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Frightened From Upcoming Appointment

dani nero

By dani nero
in Coping with Celiac Disease

Recommended Posts

dani nero Community Regular
dani nero
Posted

I'm terrified about the coming appointment. I can't handle eating gluten again and I have a feeling that the doc will request that I eat gluten. I rushed into this diet the moment I found out it was causing the menstrual problems without knowing the consequences.

I'm still detoxing from the previous accident and it's really painful. I can't go through this for another half a year. I won't be able to handle it!

The health system here is not helping me at all either. I got a call from the clinic two mondays ago about my appointment being in the mail, and I'm still waiting for that letter. Every day is another day to sit and worry about them making me poison myself.

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squirmingitch Veteran
squirmingitch
Posted

Awww dani, I'm so sorry. It's that old "caught between a rock & a hard place". That's why so many of us are self diagnosed. We can't bear going back. Might as well be asking me to put a bullet in my brains. No way! But each of us has to do what we need to do.

That doesn't mean we can't hold your hand while you wait & worry & wonder.

Go do something special today. Go to some park or museum or somewhere that really turns you on. That will help get your mind off it & help you relax & renew yourself.smile.gif

dani nero Community Regular
dani nero
Posted
  • Author

Awww dani, I'm so sorry. It's that old "caught between a rock & a hard place". That's why so many of us are self diagnosed. We can't bear going back. Might as well be asking me to put a bullet in my brains. No way! But each of us has to do what we need to do.

That doesn't mean we can't hold your hand while you wait & worry & wonder.

Go do something special today. Go to some park or museum or somewhere that really turns you on. That will help get your mind off it & help you relax & renew yourself.smile.gif

I sadly can't go out. I need to be working as I'm really really really behind on work. Got a deadline next Friday and I haven't done anything yet. I haven't been able to produce at all lately. I just sit and stare at the screen drawing things that a 5 year old would draw better.

Maybe a walk outside like you suggested would help with that though.

Thanks for the comforting squirmingitch.

squirmingitch Veteran
squirmingitch
Posted

Anytime dani, anytime. We are all here for you.

May I ask what country you are in?

dani nero Community Regular
dani nero
Posted
  • Author

Anytime dani, anytime. We are all here for you.

May I ask what country you are in?

I live in Sweden

BabsV Enthusiast
BabsV
Posted

*virtual hug*

Wish I could do more -- once you get caught in that worrying loop it is hard to break out of it.

Do something for yourself that will help take your mind off it if at all possible...take a walk, talk to a friend, splurge on something small (my vice was a type of gluten-free lotion that smelled wonderful; just rubbing a bit into my hands helped to relax me, strange I know...), get a massage, whatever it takes!

squirmingitch Veteran
squirmingitch
Posted

Ahhhhh, Sweden. It's a very pretty country from what I've seen on TV. I would like to visit it in person some day.

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

If the Dr. wants you to go back on gluten, you tell them how badly it affects you. That should help DX, because improvement on a gluten-free diet is one of the things Dr, Fassano (one of the leading Celiac specialists) uses as a diagnosing factor.

Maybe you could ask for the genetic test? It might help with your DX.

Waiting is just awful isn't it? :(

dani nero Community Regular
dani nero
Posted
  • Author

Ahhhhh, Sweden. It's a very pretty country from what I've seen on TV. I would like to visit it in person some day.

It is different here but nevertheless also pretty :-) I'm sure you'd enjoy it.

dani nero Community Regular
dani nero
Posted
  • Author

If the Dr. wants you to go back on gluten, you tell them how badly it affects you. That should help DX, because improvement on a gluten-free diet is one of the things Dr, Fassano (one of the leading Celiac specialists) uses as a diagnosing factor.

Maybe you could ask for the genetic test? It might help with your DX.

Waiting is just awful isn't it? :(

Yes it's always in the back of my head. Perhaps if I weren't so worried about a false negative it would have been a little easier.

The problem is that the doctor probably never read about Dr Fassano or his DX.

dani nero Community Regular
dani nero
Posted
  • Author

*virtual hug*

Wish I could do more -- once you get caught in that worrying loop it is hard to break out of it.

Do something for yourself that will help take your mind off it if at all possible...take a walk, talk to a friend, splurge on something small (my vice was a type of gluten-free lotion that smelled wonderful; just rubbing a bit into my hands helped to relax me, strange I know...), get a massage, whatever it takes!

Thanks for the hug. I really need them. When my DH comes home he's gonna have to provide me with lots of those.

pricklypear1971 Community Regular
pricklypear1971
Posted

We've all been there, at one time or another.

Just be nice to yourself right now. Work a bit, even if you aren't producing at the level you want...sometimes just doing it will get you rolling. Then take a break...eventually it will click.

Try not to stress about the things you can't do anything about - like your doctor's thought process. Good news is you have choices and you are in control of the situation. No one can MAKE you go back on gluten. It will be your choice.

dani nero Community Regular
dani nero
Posted
  • Author

We've all been there, at one time or another.

Just be nice to yourself right now. Work a bit, even if you aren't producing at the level you want...sometimes just doing it will get you rolling. Then take a break...eventually it will click.

Try not to stress about the things you can't do anything about - like your doctor's thought process. Good news is you have choices and you are in control of the situation. No one can MAKE you go back on gluten. It will be your choice.

Thank you pricklypear. I'll make my DH pamper me a little extra today :-)

You've all been very helpful every single time I've posted.

squirmingitch Veteran
squirmingitch
Posted

I'm sure your DH will be delighted to pamper you a little extra today. Don't all men love playing the white knight?smile.gif

Kimbalou Enthusiast
Kimbalou
Posted

I was watching an episode of House Hunters International and they were in Sweden. Very pretty. My husband is Swedish. Our last name is obviously Swedish..so when I go to the grocery store there's one cashier that started talking to me in Swedish as I left. (they see your last name on the receipt) I politely told him I don't speak Swedish (neither does my husband). So, now I avoid his line because he keeps thinking I speak Swedish! :) Maybe I should learn someday?

Hugs to you!

dani nero Community Regular
dani nero
Posted
  • Author

I was watching an episode of House Hunters International and they were in Sweden. Very pretty. My husband is Swedish. Our last name is obviously Swedish..so when I go to the grocery store there's one cashier that started talking to me in Swedish as I left. (they see your last name on the receipt) I politely told him I don't speak Swedish (neither does my husband). So, now I avoid his line because he keeps thinking I speak Swedish! :) Maybe I should learn someday?

Hugs to you!

Hahahaha :-D I wonder if he notices you avoid his line.

Swedish is not the easiest language to learn sadly.

Lori2 Contributor
Lori2
Posted

Hahahaha :-D I wonder if he notices you avoid his line.

Swedish is not the easiest language to learn sadly.

I

alicewa Contributor
alicewa
Posted

Have you tried emailing Enterolab www.enterolab.com and doing their tests? I recently ordered Panel E Open Original Shared Link to be sent to New Zealand. They do process international orders but you'd have to locate a courier service that could return the stool samples back within 72 hours. The courier costs can get very expensive.

dani nero Community Regular
dani nero
Posted
  • Author

I

dani nero Community Regular
dani nero
Posted
  • Author

Have you tried emailing Enterolab www.enterolab.com and doing their tests? I recently ordered Panel E Open Original Shared Link to be sent to New Zealand. They do process international orders but you'd have to locate a courier service that could return the stool samples back within 72 hours. The courier costs can get very expensive.

It looks a little peculiar but at least it's an option if all else fails :-O

Let us know how your results turn out!

I'm not sure I would want my stool sample back though lol :-) ..J/k!

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