Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back After Being Gone A While

txplowgirl

By txplowgirl
in Coping with Celiac Disease

Recommended Posts

txplowgirl Enthusiast
txplowgirl
Posted

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

The ole goat lol. I remember you tx tho we didn't talk much. You've really had a lot goin on. Welcome back.

justlisa Apprentice
justlisa
Posted

Hi there!

Sorry you're having so much trouble! I hope you can get some relief for your neck and back...

Tell the Ol' Goat that you know best...it's been proven now...you have to be gluten free... ;)

flowerqueen Community Regular
flowerqueen
Posted

Sorry you are having such a bad time. Can I just ask, when you had a test for Coeliacs disease, was it a blood test or a biopsy? (As the blood tests are not reliable) presumably you were eating gluten in your diet prior to the test also?

Hidy everbody,

Well, i'm back, i've been gone awhile, a liitle over a year and I came back because i'

m having some issues and i'm alittle ashamed because I knew better.

Oh man, lets see if I can get all yall up to speed.

Was a truck driver battling Fibromyalgia, Chronic fatigue and supersensitive gluten issues. Well, it got down to where a little over a year ago I had to come off the truck due to back problems as well as the Fibro and found out that I have not 1, not 2, not 3 but 6 bulging discs in my neck and back. Can anyone say OWWW? Lol

3 in my neck with a bone spur and 3 in my lower back. Been seeing a Chiropractor, also I have an appointment in a couple of weeks with a nuerologist. See what he has to say and discuss whether or not if I should try for disability and blah, blah blah, on that.

Made the mistake of having the Celiac test due to family bugging me and of course it was negative which I totally expected but shouldn't have done because you can guess what happened next.

Yep, went back on the gluten and here I am right back where I was where I started. Have gained back 25 lbs of the 50 I lost, back on blood pressure meds, back on anti depressants, anemic again and feeling like crap on top of everything else.

So, gearing up to do this again and I plan on being gluten free from now on no matter what anybody says. So, I came back for the great moral support.

To help with this I ordered the Nutribullet to help get me started, (was wondering if anyone here has tried it?) Now, just gonna wait until it comes in, doing research and pysching myself up to do this.

Oh, and I got married to the ole Goat about 3 months ago. (Ducking behind the couch). I'm a glutton for punishment ain't I? :P

So, how's everyone doing? :D

1desperateladysaved Proficient
1desperateladysaved
Posted

There is nothing like desperation to help keep one in line. Sorry about the pressure that was on you. I am experiecing some of that, but it is starting to change. I feel better enough for others to notice since I have been gluten free 6 months and grain free 4.

You have some rather observeable problems. I can't wait to hear about them resolving.

Diana

psawyer Proficient
psawyer
Posted

Welcome back, Vicky!

kareng Grand Master
kareng
Posted

Hey Vicky! I guess it wasn't a gluten-free wedding cake? :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Hey Girl! yeehaw!

I wondered where you went off to. I missed you!

Congrats to you and the old goat. :)

Glad to see you back on the gluten-free wagon and back on the forum.

...and you know what you need to do--it's just like riding a bike (or in your case, driving a big truck)

Cheers, IH

jerseyangel Proficient
jerseyangel
Posted

Welcome back!

txplowgirl Enthusiast
txplowgirl
Posted
  • Author

Thanks everyone for the welcomes. I appreciate it.

Yes, I ate for gluten a good 2 months before the bloodtests. 2 cheeseburgers a day for 2 months plus Macaronie and cheese. The more gluteny the better and it didn't work. Just felt like crap and visiting the bathroom a lot.

And no, it wasn't a gluten free cake, but knowing how I would react I restricted the gluten stuff a couple days before and for the big day so wouldn't have a problem.

Anyway, back here to do the research again and get back on the bandwagon so to speak. It'll be easier to do this time I hope because I know to expect the withdrawals and cravings and everything that goes with it.

I've been spending a lot of my time the last year on a preparedness site. Getting prepared to try to live through an economical colapse, or even maybe the grid going down. Very interesting people.

Anyway good to be back and looking forward to a better life. So tired of feeling like crap. Hopefully, once i get my inner self working again my back and Fibro will settle down some also.

kareng Grand Master
kareng
Posted

My neighbor's doc tests his fibro patients for Celiac. But even if they test negative, he has them eat gluten free/lite (take the burger off the bun style gluten-free). He says it really helps the fibro.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,652
    • Most Online (within 30 mins)
      7,748
    beecharmer4
    Newest Member
    beecharmer4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.