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Intolerent Or Allergic To Something More Than Just Gluten


Snafu

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Snafu Newbie

Hello friends--

Recently, I came into contact with gluten through CC after having been doing quite well. This was a week ago. The past five days have been progressively worse in terms of feeling so nauseated and bloated that I cannot seem to catch my breath or breathe properly, as well as severe pressure in my head, extreme fatigue, aching back and general weakness. When I don't eat, things get better. However, after a normal, gluten-free and Dairy-free meal, the same symptoms start up again.

I'm afraid that my Celiac issues are triggering or branching out into other intolerances? How is the best way to figure this out? I'm so tired of feeling like I'm swimming around inside my own head because of pressure inside it, not being able to breathe, and the gassy, bloated feeling which comes with every meal so far. I would try a tea and broth diet, but am afraid of possibly making things worse instead of better? Not to mention, providing adequate nutrition while working at a job where I'm on my feet constantly?


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Juliebove Rising Star

You say you are eating a normal meal. What all is involved with that? If you are eating the same things in each meal, one of them could be the culprit.

Gluten is not an issue for me. I do have food allergies and gastroparesis. When my stomach is acting up, I pretty much limit myself to rice and chicken broth. Maybe a bit of cooked chicken breast. I know these things don't make me ill.

What you should probably do is pick something off of the BRAT diet and stick to that one thing for a day. Maybe not toast because the gluten-free bread can contain a variety of things. But applesauce (plain, unsweetened), plain white rice, or bananas. If you feel okay in eating that one food, then eat it for a couple of days and then add another food. You don't want to add too much at once. But on the other hand you don't want to keep this up for too long or you'll get nutritional deficiencies.

Given that IgG allergies or intolerances can have a delayed reaction, sussing out the culprit or culprits can be tough.

tom Contributor

I'm afraid that my Celiac issues are triggering or branching out into other intolerances? How is the best way to figure this out?

Keep a food diary. Also, trying to eat simpler helps.

I ended up mostly writing it w/ a phone keybd, but also used little notebooks.

There'd be times i'd read back thinking "wait wasn't I ok last time I ate this?" Only to find I wasn't fine but was leaning twds blaming something else - or vice versa somethingorother.

Things can be learned w/ a food diary that aren't learned otherwise.

Roda Rising Star

Your system could just be out of wack from the gluten CC. It can take awhile for some to recover. For example when I get CC'd, depending on the amount, my glutening symptoms can last for up to two weeks. I have to be extra careful with what I eat since my stomach and intestines are so sensitive. Once it passes I can go back to eating normally(gluten free of course). :P Hope this passe soon for you!

dilettantesteph Collaborator

I second the thought that it might be something in your normal gluten free meal. Have you changed anything about it recently? Changed brands of something?

I also second the idea of keeping a food diary. That is very effective for figuring out what is bothering you, whether it be gluten cc or other food intolerances.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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