Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Start?

jgrob3

Recommended Posts

jgrob3 Newbie
jgrob3
Posted

We just got the call this morning that my 11 year old daughters byopsies came back positive. We had prepared oursleves since her blood tests had come back positive also.

Now that it is here though....I am feeling very overwhelemed as to where to even start eliminating the gluten.

We plan to go gluten free as a family. I can't afford to throw an entire pantry of food away though. So, the plan right now is for her to go gluten-free and the rest of us will slowly use up what is left in the house. As that happens we will just incorporate more gluten-free things into our diets as well.

My daughters health it top priority. At the same time I am so worried about affording the gluten-free life. I was just looking on websites that sell gluten-free things. $10 for a thing of handsoap?!?! I barely pay above $1 for handsoap now with sales and coupons. Toothpaste?!? I barely ever even pay for toothpaste with coupons and sales. How do you do it?!?

I must sound horrible, thinking of the money side of it. SOrry. Like I said, I am just very overwhelmed with it all.

Thank you,

Amanda

Mom to Emilee(11), Liam(8), and Brynn(6)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Welcome to the board!

It seems overwhelming at first, but it is easier than it seems.

There are many mainstream products that suitable even though they do not have "gluten-free" labels.

Hand soap? I use Ivory.

Toothpaste? Crest and Colgate are all gluten-free.

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.

Open Original Shared Link If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc."

I am not a supporter of lists--they are out of date the minute that you print them. Formulas are constantly changing. That is why I like to buy from companies who will label clearly (see the third link above). Always read the label.

melaniesilvers Rookie
melaniesilvers
Posted

I'm just getting started (about 1 week in) to my son's diagnosis. We have chosen to find regular foods that are already gluten free. Fruity pebbles, Yopait yogurt, swave shampoo, swave handsoap (some of the cheapest out there). I'm gradually purchasing those higher end, specifically gluten free products when I'm able. I'm not sure where you live, but we have a grocery store called Ingles. It is very easy to shop there and they have large brown tags on things in their store that is gluten free. I didn't realize until shopping there that the spaghetti sauce we buy (specific varitey of Prego) is gluten free and Betty Crocker cream cheese icing is gluten free too.

mushroom Proficient
mushroom
Posted

Two other places to look are the Newbie 101 link () and the FAQ's at the top of each section of the forum. They contain lots of general information.

MitziG Enthusiast
MitziG
Posted

Actually, Colgate won't guarantee their products are gluten free, wheras Crest does. Technicality, but I am done taking chances!

sa1937 Community Regular
sa1937
Posted

Actually, Colgate won't guarantee their products are gluten free, wheras Crest does. Technicality, but I am done taking chances!

I use Colgate toothpaste and have no problem with it. It's the least of my concerns.

lovegrov Collaborator
lovegrov
Posted

As already mentioned, the key is to find products that are just gluten-free anyway and stay away from expensive stuff. Toothpaste is pretty much universally gluten-free (MAYBE one type of Sensodyne isn't). Hand soaps generally are not a problem and you can certainly find a regular one that works.

However, if your family insists on having bread or pasta, it will get pricy, even if you make your own bread. Not sure how much the non-celiac people will appreciate the bread, either.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


clare89 Newbie
clare89
Posted

We just got the call this morning that my 11 year old daughters byopsies came back positive. We had prepared oursleves since her blood tests had come back positive also.

Now that it is here though....I am feeling very overwhelemed as to where to even start eliminating the gluten.

We plan to go gluten free as a family. I can't afford to throw an entire pantry of food away though. So, the plan right now is for her to go gluten-free and the rest of us will slowly use up what is left in the house. As that happens we will just incorporate more gluten-free things into our diets as well.

My daughters health it top priority. At the same time I am so worried about affording the gluten-free life. I was just looking on websites that sell gluten-free things. $10 for a thing of handsoap?!?! I barely pay above $1 for handsoap now with sales and coupons. Toothpaste?!? I barely ever even pay for toothpaste with coupons and sales. How do you do it?!?

I must sound horrible, thinking of the money side of it. SOrry. Like I said, I am just very overwhelmed with it all.

Thank you,

Amanda

Mom to Emilee(11), Liam(8), and Brynn(6)

i have found the same that the products are very expencive and very limited but i read the lables and most mainstreme pruduct are gluton free but i was looking at back of a veg pack today and said may contain gluton and wheat due to manafaction which i thought was hard to believe but my son has been on his diet for a week and just getting used to product he can have but i hadnt thought of soaps, tooth paste ect so even though it may be very timely check lables but can save money rather than buying specail products

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748
    Dan Bryst
    Newest Member
    Dan Bryst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.