Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Bring Your Own Food!


bartfull

Recommended Posts

bartfull Rising Star

I have been reading about Thanksgiving and noticed that quite a few of us were glutened. I see it all the time here, someone goes to a friend or relative's house and tries to eat gluten-free, but ends up getting glutened, even when the host/hostess really tries to make a gluten-free meal.

WE NEED TO BRING OUR OWN FOOD!

I don't care how embarrassed we feel. (We shouldn't, by the way.) I don't care how many rude comments we get. (They are just that - rude.) People with allergies need to avoid their allergens. People with diabetes need to avoid sugar. People with back problems need to avoid heavy lifting. People with bad hips or knees need to avoid stairs. People who get sun poisoning need to avoid the sun.

So why in the world should we feel strange for needing to avoid gluten? We have a serious disease, and we need to do everything we can to protect our health.

WE NEED TO BRING OUR OWN FOOD!

If it makes you feel conspicuous, you need to gather your strength and put your foot down. This is the way it is. Practice saying it - "This is the way it is. Subject closed." They may talk about you behind your back, but if they do, be assured, people who would do that are ALREADY talking about you behind your back over any number of different things. SO WHAT? Are we supposed to risk our health on the off chance that they will STOP talking behind our backs? Are THEY worth it?

The people who know and love us will understand. If they don't know and love us, we can live without them! In the case of uncaring relatives, hey, we ALL have relatives we wish we didn't, but we put up with them. So put your foot down, bring your own food, put up with the funny looks, but tell them, "This is the way it is - subject closed." They'll either get over it, or they will have the great pleasure of talking behind your back, but it shouldn't affect YOU. YOU are taking care of your health.

So remember:

WE NEED TO BRING OUR OWN FOOD! "This is the way it is. Subject closed."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Amen!

GottaSki Mentor

Well said and absolutely correct!

My life simplified when my intolerances increased - it was no longer a choice to try to eat gluten-free in other's homes - once the option was gone it really was a big relief. I now know how to let my host/hostess know that I'll bring my own for all situations.

There is no reason removing gluten is not enough of a reason to BYO if it reduces stress in your life.

squirmingitch Veteran

Well said bartful, well said! A big round of applause for that!

Razzle Dazzle Brazell Enthusiast

Yep I had a fabulous Thanksgiving and thought it would be awkward or appear rude bringing my own food but everyone acted understanding about it. It was great! You are 100% correct because it is our own bodies, we are the ones that are responsible for our actions. They dont have our bodies and dont know what we go through or have the medical knowledge to address it. I am pretty sure people in my family think I am strange but idc they love me and I wont hold their ignorance against them.

Honestly, I think it sometimes makes other people feel better about themselves for their own lack of responsibility to paint us as extremists. I think some of it is jealousy for the people around me, because I lost a lot of weight. When they are dieting it is like, "oh US dieters". I always say that I am not dieting, as long as I dont eat gluten or corn, I lose weight. I just love to rub it in and enforce the fact that i have food sensitivities im not trying to get skinny or just cut out something that makes me have a little tummy ache. Grr

zebra Newbie

Thank you for posting that.

Celiac Mindwarp Community Regular

Yes. Thanks. Always it is :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



L.J. Rookie

Oh Bartful! You said a mouthful of truth in what you said! We *must* bring our own food to survive! Great Mantra for us all to remember! Thank you! :) :)

How are you? Last time I heard, you were having a hard time :ph34r: I hope you are feeling better??? (See emoticon with my fingers crossed hoping you are feeling better!) :D

1desperateladysaved Proficient

Point needed. I learned that eating my own was "My preference" yesterday. I don't consider it a preference, but a necessity.

ButterflyChaser Enthusiast

Great post! I find it hard because mine is not celiac disease, but I do react to several substances (and several doctors agree with that). So people don't really take that seriously.

I think some of it is jealousy for the people around me, because I lost a lot of weight. When they are dieting it is like, "oh US dieters". I always say that I am not dieting, as long as I dont eat gluten or corn, I lose weight. I just love to rub it in and enforce the fact that i have food sensitivities im not trying to get skinny or just cut out something that makes me have a little tummy ache. Grr

Amen!!!! I get that all the time. "Oh, you're one of THOSE non-starchy people..." Well, uh, thanks for reminding me how much I miss baking since my doctor decided I have to be grain-free at least for a while. Or would you rather me give you an in-depth description of what will happen in your toilet bowl if I eat outside my doctor's plans? I think the rude people are only those who feel that out taking care of ourselves somehow "judges" their *not* taking care of their eating habits.

But I am getting better, thanks to this board: when a random date asked me why I refused to share his chocolate, I laughingly explained that soy lechitin makes me so hyper that scream at people (sad, but true), and I'd rather avoid that on a first date... :P

myquest7846 Newbie

And truly don't you think it takes a weight off of the host or hostess of the dinner that they don't have to try to make something "special" just for us ?

julissa Explorer

I totally agree here. I recently started gluten-free last month and am noticing a huge improvement in my life. I aso just found this board, it is such a great resource. I will bring my own food when going places, and won't apologize for it. it's my health and if I don't take charge, I will suffer. there is no choice

flagbabyds Collaborator

The 2 things I learned when I was diagnosed (at 20 months old), so really the 2 things my mom taught me when I was young are

1. never be too nice

2. always carry rice cakes

I'm 22 now, I still have a bag of ricecakes in every bag I have, along with a protein bar and such for the moments where I don't feel comfortable eating what is being served.

mushroom Proficient

The only situation where the bring your own food doesn't work :(:angry: is where you have dinners with special couples (just them alone, not a whole tableful of people) and we used to do this often because hubs can't hear from one end of the table to the other :) . It's rather hard when they are inviting just you!! to dinner and wanting to show off their cooking, and you say WE'll bring our own :lol:

bartfull Rising Star

Mushroom, I would STILL bring my own! I would tell these people that I would really enjoy breaking bread with them, having great conversation over a meal, and spending some time with them. Then I would tell them how sorry I was that I couldn't enjoy their cooking which always smells so good, but they THEY are more important to me than food, and in order to really enjoy their company without worrying about my health, it would be best if I brought my own.

But that's just me.

Celiac Mindwarp Community Regular

Yep, I'd bring my own or invite them to mine :)

Tried an alternative on Saturday, Mr Mindwarp cooked all my food in someone elses kitchen. Guess what?

Always take your own :o

mushroom Proficient

What I was meaning is, we are both gluten intolerant, so there is no point in trying to cook for either of us, so it becomes more of a one-way street :D

Celiac Mindwarp Community Regular

I'm learning to love being host :)

My cunning plan at Christmas is to get everyone to ours for my 1st gluten-free one.

I know what you mean though, would be nice to accept the odd invitation. Ho hum. Maybe time to contact my local support group for new gluten-free friends. Mr Mindwarp is our baker and pulled off gluten-free eclairs a few weeks back. That's gotta make us popular, right?

CaliSparrow Collaborator

I'm so looking forward to this experience, ha ha!

Almost a few weeks in since Thanksgiving (and only two weeks in prior to that). I had no idea the stigma but will be finding out shortly.

Thanks for the veteran post!

Cali

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    2. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.