Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does This Mean?

roxieb73

Recommended Posts

roxieb73 Contributor
roxieb73
Posted

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

roxieb73 Contributor
roxieb73
Posted
  • Author

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

It just said negative

MitziG Enthusiast
MitziG
Posted

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

roxieb73 Contributor
roxieb73
Posted
  • Author

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

I will do it than k you Mitzi! I won't have to argue with him. He already thinks we got a false negative. My doctor is pretty convinced Celiac is what my problem is.

Sieben Rookie
Sieben
Posted

Are false negatives that common on the endomysial IGA test?

beachbirdie Contributor
beachbirdie
Posted

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


roxieb73 Contributor
roxieb73
Posted
  • Author

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

ravenwoodglass Mentor
ravenwoodglass
Posted

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

Once all your testing is done do try the diet no matter what the gene and other tests show. Gene tests are only a small part of the picture as folks can have the associated genes and not have celiac and people can have celiac and not have one of the two most commonly associated genes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,853
    • Most Online (within 30 mins)
      7,748
    Procurement
    Newest Member
    Procurement
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.