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Hey! Thanks and yes of course I’m posting from England. Thanks for the info 😊my count has been up and down for over a year and my platelets are slightly low too but have actually just increased again.

What is the normal range for your TTG IgA test?  The units are not standardized so they can vary from lab to lab. The normal range is usually listed as <# (less than a number), so anything less than that number is considered negative.  TTG IgA results should never be presented as 0 U/mL because this type of test has a lower limit of detection - i.e. something might be there but the test can’t see it that low.  I can get more technical if you want🙂.  

Hi, a query about testing. Background: I have existing diagnosis of pernicious anaemia (b12 deficiency) autoimmune condition. Diagnosed 5 years ago.  Symptoms for 10 years. Initially got better with b12 shots (for like a month or so) but still kicking around. So query Celiac and other clustered autoimmune conditions to PA. If celaic it would maybe be more silent as don't get vomiting, diarrhea or weight loss. Symptoms = chronic fatigue. Muscular&skeletal pain. Hot hands and feet (worse an night), nausea after eating, tiredness after consuming food like bread and pasta.  Celiac screen came back (private blood test): TTG IgA 0.30 U/ml.  My main question is, is it worth getting total iga for further testing ? I have been advised that 'low' would only count as 0 U/ml for TTG IgA not .3.  Oh and did the genetic testing and have the gene thing. Was also critically low for folate levels in recent tests  All other tests showed no likelihood of other autoimmune conditions like thyroid (luckily). Anyhow, any thoughts welcome but be kind, just trying to get well l.

It looks like they are naturally gluten-free, but not labeled gluten-free. It's unlikely that they contain any gluten, but not impossible. This is the one I looked at: https://www.preservision.com/areds-2-formula-minigels/

Welcome to the gluten-free journey—it sounds like you’ve been through a lot, but it’s great to hear you’re feeling better since cutting out gluten! The struggle to get clear answers can be so frustrating, especially when tests come back negative but your body is clearly reacting. It’s smart to hold off on retesting for celiac until you’ve reintroduced gluten (if you choose to), but in the meantime, listening to how your body responds is key. The overlap with perimenopause and gut issues is no joke—hormones really do throw everything into chaos! It’s awesome that you’re working with a kinesiologist and focusing on whole foods; that’s helped so many of us here too. And yes, eating out is a minefield. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: