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Gemini

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Everything posted by Gemini

  1. Gemini
    Nuts.com is one of the best suppliers of really good nuts that are certified gluten-free. I will add that Planters does a very good job at making sure they are not cc'd. I am very, very sensitive and do have Planters nuts on occasion and have never gotten even remotely sick from them. I have been gluten-free for 12 years now and pretty sure that if...
  2. Gemini
    If you put the right effort into recovery, you will reap the rewards. My tTg was also pegged well past 100 and I waited for 1 year to be retested. When I did, it was 3. I was very strict and still am with the diet. What it shows is that you understand the diet well and are doing a fabulous job with recovery! Congratulations!
  3. Gemini
    If you are having this much trouble with just being gluten free, then the aging process will push you over the edge. Sorry to be so harsh but you are still complaining about the same things, even after people have gone out of their way to give you stellar advice and positive feed back. You are right....you probably won't heal because you are beyond negative...
  4. Gemini
    I couldn't agree with this more, Arlene! He's a major whiner who doesn't seem to get it even after all this time gluten-free. Thanks for posting this!
  5. Gemini
    Thank you, JMG, for posting these links! I have been to London many times and already have a list of great places to eat but you just added more variety for me. I am returning for a week in May so look forward to trying some new places! Ricardo......London is pretty easy for eating gluten free. I am very sensitive and have never gotten sick dining...
  6. Gemini
    Mass General is a very rigid, mainstream hospital and I have heard of a couple of complaints about how people were treated that makes me think twice about referring people there. They do not think outside the box at all. I think they are great for emergency medicine but with chronic disease, they may not be much better than any other place. If someone...
  7. Gemini
    These are the enzymes I used while healing: Open Original Shared Link I will warn you that they are pricey but all good supplements are pricey. If you want to look for another brand that is less expensive, that is fine but just make sure they are gluten/allergen free. Take one with a larger meal. I did not take them at every meal because they are pricey...
  8. Gemini
    I still think the whole notion that 2/3 of all Celiac's do not fully heal is a crock of pooh. It might be 2/3 of people who aren't careful with their diet ( all of the other people in my family with Celiac are nowhere near as compliant as I am and it drives me batty) or those who do not take the time to learn food and the diet correctly and are making mistakes...
  9. Gemini
    Make that 2 cynics. If the blood work is strongly positive, then you have Celiac. With that very specific list of "in your face" Celiac symptoms, have the second biopsy if you want but I would go strictly gluten-free for life after that is done. Best of luck to you!
  10. Gemini
    Hi Sara, I little bit of advice from another Celiac who had extremely high tTg numbers at diagnosis and was very sick......if a food is not bothering you, then continue to eat it. I was able to tolerate some processed foods so ate them. I was 20 pounds underweight and needed to gain badly. So I ate gluten-free bread with no issues at all. I...
  11. Gemini
    Pharmacists are not going to know what is safe for a person with Celiac to take. It is up to us to make sure our meds are gluten free. They deal with drug interactions and making sure people are not prescribed drugs they are allergic to.....Celiac is a food intolerance and not an allergy. I never depend on anyone else to tell me what is safe to eat or...
  12. Gemini
    As far as I know from 12 years of gluten-free, anything with malt is a big no-no! I am curious as to why Coeliac UK would consider it safe unless there has been real development of gluten-free malt vinegar!
  13. Gemini
    The article seems to implicate Round Up as a cause of Celiac, which is a bit ridiculous as Celiac Disease has been around for many, many more years than Round Up has. I am not defending Round Up because it is nasty stuff, I just do not think it is a major factor in other food intolerances that can happen with Celiac. There are many different reasons why...
  14. Gemini
    Hello Oz......you do not need a biopsy with a panel like that! Mine was the same so I was also diagnosed with just the blood work. It's great that you have a doctor who has some common sense about testing and who also did vitamin panels to check for deficiencies. What your blood panel shows is that you are reacting to the gluten you are eating (the Gliadin...
  15. Gemini
    Actually, it is very common to have delayed reactions and is indicative of classic Celiac Disease. The antibody response takes time to build up to the point where you actually start to experience symptoms and this is why it took YEARS for me to figure out it was the wheat that was causing me so much grief. I have classic Celiac and it always takes about...
  16. Gemini
    The tTg may not spike upwards much after a small gluten hit. It would take repeated hits for that to go up and show on blood work. Yes, the tTg correlates to intestinal damage so if you are mainly gluten-free but take a small hit, it may or may not be enough for it to elevate and be caught on blood work. That is why they want you to be consuming gluten right...
  17. Gemini
    The only real way to test for food allergies is challenge testing. You guessed it.......you eat concentrated food samples in a doctor's office and see how you react. I do not have food allergies, just intolerance's, so do not know much about blood or skin testing for foods. Seems logical that the best method of testing is to eat the food and see what happens...
  18. Gemini
    Take a deep breath.....you will be fine! What the test means is that your villi are probably as flat as linoleum. That is very funny by the way and I will have to remember that one! Now....I am not laughing at the fact that your villi are damaged but as someone else who had sky high antibodies, I can assure you that, with time and a strict gluten...
  19. Gemini
    http://www.justglutenfree.co.ukI am not sure if the reaction to oats works on the same principal as that towards wheat gluten. I do know that some Celiacs react to the protein in oats the same as they do to wheat but at what levels I am not sure. It may be the same small amounts, though. Are you sure that the oats used in the shakes were certified gluten...
  20. Gemini
  21. Gemini
    I have not made anything worse. I spoke the truth. That is the most important information to give anyone new to Celiac. The only medical issue where cross reactivity happens is allergy. Celiac is an intolerance and there is no validity to cross reactivity with Celiac. In other words, coffee or anything else on the internet list will not be mistaken for...
  22. Gemini
    Sorry, Peaceflower, but cross reactivity is a HUGE myth. You are confusing a reaction to oats with contaminated oats. Your daughter may be one of a very small percentage of Celiac's who react to oats and it has nothing to do with gluten contamination. Not to mention that certified gluten-free oats are completely safe for those who can tolerate oats. But...
  23. Gemini
    All I can say is I am happy that you have been cancer free for 2 years and hope that trend continues for the rest of your long life. As far as those doctors are concerned, I cannot blame you in the least for still being angry about it. My take, for what it's worth, is that they missed your damaged area's from Celiac because finding a mass trumps everything...
  24. Gemini
    I am really trying hard to be empathetic with your posts because you are so new to this but really? You reject counseling, which is a very good idea, you feel that your life has ended and now you can never go out to eat and are totally isolated socially and the only word I keep seeing is can't. You know what? You are probably right because what you put...
  25. Gemini
    The tTg only tests for intestinal damage. The DGP tests for reaction to gluten consumed in your diet. Both tests should be run on follow-up, always. That is the only way you will know if you are compliant with the diet the way it is meant to be followed. The number that is most important is the DGP and the only number that needs to be in the very low...
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