Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Comprehensive Antibody Profile


ncdave

Recommended Posts

ncdave Apprentice

Went to a new GI today, was not to impressed. They ordered a celiac disease comprehensive antibody profile to be done an schedualed me for a endoyscopy in a month. I tried to explane I had read on the university of Maryland celiac disease research center website that I needed to be eating gluten for some time before a blood test would be accurate. They no listen !!! Maby I'm missing something, would that blood test help? Or should I change docs?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hmm, it would be interesting to know what their thinking is. Sometimes a follow up test every 6 months for antibodies is suggested. To make sure antibodies are going down from the initial diagnosis levels. If you are feeling better I suppose that is a good way to satisfy curiosity. There's quite a bit of info on follow-up testing in this article by Peter Green.

https://www.celiac.com/articles/40/1/Initial-Assessment-and-Follow-up-Care-of-Celiac-Patients-by-Peter-Green-MD-summarized-by-Sue-Goldstein/Page1.html

ncdave Apprentice

I"m self diagnosed so there is no initial diagnosis levels. I just went in to try an get some vitiman levels checked, doc said he was a GI an did not do vitiman test. I never mentioned celiac, but I should have never put down my gluten, dairy,soy,corn allergys. For a first visit knowing me for less than 5 min and schedual blood work, endoscopy, ct scan I"ll stick with my first impression an change docs.

ravenwoodglass Mentor

Your regular GP can order the vitamin level checks for you. Have you seen improvement on the diet? If you are still having issues then do find another GI that is more celiac knowledgeable. If you are doing well on the diet and symptoms have resolved then IMHO your regular doctor should be able to handle the vitamin and mineral level checks.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,013
    • Most Online (within 30 mins)
      7,748

    Dragon1
    Newest Member
    Dragon1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.