Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Have Too Much Dairy?


LauraB0927

Recommended Posts

LauraB0927 Apprentice

I never had an issue with dairy before my diagnosis (May 2012) and I used to drink milk like it was water and going out of style...but I cut out a good portion of dairy and now only limit my diary intake to a Weight Watchers low fat cheese stick and a cup of yogurt daily. Since I never had issues with those and always felt fine, I tried the Trader Joe's Strawberry Kefir yesterday (a very small amount, maybe 1/4 of a cup, just to see if I liked it). About an hour later, I was curled up on the floor with excruciating pains in my intestine area and had D for the rest of the night. I've NEVER felt that kind of pain before and the only thing I changed in my diet yesterday was drinking the Kefir. My GI system is still feeling a bit sensitive today...

I can tolerate milk in cooking, like when I make home made gluten free corn muffins or other recipes. I can also eat gluten free cheese pizzas without any problem at all. I know that we can become lactose intolerant, but I was totally thrown off guard by this. Here's my stupid question - was that way too much dairy/lactose for me? I'm assuming there is a higher level of lactose in the Kefir, but has anyone else had this issue? Will taking Lactaid pills help with this? I want to make sure I am getting my calcium and probiotics and was also hoping that the Kefir could be a filling afternoon snack combined with some fruit, as I'm trying to lose some more weight. Any suggestions would be much appreciated!!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dws Contributor

I never had an issue with dairy before my diagnosis (May 2012) and I used to drink milk like it was water and going out of style...but I cut out a good portion of dairy and now only limit my diary intake to a Weight Watchers low fat cheese stick and a cup of yogurt daily. Since I never had issues with those and always felt fine, I tried the Trader Joe's Strawberry Kefir yesterday (a very small amount, maybe 1/4 of a cup, just to see if I liked it). About an hour later, I was curled up on the floor with excruciating pains in my intestine area and had D for the rest of the night. I've NEVER felt that kind of pain before and the only thing I changed in my diet yesterday was drinking the Kefir. My GI system is still feeling a bit sensitive today...

I can tolerate milk in cooking, like when I make home made gluten free corn muffins or other recipes. I can also eat gluten free cheese pizzas without any problem at all. I know that we can become lactose intolerant, but I was totally thrown off guard by this. Here's my stupid question - was that way too much dairy/lactose for me? I'm assuming there is a higher level of lactose in the Kefir, but has anyone else had this issue? Will taking Lactaid pills help with this? I want to make sure I am getting my calcium and probiotics and was also hoping that the Kefir could be a filling afternoon snack combined with some fruit, as I'm trying to lose some more weight. Any suggestions would be much appreciated!!! :)

I'm not sure what's up with the kefir for you. Like yogurt, it has less lactose than milk and is advertised as having less lactose than yogurt. It does tend to be loaded with super high levels of probiotics, so maybe those upset your system. Maybe too much of a good thing. Probiotics make my stomach hurt.

LauraB0927 Apprentice

I'm not sure what's up with the kefir for you. Like yogurt, it has less lactose than milk and is advertised as having less lactose than yogurt. It does tend to be loaded with super high levels of probiotics, so maybe those upset your system. Maybe too much of a good thing. Probiotics make my stomach hurt.

Thank you so much for that advice! After reading your post, I made a call to my nutritionist (who is wonderful) and explained the situation to her and she seems to think it's the cultures too and said that some Celiacs cant tolerate the high amounts in the Kefir. I'll stay away from it for a long time (I dont want to experience anything like that again) and then see if I can work it in slowly. Thanks again!

dws Contributor

Thank you so much for that advice! After reading your post, I made a call to my nutritionist (who is wonderful) and explained the situation to her and she seems to think it's the cultures too and said that some Celiacs cant tolerate the high amounts in the Kefir. I'll stay away from it for a long time (I dont want to experience anything like that again) and then see if I can work it in slowly. Thanks again!

You're lucky you have a good nutritionist who is familiar with celiac. Wish I could find one.

IrishHeart Veteran

I agree ---and I would recommend avoiding kefir when newly diagnosed IMHO.

It's really hard on a damaged gut, despite the healing nature of it. I figured it would be a FAB idea for me, too.... but, nope.

( your story brought back a "fond" memory. :rolleyes: It lasted about 3 minutes in me before causing terrible cramping and it took about 10 more minutes before finding "the way back out"--any which way it could....and it wasn't pretty :lol: )

I have not touched it since and likely, I never will again.

I take probiotics in powder form and that works fine for me.

Glad you have a good celiac-savvy nutritionist!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.