Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Ally


Adalaide

Recommended Posts

Adalaide Mentor

I've spent the past few months nagging (lovingly) my husband about the fact that I suspect he also has celiac or at least some sort of gluten intolerance. Over the past few weeks I've ramped up, pointing out every time he gets emergency rampant D that he's just polished off more wheat than I can shake a stick at. Finally, last Friday after finding out about my new diet restrictions (no tyramine, which is crazy insanely hard) I cried in the car on the way home. Mostly I was crying over chocolate, not everything else, but either way I was pretty upset. I was shocked when he told me that because of how difficult this is for me he could try going gluten free with me. He even suggested going tyramine free with me but I think that is a little extreme, especially since I can likely switch to tyramine light once I have my vision back.

So, anyway, he said he's going to eat up all the wheat in the house before switching. I personally think that's nuts but whatever. We paid for food someone may as well eat it and he seems perfectly content to be in unbearable pain a few times a week after eating so meh. We went yesterday to see his endocrinologist. (I tag along which the doctor loves because every time he asks my husband a question the doctor looks at me to see if my husband is being honest. I guess people like to lie to doctors about how awesome they are at glucose testing and carb counting.) Some months ago the doctor had blood drawn to test for celiac, and it came back negative. Yesterday the doctor explained that negative tests don't really mean you don't have it and going gluten free for 4-6 weeks at least can't hurt him any and he should try it. Words can not express how difficult it was not to look smug.

So, in the next week or two I'll have a gluten free buddy. Now to arm myself for the moodiness and misery of his withdrawal. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alex11602 Collaborator

This just made me smile, not that he is feeling poorly but that you will have a gluten free buddy right at home :) Hopefully he won't really go through withdrawel and it will be an easy transition.

squirmingitch Veteran

When my hubs was going to begin gluten-free I was very worried about "the bear" emerging when withdrawal kicked in. Luckily, VERY luckily, he escaped gluten withdrawal; maybe b/c he was gluten light b/c of me. Anyway, IrishHeart gave me a tip to deal with him if the withdrawal made him bearish. She said load him up with gluten-free carbs. Get lots of Glutino pretzels, bags of the safe Frito Lay junk food & load him up.

I'm delighted he will be trying it & overjoyed the doc actually said neg. tests don't mean you don't have it! YAY for a doc who knows their stuff. Nice when you hear there are a few out there who aren't idiot heads.

GFinDC Veteran

Well, he may even like it. If he likes meat there is plenty of opportunity to eat the dead animals on a gluten-free diet. Dead cow, dead pig, dead chicken etc. Barbecue galore and it's summer (here) and he may like to do a lot of barbecuing.

Don't forget toe check out the gluten-free beers too. Good for those hot summer days, if you can have them anyway.

MitziG Enthusiast

Too funny! I have been after my hubs to be gluten free 100% as well, but he insisted he doesn't have a problem. But, vanity got the best of him so he went on the Primal Diet to lose weight and lo and behold, without grains he feels great, his heartburn is gone and no bloating and constipation! He told me today that maybe my "internet hoakum" isn't all internet hoakum after all!

frieze Community Regular

I've spent the past few months nagging (lovingly) my husband about the fact that I suspect he also has celiac or at least some sort of gluten intolerance. Over the past few weeks I've ramped up, pointing out every time he gets emergency rampant D that he's just polished off more wheat than I can shake a stick at. Finally, last Friday after finding out about my new diet restrictions (no tyramine, which is crazy insanely hard) I cried in the car on the way home. Mostly I was crying over chocolate, not everything else, but either way I was pretty upset. I was shocked when he told me that because of how difficult this is for me he could try going gluten free with me. He even suggested going tyramine free with me but I think that is a little extreme, especially since I can likely switch to tyramine light once I have my vision back.

So, anyway, he said he's going to eat up all the wheat in the house before switching. I personally think that's nuts but whatever. We paid for food someone may as well eat it and he seems perfectly content to be in unbearable pain a few times a week after eating so meh. We went yesterday to see his endocrinologist. (I tag along which the doctor loves because every time he asks my husband a question the doctor looks at me to see if my husband is being honest. I guess people like to lie to doctors about how awesome they are at glucose testing and carb counting.) Some months ago the doctor had blood drawn to test for celiac, and it came back negative. Yesterday the doctor explained that negative tests don't really mean you don't have it and going gluten free for 4-6 weeks at least can't hurt him any and he should try it. Words can not express how difficult it was not to look smug.

So, in the next week or two I'll have a gluten free buddy. Now to arm myself for the moodiness and misery of his withdrawal. :ph34r:

Since I am a tyramine sensitive migraineur, I am VERY interested in the connection between that and your vision! PLEASE share as much as you are comfortable with, TIA.

Adalaide Mentor

Since I am a tyramine sensitive migraineur, I am VERY interested in the connection between that and your vision! PLEASE share as much as you are comfortable with, TIA.

I was diagnosed with pseudotumor cerebri and/or intracranial hypertension, the doctor used the terms interchangeably. Basically, I have all the signs and symptoms of a tumor, only without a tumor. Apparently fat people (women in particular) are awesome at making too much brain fluid which is in some way related to tyramine. When that happens it puts pressure on the backs of your eyes and next thing you know your husband is driving you around. It all makes sense, I realized that in the week before I went blurry I ate probably 2+ pounds of spinach, plus since going gluten free I've just overall significantly increased my tyramine intake without even knowing what it is or that it exists. My 17 year old daughter's response? MOOOOOOM, how can you not eat chocolate and call yourself a woman? <_< Thanks kid.

BTW, I also get occasional migraines although mine are hormone related. For the first time in my life I got 2 non-hormone related migraines with the blurry vision last week. Thankfully I'm on topamax now so that shouldn't happen again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom-of-Two Contributor

My hubby went gluten free when I did 4 months ago, it is so much easier to do it together and cook in the same kitchen!

He lost a ton of weight doing a paleo type diet before going gluten free, so he was already pretty familiar with low grains- he then read Wheat Belly and the transition was pretty easy for him.

:)

frieze Community Regular

I was diagnosed with pseudotumor cerebri and/or intracranial hypertension, the doctor used the terms interchangeably. Basically, I have all the signs and symptoms of a tumor, only without a tumor. Apparently fat people (women in particular) are awesome at making too much brain fluid which is in some way related to tyramine. When that happens it puts pressure on the backs of your eyes and next thing you know your husband is driving you around. It all makes sense, I realized that in the week before I went blurry I ate probably 2+ pounds of spinach, plus since going gluten free I've just overall significantly increased my tyramine intake without even knowing what it is or that it exists. My 17 year old daughter's response? MOOOOOOM, how can you not eat chocolate and call yourself a woman? <_< Thanks kid.

BTW, I also get occasional migraines although mine are hormone related. For the first time in my life I got 2 non-hormone related migraines with the blurry vision last week. Thankfully I'm on topamax now so that shouldn't happen again.

thanks, I have a hearing deficit, was thinking it might be related....I don't get a migraine from small amounts of most things on "the list" so eat them just not a lot, or together.....have wondered if this has been the cause of my issue, but so little self discipline when there are no obvious symptoms! wishing you well.

BeccaMeadows Newbie

I really like the more primative diet. Apparently the human digestive system isn't even properly designed to intake so much wheat since we have only been cultivating it since the time of the Egyptians (it's takes thousands to millions of years for evolution to cure this). You're lucky to have a gluten-free buddy who lives with you. It makes cooking so much easier.

Bubba's Mom Enthusiast

I'm so glad your hubby is going to give gluten-free a try! I hope he doesn't get the mood swings, but maybe you can talk about it ahead of time? Have a word or phrase chosen that either of you can use that basically means "gluten is controlling your/my emotions right now, so let's back off"? Let him know if he's seeming moody you'll say the "magic word" and you'll both take a breather or go to separate corners? LOL

I so wish my hubby would go gluten-free. He's very overweight, has type 2 diabetes, has bad reflux even on meds, has very bad arthritis, Hashimoto's, had a nearly fatal heart attack at an early age, and he seems to constantly be complaining about horrible aches and pains. His knees hurt all of the time. I see so many symptoms in him that I think would improve gluten-free but he just refuses! He doesn't watch his diet in regards to his diabetes either. :(

Adalaide Mentor

Isn't it the worst watching someone you love more or less kill themselves? My husband is type 1 and doesn't carb count or correct properly all of the time. When he does, I'm not sure it matters. The doctor agrees that celiac could be causing a lot of his problems with lows and he's already had to be taken to the ER once for it when literally no amount of sugar he could pour into his body would raise his glucose. Of course, when he isn't going low he's always high. I keep telling him that when he has no feet and is mostly blind I'm not pushing his wheelchair to dialysis.

Love the idea of a magic word. I learned long ago that when I don't have anything nice to say, not to say anything at all. I think I may be mildly psychotic at that special time of the month. :lol: I just spend a few days with my mouth shut fuming at all sorts of stupid things no reasonable person would get upset about. Now my new meds are causing violent mood swings, which is not awesome. I'm hoping it'll level out once my body adjusts. We probably both need the magic word if we want to stay happily married over the next few weeks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748

    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.