Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Out


cmoore

Recommended Posts

cmoore Apprentice

I have yet to get an official diagnosis but I had a question, Did some people fine it necessary to just not eat out at all in the 1st few months of going gluten free, as they got a handle on it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

That would be very wise. I was diagnosed four days before going to Italy. I should have waited to start eating gluten free after the trip! Looking back I had so much gluten there it is not even funny. Get this - my husband ordered this fabulous pasta soup. He picked out the pasta and I finished the soup!! Anyway, you learn from these mistakes so it is recommended that you do not eat out until you can ask the right questions and be okay with others around you eating gluten. That can be tough mentally. At least it was for me. Thankfully a few months is not long in the grand scheme of things!

I see you joined here May 2010. Have you been eating gluten all this time? Just curious. :)

Darn210 Enthusiast

We didn't eat out for a while (couple of months?). . . probably because I was knee deep in trying to figure it all out and quite honestly a little freaked out and self-conscious about the whole thing.

Gemini Experienced

I have yet to get an official diagnosis but I had a question, Did some people fine it necessary to just not eat out at all in the 1st few months of going gluten free, as they got a handle on it?

I was deathly ill when first diagnosed but started feeling better as each day went on that I ate gluten free. At least the gastric problems calmed down fairly quickly, which was good because I had booked a trip to London months before and if I did not get on that plane, I would have lost a whole lot of money. So, I decided to go. We had rented an apartment and we ate breakfast in so that wasn't a problem. For dinner I found a French restaurant that understood gluten free well and they cooked plain but delicious food for me and I did not get sick. I stuck with fish or chicken, potatoes and veggies and that seemed to work well. I am a cook so knew what I could and could not have to eat and knew about how not to CC food so it worked out better than expected. It wasn't the most adventurous eating I ever did on vacation but I did not get sick. It can be done if necessary but you have to eat plain at first so going out to eat won't be the fun it usually is. It did not impede my recovery at all and I am glad I went.

I actually got sicker on the vacation before that when I didn't know I had Celiac and ate a fancy French pastry one night. I was sick as a dog that night and thought it was the meat that made me sick! Who knew it was the wheat! ;)

Adalaide Mentor

I personally did not refrain from eating out. I did refrain from eating anywhere I wasn't 100% comfortable with. Since my local Wendy's has an adult staff I was comfortable there and they have a great variety to choose from. (Even adding more restrictions over the weekend I'll still be able to stop in occasionally, yay!) Other than that in the first 2-3 months I mostly stuck with a local gluten free bakery and a pizza shop that makes great effort to prevent cc. The key to eating out safely is knowledge and asking questions. Never be afraid to walk out of a place that makes you uncomfortable and find somewhere else to eat.

Juliebove Rising Star

We did dine out but less than before. And stuck to the same boring foods that we knew were safe. Like a hamburger patty, baked potato and fruit cup.

Stu Newbie

I have a few rules I follow for eating out:

1. Stay with places that you know, and know you. I am a regular at our local Carl's Jr., and the manager knows I can't tolerate gluten. I usually order the Low Carb burger combo meals or grilled chicken salad, and have never had a reaction to anything I've eaten there, (however I avoid the milkshakes because they use one blender to mix all flavors).

2. Inform the people waiting on you of your food sensitivities when you order, in my case wheat gluten, annatto, and FD&C yellow5 (tartrazine). That means no wheat or anything with yellow coloring added. Most places will check, or let you read the list of ingredients if you ask them nicely. Many places now actually have a gluten-free menu if you ask them, and many servers and cooks have gone the extra mile to make sure my food is prepared without gluten - remember to leave them a nice tip!

3. There are still times you find yourself in a strange town eating at a strange place, (toss out rule 1), and the servers listen to your explanation with a blank stare, or rolling eyes, (toss out rule 2). Play it safe, order a salad with grilled meat, ranch dressing or cottage cheese, or a baked potato with sour cream. If the salad arrives with croutons on it, (for example), dump the dressing on it before sending it back to the kitchen, that way you'll know if they made you a fresh one instead of just picking out the gluten bits. Yes, this has happened to me.

4. Don't feel guilty or intimidated about asking for special treatment. If you ordered a burger without onions or a pickle, they wouldn't bat an eye. Ordering one without a bun should be no different! You're going to pay them good money for good food, it's their job to serve you what you want. I just had a wonderful meal with friends at a great restaurant I've never been to before despite the fact they had nothing on the menu that was particularly gluten free. The waiter was very professional about my requests, and made sure everything was right before he served me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,889
    • Most Online (within 30 mins)
      7,748

    E.coy
    Newest Member
    E.coy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
    • trents
      A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
×
×
  • Create New...