Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Choices We Make

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

I am just thinking about the choices of people around us that think our diet is "too inconvienient" for them to save them from their health woes.

Gluten free or extreme fatigue?

Cook it your self or diarrhea?

Eat at home or drive home dizzy?

Explain to friends, or eat it and grim?

Gluten free life or infertility?

Cooking or itching with rashes?

No gluten or acne?

No gluten or shortness of breath?

I hope to add to this later if you all don't finish it before I get back.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I am not quite sure what you are getting at here, but I think you are trying to convince yourself--or someone else--that you need to be gluten-free and you keep caving in to others who insist you do not? I notice that in many threads and posts that you continue to worry about "defending" your gluten free life. It causes you great stress, hon. :(

What do you care what others think?

If you have celiac or NCGI, this is non-negotiable.

I do not labor over these choices or engage in debates or try to convince anyone of my need to be gluten-free. No one questions my food choices. It is what it is. Period.

I have celiac and I do not let anyone dictate what I do to stay healthy.

mushroom Proficient
mushroom
Posted

I took her post the other way, IH, that the desperate lady is saved by having made these decisions, not that she was arguing with herself or others. :)

IrishHeart Veteran
IrishHeart
Posted

I hope so, Shroomie---because I know Diana struggles with this mightily and I feel for her deeply ---as she has to defend herself constantly to family members.

I guess the subtitle (to gluten or nor to gluten?) suggested a continuing dilemma to me.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I am not quite sure what you are getting at here, but I think you are trying to convince yourself--or someone else--that you need to be gluten-free and you keep caving in to others who insist you do not? I notice that in many threads and posts that you continue to worry about "defending" your gluten free life. It causes you great stress, hon. :(

What do you care what others think?

If you have celiac or NCGI, this is non-negotiable.

I do not labor over these choices or engage in debates or try to convince anyone of my need to be gluten-free. No one questions my food choices. It is what it is. Period.

I have celiac and I do not let anyone dictate what I do to stay healthy.

Thanks,

Where I was coming from is that I have been wondering at the choices others around me are making. I would rather not eat gluten free; it is too much trouble they say. Meanwhile, they suffer, suffer, suffer as I look on in wonder.

I am still working on the post and will try to make it clearer.

kareng Grand Master
kareng
Posted

"Where I was coming from is that I have been wondering at the choices others around me are making. I would rather not eat gluten free; it is too much trouble they say. Meanwhile, they suffer, suffer, suffer as I look on in wonder.

I am still working on the post and will try to make it clearer."

I think many people don't see that gluten could be causing their issues. If most doctors don't see the really obvious GI style Celiacs, how would regular folks see the connection?

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I took her post the other way, IH, that the desperate lady is saved by having made these decisions, not that she was arguing with herself or others. :)

Yes, that is where I am at. I will think of a bunch more things that people "want to have" more than gluten free diet. I can't understand them, if they only heard themself and understood their choices. I am not going to argue too much about it with them. I am going to take some time to be astounded. It would be humourous if it weren't so sad.

As for my family they are not hard toward it anymore. One maybe a little hard yet. However, the one hardest against it is afraid to go out to eat! Things are working out.

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

As for my family they are not hard toward it anymore. One maybe a little hard yet. However, the one hardest against it is afraid to go out to eat! Things are working out.

Diana

I am glad things are getting easier for you! I know you were worrying about Thanksgiving, etc. coming up.

I agree with Karen, though. I have been there/done that with my own family and friends, too--and it is difficult to get others to see that gluten may be a problem for them as well.

You know what though? I decided it's a conclusion they have to arrive at themselves. If they get as sick as we did, then maybe they will consider it. I do not wish that on any of them, but sometimes that's what will get their attention.

nvsmom Community Regular
nvsmom
Posted

I went decades untreated because I thought how I felt was normal for me. I thought most people had complaints too. I think many people don't change because "they have been getting along just fine so far"....At least that is how I thought.

Change is hard. Harder for some than others.

shadowicewolf Proficient
shadowicewolf
Posted

Its one of those things that is out of left field. When i was sick, I never thought it would be gluten that was assisting it (allong with a faulty gallbalder). I was the type to eat all sorts of bready stuffs be it cookies to cake. Yet, looking back, i don't see how i was living with it. My knees were really bad, i was achey all the time, and let us not mention the random "D" that would be so often i would have to take pepto to go anywhere.

Victoria6102 Contributor
Victoria6102
Posted

For some of us, it's not as simple, IrishHeart. I constantly have to defend myself. No choice. Either, explain to people or they will mess with my food, put their hands in my chip bag , drink from my cup. I have to explain and when they don't believe me or don't understand, I have to defend myself. Otherwise, I'll end up with no drink, no food, and no friends. Lol!

IrishHeart Veteran
IrishHeart
Posted

For some of us, it's not as simple, IrishHeart. I constantly have to defend myself. No choice. Either, explain to people or they will mess with my food, put their hands in my chip bag , drink from my cup. I have to explain and when they don't believe me or don't understand, I have to defend myself. Otherwise, I'll end up with no drink, no food, and no friends. Lol!

I know, hon, you have told us many times that your friends are unkind to you. I am sorry your friends continue to behave this way. (still think maybe you need a better group of friends)

But the OP--whom I was addressing--is a grown woman with a large family and honestly, if we are to live with this disease for the rest of our lives, we have to assert ourselves and be safe at all times.

That's just my opinion. Feel free to disregard it. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    3. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    4. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,171
    • Most Online (within 30 mins)
      7,748
    Kristy Roberts
    Newest Member
    Kristy Roberts
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.