Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Antibiotics And More...


MarkLevy

Recommended Posts

MarkLevy Newbie

Im 42years old. Have had celiac since birth although I didnt know it until two years ago. Suffered with symptoms all my life. Been on antibitiots more times than I wish to remember. As manyof you I have come to know when I have been glutened as opposed to being sickened by an antibiotic. I can say from expierence and from calling drug manufactures and many one on ones with my pharmacist that the zpak along with cipro and augmentin in generic and non generic form do not contain gluten. I for one when I am glutened I know immediatley as I get extreme rage/anger issues along with a brain fog that I cannot begin to desribe. It happens everytime I am glutened. On a side note I would like to add dont believe (as I dont) everyone and anyone including multiple PHd holding doctors that you cannot get glutened from touch or thru the skin. Excuse the laungage but that is 1000% bulls$#&. I after multiple glutened exposures thru my skin from raw pizza dough and philo dough sheets have become poisioned. I know for a fact there was no other way. And it was not inhaled as you can also get glutened that way. Trust me I know what im talking about. Anyone who has ever walked into a pizza place and walked out feeling like seventeen mac trucks just drove over them (when all you did was walk in the door and spend five minutes looking over a menu) listening to people tell you gluten only gets in your body by ingestion is a nutjob. Sorry but anyone that ever tries to sell me that line of bs I turn my back and leave. I just basically went bankrupt having to sell my restaruant because of these kinds of exposures. philo dough. I touch it bare handed instant glutened. I wear gloves no issue. Flour dust (bakery was in a seperate room in our kitchen) just by inhaling it same thing im done...in bed for seven days comatose and drooling on myself. Sorry I went off on a side note here but I tho it was worth mentioning. I would like to add if anyone out there who is ready to dimiss my symptoms from being glutened by touch or by inhalation (as many docs have and sent me in search of a shrink!!) I have two things to ask you (assuming your also celiacs or gluten sensitive because in my mind if you are not you have no business trying to offer advice you learned from a book or medical journal update) do one of two things. first take some all purpose flour and pour it into a bowl standing over the bowl. Pour it so some flour gets on the counter or even on your skin/arms and a little dust can be seen in the air. Now breathe normally. If you have the amount of sensitivity I do you will become immedialtey sick. Second take an envelope. Lick your finger not the actual envelope and use your wet finger to wet the glue on the envelope and seal it. Again if your anything like me within minutes you will know as u will be sick. Im also gonna add this inhalation and skin contact poisioning recently started with me in the past six months. So in other words I was a injest thru the stomach or mouth kinda celiac before. Now touch and smell gets me too. Once again its be your own advocate and diagnose yourself. None of my doctors believe me. If I didnt get so violently ill I would show them in their doctors offices just what happens to me but I cannot handle another week of being comatose and drooling among all the other symptoms. I always ask them too there thoughts on cocaine. their thoughts on the nicoderm patch or a fentanyl narctoic pain patch. Any of those items enter your body thru the skin or thru the nose (inhalation regarding cocaine) Havving ex lawenforcement in my family as well as myslef being paramedic(besides a chef) I have seen many people and been on many scenes where these items have been in use. We walked into one drug factory after the police raided a cocaine lab and we were called to treat a hurt police officer and we saw all the drug suspects leaving the factory in handcuffs all wearing gloves and masks on their face. Think about that. Why do people manufacturing cocaine care if it gets on therir skin or in their nasal passage in the form of dust...why? because it is a way into their body. Think about the nicorderm patch or a fentanyl patch. I cannot count the number of patients I have treated with those patches on their skin. Now ADD A GLUTEN INGREDIANT TO COCAINE AND TO THOSE PATCHES and tell me that the gluten isnt going to get into their bloodstream. That example usually has doctors whom I pose this question to dismiss it by babbaling something like "all the literature says you must eat gluten to be affected"....believe what you want to believe I know what my body tells me. Sorry I went off on a tnagent here but I think if I can keep someone who is going nuts trying to figure out why they are sickened and they know they havent eaten anything with gluten it was worth it.

Now back to the zpak. theres a few things to remember with antibitoics especially the powerful ones like zpak. Their side effects to people WITHOUT gluten sensitivity or celiacs diesease are 99.9% of the time the same complaints. You usually hear people say "I took this stuff and now have a nuclear war going on inside my stomach" unfortunalty thease kind of antibitoics wreak havoc on our GI systems. The COMMONPLACE is extreme N/V/D. Extreme gas and bloating. Abdomin so rigid and so disteneded you think your gonna explode. I have to say it again. This is the NORM for the vast majority of this. Like all of you im terrified to put anything into my body. I call the drug companies also. Anyone who has ever heard the word Lawyer should know why many times when we call any company and ask about gluten we get the "we cannot guarantee the outsourced ingredients blah blah blah." They know whats in their products there all simply scared to give a definte no for fear of litigation.

I can tell you as we speak Im on day two of a zpak. this time its generic. last time it was brand name. Last time no issues other than my above paragraph about the commonplace...this time the commonplace is starting again and tomorrow by day three it will be brutal. But again my body knows without a doubt it is not gluten. I would list all the symptoms i get from gluten and all the ones i get from zpaks and the like and explain in great detail the differences in each one but isnt this message im writing long enough already (lol) ?

I would mention something else I learned about a year aga and have finally cleared it up which definelty mirrored my gluten exposures but thats a candida infection from years of antibitoic use. Thats what scares me about taking antibiotcs now is that they kill all ur bacteria. the good and the bad. Thats why I take a probiotic everyday and use natural garlic supplement daily also which aids in killing the candida (yeast) infections from excessive antibiotic useage (three times a year is considered excessive) its also very important to avoid sugar of anykind as sugar feeds the yeast infection. I mention this in the hopes I can help someone else not go thru the same frustration as I did because killing the candida infection I had took almost ten months and was not fun.

Sadly so many tings contain gluten. And so many of us just dont have a gluten issue. Many of us have allergieson top of this. I should add many of us feel we are allergic to antibiotics or other medications (narcotic pain medication is usually one of the ones people report as being allergic to when they truely are not) Remember that in a nutshell allergic reactions to antibiotics or other medication or foods USUALLY invlove hives / itching / raised welts on the skin / breathing difficulty....yes thats a small list and I mention it as a reference point. Usually people that take something and get side effects such as N/V/D...gas...bloating..headache is not an allergic reaction. That said always check with ur Doctor if u expierence anything bothersome but as otheres have mentioned unfortuanly somethimes the antibotics are needed and their side effects have to outweigh the infection were on them for in the first place doesnt get worse.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Celiac works in the digestive system. Touching gluten =/= digesting it thus, you cannot get glutened unless you somehow, for some reason, lick the spot effected.. However, inhaling it, goes through the nose, and eventually ends up in the digestive system.

I'm legitly allergic to the medication in a zpack (mainly azithromyicin) so that one is a no go for me, along with penicillian, sulfa/septra. There are other symptoms of an allergic reaction, such as the body feeling like it is on fire for no reason whatsoever. Headaches can be in combo with an allergic reaction.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.