Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity After 2 Months Gluten Free?


Keshavdas

Recommended Posts

Keshavdas Apprentice

Hi - I'm new to the forum. Found out by accident that I have celiac issues. My doctor (who is mostly useless) did a wide-spectrum panel of blood tests to see if he could come up with any reason why my chronic fatigue has re-appeared after 5 years - and one of the things that came up was that I had celiacs disease. Can't believe that after 20 years of complaining about how every little thing set off month-long bouts of terrible constipation that neither my doctor or any of the five other GI doctors who did colonoscopies - ever considered checking me for celiac issues!!!

I quit eating gluten right away and it's been months now with no bloating or constipation. Incredible. However - I have had a few minor "slips" about two weeks ago, a tortilla that wasn't corn after all, a bit of pie, nothing major... followed by diarrhea and nausea in the morning accompanied by crazy severe depression.

I never had severe reactions like this when I was eating bread, pizza, pasta etc? Anybody have similar experience?

I am in the meantime getting tested for parasites - because this combination of symptoms is exactly what I experienced last time I got sick in India.

Thanks,

KD


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient
I never had severe reactions like this when I was eating bread, pizza, pasta etc? Anybody have similar experience?

You may think you are getting worse. I think your body is now getting better enough to let you know what it doesn't like.

I hope you will look and find other posts on this theme. Yes, many of us have experienced new and different symptoms as we transition.

Best wishes and get well.

Diana

GottaSki Mentor

Yes, I think most of us become more sensitive and some become hyper sensitive -- we can get symptoms that you describe and worse from very small amounts of gluten - a whole flour tortilla - don't even want to think about what that would do to me :blink:

For me - I recall becoming more and more sensitive over the first 6 months which encouraged me to become that much more diligent in learning where all potential gluten sources were.

Hang in there!

ccheri Newbie

My family and I have been on the gluten-free diet for just over a year, now. My husband, basically, started the diet to support my son and I, in which, gluten has a drastic affect to us. My husband has had intestinal issues and the gluten-free diet has helped him considerably. Except now, whenever he eats gluten, he gets really sick as if he has celiacs disease. I'm concerned that going gluten-free can increase sensitivity. I suggest this diet for people to try if they have many health problems. Doctors say you should try it 2-3 weeks and see if it makes you feel better, if it helps continue it. I'm concerned with my 19 yr old daughter and knowing her pasts symptoms, that she should be on the diet. She says that she is afraid if she starts it, it will make her sensitive, like her step-dad. I don't have an argument for that,(we don't have health insurance because of another lengthy issue), so I'm interested in other people's experiences with it. Thanks.

beachbirdie Contributor

I'm about two months gluten free (with the exception of three or 4 mis-steps) and I'm noticing I am more reactive than I thought I'd be.

I was eating bread and all kinds of glutenous stuff and not feeling too badly, maybe some bloating and a little tenderness once in a while.

Now, if I get a little unexpected gluten I start hurting in a few hours, and hurt for a week.

nvsmom Community Regular

I seem to be more sensitive now too... I think. It could be that I'm not used to the discomfort anymore but I don't think that's it entirely.

I ate out a few days ago, and ordered gluten-free from a gluten-free menu and something got me, I have no idea what. I was shocked at how obvious my reaction was with the belly ache, bloat and migraine... Quite disappointing.

LauraB0927 Apprentice

I never had GI symptoms and like you was diagnosed almost by accident. Now after only several months of eating gluten free I've found that I'm extremely sensitive - I could eat 3 slices of pizza and a bowl of pasta and NOTHING. Now today, I ate gluten free gummy bears but then saw on the package that it was made in a facility that also makes wheat products and not even an hour later my abdomen is rock hard and three times its normal size - fatigue has already set in and now I'm just waiting for my joints to flare up as well. After today I realize that I'm VERY sensitive, more sensitive than I thought. Other people on this forum seem to have the same experiences. I agree with the above comment, now our bodies are just becoming more advanced to let us know when we make a wrong turn....good luck and keep in touch!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

If you have a gluten sensitivity (celiac or intolerant) you will likely become more sensitive (more severe reactions) to even smaller amounts of gluten the longer you are gluten free. This is part of the healing process and your body is supposed to work like this. Here's how it was explained to me: Before gluten-free diet, your body was overwhelmed with the daily load of gluten. Since the gluten was constant, you may have had annoying symptoms off and on or not at all. That is the best your body could muster up. Now that your body is gluten free, it responds in a big way whenever gluten is reintroduced. Like it has been sitting around just waiting for gluten to mess with it.

My son's symptoms have changed (we see more symptoms and more severe) and he is sensitive to even the smallest amount (like from cross contamination) after a year of being gluten free. His symptoms are way worse than anything we experienced before he was diagnosed.

If you are not actually sensitive to gluten, going gluten-free will not MAKE you more sensitive. It just doesn't work like that. We have non-celiac members in our family who are mostly gluten free (except when they eat out) and there has been no change for them. If you are undiagnosed and find that after you start the gluten-free diet you become more sensitive or develop new symptoms when gluten is accidently ingested, YOU WERE ALREADY GLUTEN-SENSITIVE and you just didn't know it. Your reaction to the diet is your body telling you YOU SHOULD NOT BE EATING GLUTEN ANYWAY.

Cara

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,041
    • Most Online (within 30 mins)
      7,748

    Vfoley422
    Newest Member
    Vfoley422
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.