Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sad :(


Di2011

Recommended Posts

Di2011 Enthusiast

I've been gluten free going on a year. Having my first glutening in about 7 months and I ain't liking the reminder. On & off the toilet all afternoon, had to have a 3 hour sleep this arvy (and only got up to do dinner for my son). But the worst thing is feeling so damn sad. That stuff plays with my brain worse than the rest (and my DH is pretty bad still!). I hate the feeling in your brain like there's really not much good going on. Having Liam repeat everything he says to me twice (at least) which isn't much fun at homework time!! Yesterday I was happy as larry. Ugghh I hope this is a short one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BabsV Enthusiast

Oh no, hope you feel better soon!

Greyhound Rookie

I'm feeling deeply sad at the moment too. I don't know whether it's all part of the withdrawal or what but I feel like everything is completely empty and pointless and I don't know what to do about it.

Di2011 Enthusiast

Gluten has a lot answer for

Di2011 Enthusiast

It was a few months before I got over this. Hence the past few months feeling good and "free". It is achievable a nd the good life/feeling is there. Just takes time.

I am lucky that I see the good time ahead

IrishHeart Veteran

Gluten sucks the life out of me and messes with my brain, too.

I am like you--I get the overwhelming sadness (and insomnia and anxiety and brain fog, racing in my heart and mind and a sensation like I am on LSD)if I am hit. I used to describe it as "someone pulling down the shade" on me. Totally opposite my personality to be that sad and moody and feeling lost.

I call this "Gluten Head Hell" and it was my life for 3 years before DX.

The best thing to do is tell yourself "Okay, you gluten bugger, I KNOW what this is and it's going to pass. All's well."

Drink a lot of water, hon--- and I hope you feel better soon.

(hugs)

pricklypear1971 Community Regular

I'm sorry. It sucks. I'm just now getting past the stomach and muscle cramps, myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jetamio Apprentice

Hang in there! Gluten is a beast.

Di2011 Enthusiast

Thank you all for your support. Hugs back to you all. A little better this morning. Actually a little helpful with LIams homework. Will try to keep busy.

IrishHeart Veteran

Hang tough, sweetie---you're going to be okay. :)

Ninja Contributor

It does get better, even though it's difficult to believe when you're feeling like you do. Hang in there and treat yourself to something special

Juliebove Rising Star

Sorry to hear that! Gluten isn't my issue but I do have other food intolerances. I hate it when I screw up and accidentally eat something I shouldn't. I managed to save myself last week (or was it the week before?) when I flipped over a package to read the carb count, only to see that there was milk in the food. I had bought a different brand than what I had bought before and what I usually buy has no milk in. Must always remember to read every package label every time.

It's also annoying to be eating in a restaurant and get halfway through a salad and then find a crouton or a shred of cheese in there. Then I have to worry about possibly getting sick later. But I guess that is perhaps a bit better than eating out and then getting sick later and then not having a clue what it was that made you sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,585
    • Most Online (within 30 mins)
      7,748

    Josephine Minaudo
    Newest Member
    Josephine Minaudo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.