Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Advise!

bartfull

By bartfull
in Coping with Celiac Disease

Recommended Posts

bartfull Rising Star
bartfull
Posted

So I woke up yesterday with pain and swelling in my face. This isn't the first time I've had an absessed tooth. I need an antibiotic. So they called in a prescription to the compounding pharmacy and they don't have the ingredients on hand. I won't be able to get it until tomorrow, late afternoon/evening.

I have known people who have died when the absess got into their brains. In the meantime the swelling and pain are getting worse every minute.

Should I go to the emergency room and get enough of the corn filled antibiotic to hold me over until I can get the corn free, gluten-free, soy free one they are making? I'm a bit scared right now and in a lot of pain. I know I'll be sick from the corn, but I'm afraid I'll be dead by tomorrow night if I wait.

HELP!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Could they prescribe one that the compounding pharmacy has? Sometimes more than one type will work.

bartfull Rising Star
bartfull
Posted
  • Author

Dang! I tried to edit so that it said ADVICE, not ADVISE. But it would only let me edit the body, not the title. Oh well, you get the idea, and I AM in pain, so I'll use that as an excuse for the mis-spelling.

kareng Grand Master
kareng
Posted

Dang! I tried to edit so that it said ADVICE, not ADVISE. But it would only let me edit the body, not the title. Oh well, you get the idea, and I AM in pain, so I'll use that as an excuse for the mis-spelling.

That's OK. I knew what you meant.

MitziG Enthusiast
MitziG
Posted

Sick vs dead....is there really a debate here? Get some antibiotic now, pronto.

Adalaide Mentor
Adalaide
Posted

Go to the ER, don't mess around.

kareng Grand Master
kareng
Posted

'How about a dose of IV antibiotic or a shot?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted
  • Author

What they prescribed (and they ALWAYS prescribe this when it is teeth) is clindamycin. That's the one that can give you D and can sometimes cause C-diff. I won't be able to tell if the D is from the drug or from the corn.

I called to see if they could prescribe a day's worth of the corn stuff and they won't be back in the office until an hour from now. The compounding pharmacy is 60 miles from here but I can get the corn filled stuff here in town. Now I just have to wait until they are back in the office.

jerseyangel Proficient
jerseyangel
Posted

I'm sorry you are in such pain. I would take an antibiotic from the regular pharmacy to tide you over. No guarantee but several of the generic manufacturers don't use gluten ingredients. They would be more likey to have corn.

Feel better:)

YoloGx Rookie
YoloGx
Posted

Go to the ER and get it drained immediately! This is not something to fool around with.

A good friend of mine just had the same experience last weekend. The abscess apparently was so large he will have to get the tooth pulled later this week. He was too weak to have it pulled last Thursday. He is on clindamycin now. He was able to get a no gluten, lactose or casein variety. Am not sure about the corn however.

Before his gums and cheek swoll up however he felt no pain. Is that what happened to you?

Instead his digestion got way worse and he's thus steadily been losing weight these last 8 months... No one could figure out what was wrong since he didn't have h. pylori induced duodenal ulcer--which is what the doc thought he had. Finally now he's starting to be able to eat more normally again.

Good luck. No doubt soon you will be feeling a lot better.

bartfull Rising Star
bartfull
Posted
  • Author

I'm sorry you are in such pain. I would take an antibiotic from the regular pharmacy to tide you over. No guarantee but several of the generic manufacturers don't use gluten ingredients. They would be more likey to have corn.

Feel better:)

I know. EVERYTHING has corn in it, and corn is a worse problem for me than glute.

jerseyangel Proficient
jerseyangel
Posted

I posted the same time you just did. Maybe start on some probiotics ( if you aren't already) while on the abx?

bartfull Rising Star
bartfull
Posted
  • Author

Yolo, I've known for a while now that I have a bad tooth, but with no insurance, I have been putting off going. My dentist does not have a payment plan.

kareng Grand Master
kareng
Posted

Maybe it was missed. I think we both posted at once. Can they give it to you as a shot or an IV?

bartfull Rising Star
bartfull
Posted
  • Author

Karen, my doctor is also 60 miles away and I was hoping not to have to go to the ER which will cost WAY more than I can afford.

ravenwoodglass Mentor
ravenwoodglass
Posted

Karen, my doctor is also 60 miles away and I was hoping not to have to go to the ER which will cost WAY more than I can afford.

Many areas will have sliding fee scale clinics. I have used one and saw the bill drop from 150 dollars to 4 for a visit. Some of them also have dental services that also charge on a sliding scale. Your local hospital or Social Services office will be able to tell you where one is. Give them a call.

bartfull Rising Star
bartfull
Posted
  • Author

Maria just went to pick up my corn prescription. In a few minutes I can take them and although I will be sick, I don't care. The pain is getting intense and the swelling is increasing.

My doctor runs a free clinic here in town once a month. The sliding scale place is 60 miles away and they SAY the dentist is a brute. Not only does he not use novocaine, but they say he isn't very good at what he does. The dentist here in town is expensive but good. I'll have to borrow the money to get this tooth pulled. I HATE doing that, but it looks like I have no choice.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

Don't a lot of big hospitals have compounding pharmacies built in? Idk I guess you couldn't afford that either

Adalaide Mentor
Adalaide
Posted

I know you may balk at the idea, I did at first, but sometimes there really are no options left... Medicaid is there to help people. If it can provide services to people who have no desire to get a job and help themselves, then those of us simply down on our luck shouldn't be ashamed to ask for a little help now and then also.

Get to feeling better!

Takala Enthusiast
Takala
Posted

Oh, so sorry bartfull, if this corn thing is an allergy, can you check and see if you can take an antihistamine at the same time to knock down the reaction to it ?

Oh, wait, that might have corn in it, too. gaaaaaaaaaaaaah. :ph34r:

What about some sorts of otc heartburn acid blockers, have heard that they also can act as an antihistamine- like allergy blocker, but don't know enough about your antibiotic to see if it is going to be clashing/reacting.

kareng Grand Master
kareng
Posted

Maria just went to pick up my corn prescription. In a few minutes I can take them and although I will be sick, I don't care. The pain is getting intense and the swelling is increasing.

My doctor runs a free clinic here in town once a month. The sliding scale place is 60 miles away and they SAY the dentist is a brute. Not only does he not use novocaine, but they say he isn't very good at what he does. The dentist here in town is expensive but good. I'll have to borrow the money to get this tooth pulled. I HATE doing that, but it looks like I have no choice.

Sometimes dentists willl let you pay monthly. Many will take a trade.

squirmingitch Veteran
squirmingitch
Posted

Huge (((((HUGS))))) sweetie!

bartfull Rising Star
bartfull
Posted
  • Author

Thanks everyone. I took the corn filled meds and went home. I HATE closing the shop early, especially during tourist season, but I was wiped out and needed to go lie down. The weird thing is, the pain has subsided, but the swelling has gotten worse. This morning my eye is closed, my nose looks like a boxer's, and I don't have any lips on that side of my face. They say it takes 24 to 48 hours for the meds to kick in, although it has usually been my experience that within 4 to 8 hours they start to work.

I'm going to keep an eye (that's all I've got right now) on things. I may end up in the ER yet.

At least I'm no longer in pain. :)

kareng Grand Master
kareng
Posted

You made it thru the night! Glad your pain is down

Gemini Experienced
Gemini
Posted

I know you may balk at the idea, I did at first, but sometimes there really are no options left... Medicaid is there to help people. If it can provide services to people who have no desire to get a job and help themselves, then those of us simply down on our luck shouldn't be ashamed to ask for a little help now and then also.

Get to feeling better!

I agree! There are too many people who shouldn't be getting this and those who wouldn't ask, should.

I would just go to the ER next time and ask them to give you a shot of antibiotics, to get you started. You won't get sick and

they can't refuse to treat you. Just tell them honestly that you don't have insurance and you need a reasonable bill so you can pay it. I know they don't charge as much in cases like this.

Sorry you had to go through this.....you must be an incredibly strong person to have dealt with all you have in the past year!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    2. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    3. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    4. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748
    Jane Margaret
    Newest Member
    Jane Margaret
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.