Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Peripheral Neuropathy?


AnnieInItaly

Recommended Posts

AnnieInItaly Rookie

This week I am getting the blood work done to see if I am celiac, but I won't be able to see a specialist until mid-November. It would certainly account for all my weird medical issues over the past ten years that doctors haven't been able to explain. But, there is one symptom in particular I want to ask about, as it will be quite a while before I will be able to get in to see the specialist. For the past 8 years I occasionally undergo spells (usually lasting 4-24 hours) where my extremities become weak to the point of temporary paralysis. Doctors haven't been able to figure it out, it is like periodic paralysis but my potassium levels are normal. From what I've read, this could possibly be caused by celiac, right? I've read that peripheral neuropathy can occur, but I'm not sure if this is what I'm experiencing. When it happens, it is often in conjunction with a low blood sugar episode (I have reactive hypoglycemia), and in addition to the loss of ability to move I have trouble talking, my words come out as slurred nonsense sounds. I lose some sensation, but not much, usually I just can't move at all, and I'm exhausted and weak for a day or two after. Is this what peripheral neuropathy is (or something else gluten related), or is this something else?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Wow! Something like that happened to my brother. He couldn't get out of bed for 3 days when he was in his 20s. The doctors said that it was just fatigue, but I haven't been able to believe it.

I suffer from hypoglycemia too. I hope your body will get to obsorbing things better.

DT

frieze Community Regular

This week I am getting the blood work done to see if I am celiac, but I won't be able to see a specialist until mid-November. It would certainly account for all my weird medical issues over the past ten years that doctors haven't been able to explain. But, there is one symptom in particular I want to ask about, as it will be quite a while before I will be able to get in to see the specialist. For the past 8 years I occasionally undergo spells (usually lasting 4-24 hours) where my extremities become weak to the point of temporary paralysis. Doctors haven't been able to figure it out, it is like periodic paralysis but my potassium levels are normal. From what I've read, this could possibly be caused by celiac, right? I've read that peripheral neuropathy can occur, but I'm not sure if this is what I'm experiencing. When it happens, it is often in conjunction with a low blood sugar episode (I have reactive hypoglycemia), and in addition to the loss of ability to move I have trouble talking, my words come out as slurred nonsense sounds. I lose some sensation, but not much, usually I just can't move at all, and I'm exhausted and weak for a day or two after. Is this what peripheral neuropathy is (or something else gluten related), or is this something else?

Thanks!

dont think is PN, sounds more like a seizure of some sort.

AnnieInItaly Rookie

dont think is PN, sounds more like a seizure of some sort.

I've been tested multiple times for seizure disorders, but apparently I am seizure free (even though I have a few family members with seizure disorders). I don't lose consciousness at all, I'm alert enough, I just can't communicate or move much when it happens.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,038
    • Most Online (within 30 mins)
      7,748

    Briannas01
    Newest Member
    Briannas01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.