Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Pregnant - But Not In A Gluten State Of Mind -- Help!


lostinvast

Recommended Posts

lostinvast Newbie

A brief on me: I've been TTC for almost 2 years as I was diagnosed with premature ovarian failure. I was told I have a 2% chance of ever having children, and that I should consider adoption.

I decided to leave my fertility doctor after failed IUIs and move on to a holistic doctor. She had me tested for celiac, and it turned out I had it. This was in december. Now 3 months later I'm gluten free, and I got pregnant! Pregnant and healthy and doing well :) :)

So now I'm 7 weeks in and just about a week ago is when I REALLY started to feel the symptoms.

My biggest problem is that I am absolutely disgusted by gluten free products. Anything with corn or rice just makes my stomach churn. And I'm CRAVING - in a major way - a slice (or two or three) of whole grain bread. A big hearty chunk and just thinking about it right now is making me hungry. And nothing (I mean nothing!) else makes me hungry. It does the opposite.

I just have no appetite for a gluten free lifestyle right now :( Substitutes are not sufficing.

I'm kind of going crazy :/ I don't know what to do!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



krystynycole Contributor

I was carb addicted and wanted to eat anything and everything when I went gluten free. While I will still admit that I miss it, lessens over time and you get used to it because you feel better. I used to fill up on bread and not eat much of my entree when I went out to eat. It's like weening yourself off of anything you are addicted to like people who stop drinking caffeine. Your body wants one thing and one thing only. I know that's not any consolation now :) but I can promise you my love of bread is something I will long for forever.

mushroom Proficient

Congrats on your pregnancy. I don't know why most fertility docs don't know about and don't test for celiac :rolleyes:

Carb addictionis are very real, especially wheat . It is like quitting smoking, you do have to get over the hump and it may take longer for some than others, depending on the level of addiction. I thought I was doing fine without cigarettes until week four when it really hit, and I didn't really consider myself cured until about six months down the line. Hopefully for you it won't take this long. Try eating some of the starchy vegetables like sweet potato, turnips, potatoes, squashes. Dress them up with whatever makes them the most palatable to you. They will be good for the baby too. It's best to leave the gluten free substitutes alone as much as possible at first, because they do not taste like their gluten counterparts, and you need to forget the gluteny taste first before you will find them palatable. And lthey are full of soy and rice and corn. Eat fresh, wholesome whole foods and try experimenting with things you have never tried before to tempt your taste buds. Focus on the foods you used to like apart from the carbs/gluten and challenge yourself to use them in creative ways. Turn food into an adventure, a creative endeavor to arouse your taste buds.

Good luck in producing a healthy baby. :)

suziq0805 Enthusiast

Congrats on your pregnancy!! I did not know about my gluten issues during my pregnancy a couple years ago but can definately remember the cravings. I had horrible morning sickness and the ONLY thing I seemed to be able to eat in the morning was poptarts (I pretty much lived on them for a week). I craved carbs during my pregnancy (and BBQ chicken until I couldn't stand the smell of chicken). You obviously know you shouldn't be eating these products, but it's gotta be tough resisting those pregnancy cravings. Do you have a gluten-free house? Might not be a bad idea to get rid of as much gluten as possible. And if those cravings get really strong just remember that your baby needs you to not eat gluten for his/her well-being. Cravings are strong but maybe picturing that little baby in your arms in a few months can help.

lucia Enthusiast

Congratulations on your pregnancy! Do you mind if I ask how old you are?

Ollie's Mom Apprentice

I'm gonna jump in here. I'm currently 15 weeks with my second pregnancy. I've been gluten free for over 2.5 years.

I didn't have any cravings for glutenous foods since early on in the diet... so years ago. But now.... all I want is glutenous garbage food!!! These are not breaking the habit cravings. These are I'm pregnant and totally want THIS FOOD cravings.

So I feel for you... and I hope you feel better knowing you're not alone. (Not that it will make the cravings go away, I'm afraid. )

jswog Contributor

I can totally relate to Ollie's Mom! While I haven't been gluten free for nearly as long as she has, I honestly haven't had too many issues with wanting gluten-laced things after the fist about 2-3 months. Now at almost 17 weeks, I had to put my food down and not allow my husband to get some pizza rolls the other night. He thought they sounded good and, unfortunately, I did as well. It's about all I've thought about for a couple of days now. I have been pretty bad about some junk foods but have been trying to stick with ones that at least have some redeeming qualities. Beanie weanies have been my big kick the last couple of weeks...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Di2011 Enthusiast

You all have to remember it is poison. Don't go there. When you see gluten products you need to see that poison warning you see on insect spray cans. Don't do it to you and don't do it to that little guy/girl who is coming your way. Change the way your mind "sees" or "wants" gluten products for the sake of a marvelous parenthood. Being a parent is the best thing ever and you don't want to poison it.

lostinvast Newbie

Thanks for all the replies! Since I posted, my appetite has had yet again another "swing" and all I have been interested in is ice cold fruit and veggies. (raw, uncooked) so I'd say that's not such a bad thing lol

I am 30 years old. I have been off gluten for 3 months now. I think my first day of quitting the gluten was somewhere around mid-december, as I recall going nuts when my mother brought out her calzone for xmas lol. It was actually really easy for me to start, with the exception of home-made goodies like that. I still resisted!

I never really had symptoms that I recognized before I cut out gluten cold turkey. Now, I noticed the few times I had been bad and ate something I shouldn't, I would break out in what looks to be hives, I'd feel terribly bloated, and have tremendous difficulty digesting - and it'd often just come back up on me.

You've all brought up some great ideas - and I do have to remind myself that I am not only harming myself, but also am harming the one thing I was sure would never be!

So now I'm going to have to find some great meal ideas - and mashed potatoes have been a heaven-sent carb solution for me when I need them most! So for now, I'm going to stick to that being my only starchy fix since the other stuff is just making my stomach turn.

jswog Contributor

Ohhh.... Mashed Potatoes! You said that and it sounds AMAZING! I think I just might go make some...

addis001 Apprentice

Definitely missing my Crackers for M/S... With my first pregnancy, I would lay in bed with crackers and peanut butter... sooo AMAZING... The crackers aren't the same anymore... I even tried making some with Gluten free flour...

It was a disaster..

  • 1 month later...
JNBunnie1 Community Regular

Definitely missing my Crackers for M/S... With my first pregnancy, I would lay in bed with crackers and peanut butter... sooo AMAZING... The crackers aren't the same anymore... I even tried making some with Gluten free flour...

It was a disaster..

Best gluten free crackers- Glutino brand round ones. They're harder than Ritz, but very tasty. I like the cheddar.

  • 2 weeks later...
evilette13 Newbie

There are so many amazing gluten free breads out there now. They live in the freezer section in your local grocery store or Whole Foods. When I was diagnosed 7 years ago there weren't these options. Being sick with morning sickness would only be made so much worse if you were to eat gluten containing breads. Also, please keep in mind that eating gluten products while in your first trimester ups your chances of having a miscarriage. No food is worth the pain or consequences of losing your baby.

Good luck to you. Having those two diagnosis on the same day must seem so very overwhelming for you. But, remember, you can do it! And in a couple of years eating gluten free will be like second nature; you'll feel so much better you won't miss foods with gluten anymore. Unfortunately, right now, it might seem like a huge hurdle to have to conquer. But with time, it will get so much easier.

One more note, beware of prenatal vitamins. Make sure they say gluten free on the label. Congrats!

1desperateladysaved Proficient

Congratulations, children are a great blessing. I say that and I have 7 pretty grown up ones. They are very motivating as reasons to succeed with the diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,153
    • Most Online (within 30 mins)
      7,748

    Mmoc
    Newest Member
    Mmoc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.