Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious...

Skittles

By Skittles
in Coping with Celiac Disease

Recommended Posts

Skittles Enthusiast
Skittles
Posted

How long do your symptoms last when you are glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

For sure until I stop eating whatever got me. It took weeks before I figured out the buckwheat being cross contiminated.

Adalaide Mentor
Adalaide
Posted

Four to six weeks. It is positively awful, it's like being drunk for a month or more. I'm slurring words, bumping into things, losing my balance, can't carry on a conversation because I forget I was having one (sometimes mid sentence) and have the memory of a goldfish. That is without the pain and exhaustion. I think I'd rather be on the toilet for 6 weeks tyvm.

NorthernElf Enthusiast
NorthernElf
Posted

Somewhere in the area of a week - depending on how much gluten I ate - ie. cross contamination versus having a meal where the waitstaff erroneously told me it was gluten-free, the latter taking longer to get over.

For me, it also depends on what I do. My best plan is to eat very light, very safe (nothing that coud have any gluten), drink lots of water (lots), and rest. If I am feeling better, physical activity seems to help get me back on track. When I am "down" I also avoid all dairy and soy and graze because it almost seems to affect me like everything has gluten in it - my stomach gets pretty touchy.

srall Contributor
srall
Posted

Most of the time it's just a few days. Two times it's been about 3 weeks of pain pain pain. I think in those cases it was cumulative gluten over the course of days. Both times I was on trips out of the house.

gatita Enthusiast
gatita
Posted

Four to seven days, depending on the amount. When I did a mini-gluten challenge (small amount of pasta at one meal), it was more than a week.

bartfull Rising Star
bartfull
Posted

Gut symptoms: two or three days.

Psoriasis: two or three weeks

Jaw pain: Three to six weeks

Brain fog: The way I've been the past couple of days, I think that has moved in permantently! :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

Brain fog: The way I've been the past couple of days, I think that has moved in permantently! :lol:

Are you sure that you aren't confusing your glutening symptoms with plain old.... well old age? :P

bartfull Rising Star
bartfull
Posted

Are you sure that you aren't confusing your glutening symptoms with plain old.... well old age? :P

Old? ME?! Well, yeah, I've got that. Or, I had that but I seem to have misplaced it. Um, what were we talking about anyway? :blink::lol:

Adalaide Mentor
Adalaide
Posted

Old? ME?! Well, yeah, I've got that. Or, I had that but I seem to have misplaced it. Um, what were we talking about anyway? :blink::lol:

I'm not sure I remember. One of those young whipper-snappers will be along shortly to get us back on track. :D (There is something magical about the day your child becomes an adult that just pushes you off that age cliff.)

CaliSparrow Collaborator
CaliSparrow
Posted

Somewhere in the area of a week - depending on how much gluten I ate - ie. cross contamination versus having a meal where the waitstaff erroneously told me it was gluten-free, the latter taking longer to get over.

For me, it also depends on what I do. My best plan is to eat very light, very safe (nothing that coud have any gluten), drink lots of water (lots), and rest. If I am feeling better, physical activity seems to help get me back on track. When I am "down" I also avoid all dairy and soy and graze because it almost seems to affect me like everything has gluten in it - my stomach gets pretty touchy.

Ditto so far. I'm a newbie with little experience but Northern Elf's response rings true for me. I'm on day four after being glutened in a restaurant eating gluten-free food. Although it started out pretty intense, this afternoon, my outlook on life became better which is one of the first signs of "the road back". There are symptoms going down the road and symptoms coming back. Today, I literally had no appetite and when I drank hot water with bitters, lemon & ginger syrup, it comforted me. Here is something I found and it seems to help on those days when my body is saying, "uh, no. No. Please don't put that in my stomach...":

Open Original Shared Link

Skittles Enthusiast
Skittles
Posted
  • Author

Thanks for the link CaliSparrow :)

CaliSparrow Collaborator
CaliSparrow
Posted

:-)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    2. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,876
    • Most Online (within 30 mins)
      7,748
    Karin Majdecki
    Newest Member
    Karin Majdecki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.