Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free Toddler Had Gluten By Accident Help


Kellyrassy

Recommended Posts

Kellyrassy Newbie

Wednesday my son who has been gluten-free for 7 months was served meatballs at school. Since he has been so gassy, big bloated belly and diarrhea not interested in eating much. Today he seems very lethargic and had the worst rash on his bottom area. He keeps moaning and his eyes look tired. Is this all from the meatballs? How long can i expect this to be going on, the lethargic mood is freaking me out. Help please!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

We are all different. The symptoms you describe can all be related to the accidental gluten exposure. It is possible that he also has a bug.

Personally, I remain very lethargic for several days. Try to get him to drink a good amount of water.

Kellyrassy Newbie

Thanks so much for the feedback!

tarnalberry Community Regular

I would expect it to be gluten from the meatballs - they almost always have breadcrumbs in them.

Kellyrassy Newbie

Thank you, how long does this reaction last typically? A couple days? Weeks? Month??

LFitts Apprentice

I wish I could help but I am nearly in tears tonight because my 9 year old is suffering again tonight and I am so sick of this. We have read every label and prepared everything so carefully. I have no idea what got her this time, no clue. Either a label was wrong or she is just super-sensitive to cross-contamination in our house. I have had it. I am ready to just put the whole family on raw veggies. The first few weeks seemed easy and she was feeling so much better, now she's having a mysterious accidental exposure of some sort every couple of days! When will this get easier???

Kellyrassy Newbie

I am so sorry to hear about your 9 year old, it's so awful to see them suffer especially when you working so hard at a gluten-free lifestyle. How long have you been gluten-free? Could it be at school or something? What are her symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Good Morning Kelly!

Unfortunately there is no set time - for some it passes in hours and others days -- worst case and not common is weeks. It really depends on so many factors -- the meatballs may have tasted yummy so he may have ingested quite a few? As time gluten-free increases - the reactions often become worse to smaller and smaller amounts of gluten -- hence the very real problem of cross contamination that is the bane of our existence.

Welcome LFitts!

So sorry to hear your family is having such a rough time. It really does get better -- as a family you will learn the level of care needed to keep your child healthy and I assure you there are many, many wonderful and tasty gluten-free options -- most of start with whole ingredients. If you haven't had oportunity - take a look at the Newbie 101 thread -- this is filled with great information that will help ease the transition -- I won't lie - the transition is very tough, but as time passes it does get much easier.

First thing to look at in a shared kitchen is cookware, cooking utensils, toaster, cutting board, collender, etc. If these items are being shared for both gluten-free and regular cooking you have a problem. A great way to start is have a second set of cookware/utensils in a bright color so that everyone knows to only use them for gluten-free items.

Hang in there - both of you -- I promise - it does get easier :)

kareng Grand Master

First thing to look at in a shared kitchen is cookware, cooking utensils, toaster, cutting board, collender, etc. If these items are being shared for both gluten-free and regular cooking you have a problem. A great way to start is have a second set of cookware/utensils in a bright color so that everyone knows to only use them for gluten-free items.

Hang in there - both of you -- I promise - it does get easier :)

Also - no sharing PB, butter, Mayo, etc between gluten eaters and non-gluten eaters. Get some colored duct tape and put a big piece on every gluten-free only thing like peanut butter, etc. You can use it on the handles of a colander if you can't find different colored ones. My hub looked al over for a red one for gluten-free as most were white plastic. Before that, I put my red tape on the handles of a white one.

bartfull Rising Star

LFitts, it isn't uncommon for us to show great improvement at first, and then to slide back into being sick. Some of it could be due to other (most likely temporary) intolerances, and some of it could just be the body is still healing. Definitely check for cross contamination, but if you find that there is no chance of it, just give it time. And DO keep a food diary. That way if there are other things that are bothering her such as dairy, corn, or soy (common culprits), you can try eliminating them and see if she improves.

LFitts Apprentice

Also - no sharing PB, butter, Mayo, etc between gluten eaters and non-gluten eaters. Get some colored duct tape and put a big piece on every gluten-free only thing like peanut butter, etc. You can use it on the handles of a colander if you can't find different colored ones. My hub looked al over for a red one for gluten-free as most were white plastic. Before that, I put my red tape on the handles of a white one.

Thanks everyone for the encouraging words. Our daughter was diagnosed in November with celiac, so we're about 5 weeks into her being gluten free. At first it was great, but now she's having severe stomach cramping and other pre-gluten-free problems (itchy rash, feeling blah) about once every 3 days and her symptoms last about half a day. I think that maybe several things in our house are / were contaminated - peanut butter, butter, even yogurt. I don't know -- I am sensing gluten molecules everywhere - making me crazy. I keep wiping down everything. What makes it worse is that I make cakes for people. I'm trying to wrap that up and just finish the ones that I am obligated to do because I feel like every time I turn on the mixer I am filling our house with poison. Certainly all of the joy/fun has left my once lucrative side job.

She is feeling great today and we are eating simply today and being careful, fingers crossed.

GottaSki Mentor

Thanks everyone for the encouraging words. Our daughter was diagnosed in November with celiac, so we're about 5 weeks into her being gluten free. At first it was great, but now she's having severe stomach cramping and other pre-gluten-free problems (itchy rash, feeling blah) about once every 3 days and her symptoms last about half a day. I think that maybe several things in our house are / were contaminated - peanut butter, butter, even yogurt. I don't know -- I am sensing gluten molecules everywhere - making me crazy. I keep wiping down everything. What makes it worse is that I make cakes for people. I'm trying to wrap that up and just finish the ones that I am obligated to do because I feel like every time I turn on the mixer I am filling our house with poison. Certainly all of the joy/fun has left my once lucrative side job.

She is feeling great today and we are eating simply today and being careful, fingers crossed.

Might want to try replacing your All Purpose Flour with a gluten-free version -- I use all my old cake recipes with Bob's Red Mill -- others don't care for BRM, but like Pamela's or others. Gluten eaters eat my cakes all the time and have no idea it is gluten-free until I tell them.

kareng Grand Master

Can you mix with the flour in an enclosed small space away from the kitchen? If not , just remember that it can take at least 24 for the flour floating in the air to settle. That means, anything sitting on the counters, like a water cup or a bowl of fruit, could have a layer of flour.

Takala Enthusiast

Hey, LFitts, hang in there. Paper towels, paper towels, paper towels ! You may, in the near future, be making yummy gluten free cakes, with your new, dedicated gluten free mixer and baking pans. There is this demand, you know, especially for "mixed" families and special occasions. Plus your daughter might just be reacting to something like soy flour - OMG, the first time I had a major hit of that stuff, I had eaten a bunch of cookies after a long, cookieless drought, and it nearly knocked me out flat. Talk about classic conditioning and motivation, I still shudder when I see that brand in the stores and think "No Cookie" and head over to the gelato in the frozen case aisle. :P

Celiac Mindwarp Community Regular

It looks like you may get to be your neighborhood gluten-free baker then! It takes some practice but many people actually prefer it. My husband even made eclairs recently ( we are in the UK and just substitute Doves Farm gluten-free flours).

I hope you track down what is affecting your daughter. I did well for a couple of months, then got hit 5.times in 6 weeks. We are a mixed house, but only bake gluten-free now. We got better at cleaning up, use lots of kitchen paper now. I am also eating more completely whole food and so nothing processed.

It takes time to work it out, but you will get there.

Good luck

GretaJane Newbie

You need to stop baking with the gluten containing flours. The dust gets everywhere. Kids touch everything and put their fingers in their mouths or eat something without washing their hands. i'm sorry for your loss of baking as you know it. Good luck!!! Its long learning process that your child inevitably will have to suffer through. I've made so many mistakes that leave me crying to have hurt my child.

GFinDC Veteran

Making gluten-free cakes is easy. You can get Betty Crocker gluten-free cake mixes at some grocery stores. The yellow cake mix was little gritty to me so I used to add a banana to it. It does have potato starch in it so it you are avoiding nightshades they don't work.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.