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I Got My Period!

dani nero

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IrishHeart Veteran
IrishHeart
Posted

You are not annoying and if anything being vocal is inspiring.. I feel very awful for my family who are not willing to let go of the poison they're eating (gluten), and I wish I was as vocal as you but I'm not that strong personality-wise.

I posted this thread out of joy to begin with but I think that providing others with information on different cases and symptoms is far more productive and helpful.

Maybe annoying is a strong word :lol: , but my family does not listen. I wrote a letter to them all (over 50 relatives), provided information about gluten intolerance and celiac, and they know how this thing tried to kill me for several years, yet they do not listen. Only my Mom went gluten-free. She feels great!

That is the beauty of such threads, Dani--you never know what someone will see and take away from it!

I am so glad you joined the forum! -- and I hope you are more accustomed to the many acronyms we use now BTW? :)

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dani nero Community Regular
dani nero
Posted
  • Author

Maybe annoying is a strong word :lol: , but my family does not listen. I wrote a letter to them all (over 50 relatives), provided information about gluten intolerance and celiac, and they know how this thing tried to kill me for several years, yet they do not listen. Only my Mom went gluten-free. She feels great!

That is the beauty of such threads, Dani--you never know what someone will see and take away from it!

I am so glad you joined the forum! -- and I hope you are more accustomed to the many acronyms we use now BTW? :)

I'm glad to be here as well! and yes I'm not so confused anymore :-)

xoxoxoxoxoxo

heidi g. Contributor
heidi g.
Posted

You guys are lucky. I get mine every month but their super late and hurt like he double hockey sticks. Ever since my celiac disease got triggered, they have gotten worse than even after i had my son. Has that happened to anyone else. Everything is super tender (upper area) and the cramping goes all the way to my thighs and feel like beginning of labor sometimes =/ the worst is probably ny irritability. I get irritable for a week before I get it and can't stand anybody. I wonder if its normal. I gave never gotten them this bad until I got sick and went on the gluten free diet.

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    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
    • trents
      Help!

      By trents · Posted

      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.
    • junell
      Help!

      By junell · Posted

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    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time.  Thankfully he is a fantastic GI, with  a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously!  But I needed my mind to be put at rest as my symptoms didn't seem to go away overnight as I'd hoped they would.  Initially I recall he recommended I went Dairy Free for three weeks, and he told me it would take that time to see an effect.  At that time, even lactose free milk went straight through me, so it is important, I would say, to even avoid that during a Dairy Free trial. My ongoing symptoms were bloating which did respond a bit to that trial.   However, within about 18 months there was a return to a very sore stomach, plus various aches and pains.   It turned out some gluten was sneaking in with my iron supplement (I was buying Floradix instead of Floravital), but I also think the dishwasher, the oven and eating out were contributors, too. Before my numbers normalised (from memory, about eight years!) I had several follow up appointments and a few more tests, but things gradually did get better.  Having read many accounts on this forum over the years, I don't think it is uncommon for symptoms to get a bit worse before getting better, that was certainly the case with me.  Your gut is damaged so you may well have issues digesting other food in the short term. But do try to be as scrupulously gluten free as you can possibly be as a first step, and I'd definitely try a three week Dairy Free trial.   Your villi because they are damaged are not able to create the lactase required to digest dairy at this time so you may well see some improvement if you come off dairy for a while.  Perhaps keeping a food diary of what you eat, where you eat it, whilst a bit onerous to do, will help identify foods that are causing issues.  For a while, apart from oats, I found peas, lentils and soya products hugely aggravating.  Things should calm down.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
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