Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Even My Mom Can Be Rude About Celiac

Kimbalou

Recommended Posts

Kimbalou Enthusiast
Kimbalou
Posted

I am celebrating Mother's Day with my family next weekend because I had to work today. We decided we don't want to cook. So, my mom told me she would get pizza. I reminded her I couldn't eat pizza. She said "well, we can get it for the people who can eat it." (huh? What about me?!) Then I said we could get Chinese food and she menitoned Panda Express. I have told gher before that panda is not gluten free. I told her we could get chinese from a regular restaurant and I would make sure it was gluten free. She sounded so frustrated and just said "well, maybe you should just bring your own food!" I told her it really isn't that hard to find a place with gluten-free food. Since I am a mother too, I felt like it was only fair to have food I could eat. She makes me feel like a burden when I have to eat gluten-free. She refuses to get tested for it, and that bugs me too...but it's her life.

I just think it's rude to mention getting pizza as the first choice! I told her, pizza would be ok if she had a gluten-free pizza place near her (I live an hour away where we have some gluten-free pizza places.) She said she didn't know if they had any gluten-free pizza places near her...and I know she won't call to find any.\

Thanks for letting me vent. I just think when there's not a plan in place for the food to begin with, it's ok for her to figure out a place that I can eat at too. Even my own mom doesn't get it:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

Life really sucks for us sometimes. Maybe a little more than sometimes :-( Sorry you had to put up with that type of attitude. For me it's my dad who can be awful.. he acts as if the food I eat is uneatable.

*hug hug hug*

Ninja Contributor
Ninja
Posted

On Mother's day?! :( That sounds awful, I'm so sorry you had to deal with that on your day. I get it. My dad likes to make dinner for us on the weekends, however he doesn't take the necessary precautions as he is the gluten eater in the family) to keep things free of cc. He gets frustrated when I begin to tell him what he needs to do to keep things safe (washing hands, etc), but he doesn't want to learn it himself, either. It really is the truth that if you don't have to deal with it you don't understand.

Hugs,

~Laura

Mnicole1981 Enthusiast
Mnicole1981
Posted

I understand your frustration. This is new for me and we had dinner at my Grandma's and she did not seem to understand that some things will make me sick. I ate what she cooked and I got the left side pain, cramping, and nausea.

1desperateladysaved Proficient
1desperateladysaved
Posted

This is my life every day. I live with 5 people that cannot eat gluten free. I am hoping that one day it will be different. It already has gotten better as people have discovered that is much easier to make one meal which Mom can eat.

We must do what we must do. Hopefully, we are rewarded for it; I know I am.

ravenwoodglass Mentor
ravenwoodglass
Posted

Kim, something that might work for you all is to put the name of your Mom's city and the words 'gluten free restaurants' in a search engine. See what comes up and then suggest a couple that she could pick her favorite from. That might work better than asking her where she wants to go. People don't understand how difficult it is for us and it can be hard for them when the suggestions they make have to be nixed by us. That makes both parties frustrated. I hope you can find a good safe and acceptable solution that will keep you safe and also be good for the rest of the family.

Carebear Apprentice
Carebear
Posted

Ugh that sounds so frustrating!!! My family likes to pretend I don't have dietary restrictions and continues to try and make me plates full of allergens and whatnot around the holidays.

I try my best to make sure I'm the first one to suggest a place to eat when we go out, and always google and call some gluten free places around my parents when I'm in town.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

We understand that some family membes can't get gluten-free.. I think when a Mom doesn't get it it becomes hurtful... As we think of our Mom as our rock & pillar to turn too...My Mom is gone but she always understood so I was very lucky.

But for other family gatherings I take my own food, always. I never expect anyone who is not gluten-free to understand the risks of being gluten-free.. Just easier to take my own & enjoy the friendship part of the day....and not be sick after.If I know what the food is going to be then I'll match it & I always take extras for others who dare to taste gluten-free..I have been asked to bring gluten-free foods to gatherings because the gluten eaters enjoyed the food..Once they find out our food is good , then we have won part of the battle...

hugs

MikeOhio Rookie
MikeOhio
Posted

Sorry to hear that. My mom's usually pretty good about eating out although I have to eat a lot of french fries and salads and dairy products sometimes. I live in a rural area myself so there's no gluten free restaurants here. I'm thinking about maybe getting some pepper steak from the local Chinese restaurant sometimes. I don't know if I recommend that for you though, but you may be able to find something from a Chinese place. One would hope that with the choice of a gluten free restaurant available your mother could accommodate you

ravenwoodglass Mentor
ravenwoodglass
Posted

Sorry to hear that. My mom's usually pretty good about eating out although I have to eat a lot of french fries and salads and dairy products sometimes. I live in a rural area myself so there's no gluten free restaurants here. I'm thinking about maybe getting some pepper steak from the local Chinese restaurant sometimes. I don't know if I recommend that for you though, but you may be able to find something from a Chinese place. One would hope that with the choice of a gluten free restaurant available your mother could accommodate you

Do make sure to ask if they marinate the meat with soy sauce. Regular soy sauce has wheat so you would want to avoid that.

MikeOhio Rookie
MikeOhio
Posted

Do make sure to ask if they marinate the meat with soy sauce. Regular soy sauce has wheat so you would want to avoid that.

darn, I think you're right about that. I hope I can find something. Thanks for the info.

Jetamio Apprentice
Jetamio
Posted

Aw I'm sorry you had that happen on Mother's Day! I find mixed responses in my family. My daughter has been fantastic about it. My mom is trying to understand it more but won't get tested herself (she has IBS, MS and Fibromyalgia). So far the only real response she gives is a grunt and a "that sucks" when I explain what gluten free means. Hang in there and take care of you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.