Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity - Hyperactive Behaviour & Bladder Problems


kquigley

Recommended Posts

kquigley Newbie

My 4 year old daughter has been having constipation problems for a few years now, which has lead her to have issues with her bladder. She wets herself almost on a daily basis, sometimes it may only be a small leakage, other times she fully wets herself. I have the constipation under control but the bladder issues continue. She was fully toilet trained for around 8 months before the bladder problems began.

She also has very hyperactive behaviour, both in and out of school. She can be fine and calm one minute then its like something switches and she gets really hyper, which is sometimes hard to control, her teacher in school has complained a number of times the last few weeks about her. Her behaviour can be very impulsive and she does things that surprise me, it can be very unpredictable what she does next.

I have celiac disease, so we had blood tests done on her but they were negative. I’m maybe thinking she may have gluten sensitivity.

Does anyone have any experience of bladder/hyperactive behaviour with a gluten sensitive child? Did cutting gluten out help with symptoms?

Many thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

do you have a copy of her test results? what docs call normal isn't always..

load her up and test again....or take her gluten free, but then testing would req a challenge. and it seems that public schools "need" that paper work to help maintain gluten free....

1desperateladysaved Proficient

I am going to watch this hoping to hear more. My bladder would be irratated with gluten for sure. For hyperactivity make sure that she gets enough sleep. I have noticed that children act this way when they are tired, even if they are normal kids. Also, keep junk food out of her diet. "The Feingold Diet for Hyperactive Children" is a plan my mother used to help my hyperactive brother. It brought his struggles relief.

Going gluten free brought peace to my bladder.

I wish you and your daughter the best.

kareng Grand Master

I'm asuming they have tested her for UTIs, Bladder infections, bladder injury or malformations? Bladder muscle control? Etc. I would hate for her to have a physical problem that isn't being diagnosed because they want to blame "gluten".

kquigley Newbie

She has been checked for uti & she had had an ultrasound on her bladder & kidneys which were normal. We have tried cutting out certain drinks, doing regular reminders, making sure she drinks plenty of fluids. I have been taking her to an osteopath every week to try helping. The gluten connection is just another thing I'm trying to rule out as myself & a few family members have it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.