Link

Soybean is on the list of foods that causes these reactions.

This is me. Ever since I added back in cheeses, wine, chocolate, etc....The burning skin, some shortness of breath, occasional tachycardia, insomnia, flushing, swollen eyes, skin eruptions, anxiety, mood dips, fatigue, continuing muscle joint pain became MORE noticeable again. Am I better since DX? Yes...but it still happens.

I get very ill from MSG. Ditto for methol, mint, etc. Topical or teas. Can't "do" perfume or be near colognes.

Just a thought for you. Maybe it will help?

Also, this goes without saying, but hon, please quit smoking. It does you no good. (I am an ex--20 years now)

Best wishes!

ravenwoodglass Mentor

Since you noticed it seems to happen after having something with soy you could try dropping soy from you diet and see if it stops happening.

IrishHeart Veteran

Since you noticed it seems to happen after having something with soy you could try dropping soy from you diet and see if it stops happening.

Gosh, Yes, I should have just said this FIRST. Take out soy!

We should always go with the obvious first. Thanks, Raven. :)

The additional info is just FYI :)

Disregard if it does not apply to you. ;)

kareng Grand Master

Here's another thought. Could it be something you do after you eat? Like wash dishes? Lotion? Cleaning solution? Some of the dishwasher packets make me itch and not always where I touch them. I touch them with my fingers but the top part (not palm) itches and burns. Fortunately, its not a big deal right now for me. I don't run the dishwasher everyday or someone else starts it, so it wouldn't happen every day.

Takala Enthusiast

Delayed reaction possible ? Yup!

Every once in a great while, randomly, I get something similar if I have eaten a non organic, processed dairy product.

I am suspicious of the chemicals and antibiotics they must pump into those poor cows, I suspect it's residue.

I don't know if you have one yet, but you ought to get a "rescue" inhaler for emergencies, because what you are describing is the same sensations of the beginnings of a mini- asthma attack. Taking something that acts as an antihistamine is the right thing to do, as it can knock it down before it really takes off. Drinking coffee in an emergency can do the same thing as it acts to expand the airways, as does chocolate. (see link: Open Original Shared Link ) Get a few doses of otc antihistamine into your purse or wallet, like right now, and carry it with you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748

    maggie23
    Newest Member
    maggie23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.