Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Deal With The Anger Of Accidental Glutening?


AandGsmomma

Recommended Posts

AandGsmomma Apprentice

I have had the worst time with accidental glutening. Im feeling so sick and now Im feeling overwhelmed with anger. Im feeling like gluten is hiden everywhere and its out to get me. I know this is not a logical thought but I can help it. How do you cope with getting glutened from things that should not have gluten in them?

Im also feeling resentful when I see other people eating some of my favorite pre celiac foods. Is this a normal phase of coping?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

I brush it off and keep on going. Whats the point of getting angery?

SMDBill Apprentice

I was angry when I got glutened, but I'm only "mostly sure" where it happened so I can't even point a finger and say "That was it!" It's tough because you're sick and may not even know the source (but you sure know the cause!).

For the other part, I think of people who may be without sight or missing a limb and how they must feel when they see me moving about and appearing perfectly normal to them. I try to keep it real and always understand that, no matter how bad I may think it is, or how badly I wish I could have that favorite food, if this is my fate then I am very fortunate to have been handed something I can manage. Feeling how you feel is very natural and it takes a lot of effort to be tempted constantly with what amounts to poison for our systems.

gatita Enthusiast

I do understand you!!!!!

I've had a roller coaster of a time dealing with this for five months now, and mostly have accepted that this is just one of life's tests. But for for some reason, this week in particular I've been wanting to rant "When will this freakin' diarrhea end?!!!!" Sigh.

It's okay to vent your frustration now and then. Of course, after that, we just have to pick up and keep going.

How I deal with the anger is I gripe and complain to my boyfriend for awhile and then remind myself that my doc was first looking for ovarian cancer, and thank God he found this instead.

AVR1962 Collaborator

I so get it! I too would see people eating gluten and not understand why it was effecting me and not them, ugh! But you know once you get used to the diet, get used to asking waiters and waitresses all the needed questions the diet becomes part of your evry day life and that resentment kind of goes away. We learn there are so many more foods to eat, much healthier foods infact! I normally don't even eat gluten-free breads or cakes. The other day I made some rolls and had a half of one and reaized while eating it I really don't miss bread in my diet at all!!

Accidentally glutening? We have all done it. All I can say is learn and forgive yourself rather than kick yourself. I normally go to pretty much liquids to pass it as quickly as possible. I also take activated charcoal tabs which I have found help a great deal for me!

rosetapper23 Explorer

When I read posts like yours from someone who has just adopted a gluten-free diet, I'm reminded of how oftentimes it is assumed that hidden gluten was the culprit when, in fact, your gut is still in the healing stage and may be reacting to other foods because it is mis-identifying those foods as containing gluten. I have seen countless posts where newbies have complained of how a gluten-free frozen meal or a gluten-free bread made them feel glutened and how they had fired off letters of complaint....but, really, when you first start out, your body can be very confused and may react negatively to many foods. If you're sure that gluten was the culprit, then have your angry moment and move on; however, if you constantly feel as though you've encounted "hidden" gluten where there should not have been, you may consider looking into whether or not you are currently sensitive to other foods. Once your immune system settles down, you can reintroduce any "trouble" foods...and it's quite possible that you'll be able to tolerate them. Foods to consider are dairy, soy, nightshade vegetables, other grains (even rice), and the gums in gluten-free products.

I hope you can get to the bottom of your hidden-gluten mystery and that you feel better soon....

AandGsmomma Apprentice

Thank you! Its so great to know that other people understand what Im going through.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Googles Community Regular

I find my problem is that I tend to have a problem of being on an emotional rollar coaster when I get glutened. It makes it harder for me to deal with things like the physical reaction to getting glutened. When I get glutened I can end up crying at the drop of a hat. It actually hits before the digestsive problems do. It is learning how to deal with the stress and anger that is important. For me it is easier if I realize that the anger is being triggered by the glutening. That makes me reevaluate whether my anger is justified and be able to respond in a more reasonable way.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,752
    • Most Online (within 30 mins)
      7,748

    Sue Gaertig
    Newest Member
    Sue Gaertig
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      If a Celiac person is successful in following a gluten-free diet, they can go into remission.   They may not have a reaction to gluten without a precipitating event like an injury or infection or even emotional or mental stress.   Following a strict gluten-free diet at home, then indulging in gluten containing products abroad without a reaction can be explained by this remission.  
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Beverage
      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.