Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Gene Test

mamamonkey

Recommended Posts

mamamonkey Rookie
mamamonkey
Posted

Has anyone done the genetic testing through Enterolab? My insurance company and I are going round and round and round about the genetic testing that my GI doc ordered. The Enterolab price isn't bad, so I am considering going that route if I can't get anything done with the insurance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

Has anyone done the genetic testing through Enterolab? My insurance company and I are going round and round and round about the genetic testing that my GI doc ordered. The Enterolab price isn't bad, so I am considering going that route if I can't get anything done with the insurance.

Before you get the testing, consider what, if any, difference it will make in you choices...
mamamonkey Rookie
mamamonkey
Posted
  • Author

It won't make any difference in my choices. I will still be gluten free for the rest of my life. :)

I want to know b/c I have a child and no one in my family has ever been dx with celiac. I also want to know b/c then I can encourage them to be tested for celiac too (my GI thinks my mom should be tested since she has osteoporosis and had autoimmune hyperthyroidism). This is purely for informational purposes. Not to guide any treatment decisions.

frieze Community Regular
frieze
Posted

It won't make any difference in my choices. I will still be gluten free for the rest of my life. :)

I want to know b/c I have a child and no one in my family has ever been dx with celiac. I also want to know b/c then I can encourage them to be tested for celiac too (my GI thinks my mom should be tested since she has osteoporosis and had autoimmune hyperthyroidism). This is purely for informational purposes. Not to guide any treatment decisions.

are you a biopsy proven celiac? If you are, and your genes comeback negative....wouldn't be helpful. In the usa, they generally only test for two, in europe they test for more than that.
kvanrens1 Explorer
kvanrens1
Posted

We have had the gene testing for our daughter through Enterolab. It was helpful for us to know that she does not have the main celiac genes and fits with her negative celiac tests. Her official diagnosis is non celiac gluten intolerance.

The test is a quick swab of the inside of the cheek and not invasive. Enterolab does not provide subunit info. Our daughter is DQ7 and DQ9. Some research indicates that DQ7.5 may be a celiac gene but we did not get that level of information from Enterolab.

gatita Enthusiast
gatita
Posted

DQ9 is also now being linked to celiac: Open Original Shared Link

And: Open Original Shared Link

Here's the plain English version: Open Original Shared Link

To the OP, I believe Enterolab's gene test is not as in-depth (ie. sub groups like DQ 6.3) as some of the more costly ones, but it does test for the basic celiac genes. Fine has this theory that some other genes point to non-celiac gluten sensitivity, but most experts say there is no test for that yet.

mamamonkey Rookie
mamamonkey
Posted
  • Author

are you a biopsy proven celiac? If you are, and your genes comeback negative....wouldn't be helpful. In the usa, they generally only test for two, in europe they test for more than that.

EGD and biopsy were done at 5/6 months mostly gluten free (meaning the occasional cheat and not paying any attention to CC). Biopsy showed interstitial lymphocytic infiltration which was nonspecific, but could indicate partially treated celiac. This combined with my gluten-free diet response is what led the GI to dx celiac. So I guess so, sort of??

GI doc has an appt to do a peer to peer review for the insurance. I doubt they are going to reverse their decision. Discussing with DH whether or not to do the testing through Enterolab.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748
    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.