
gfgypsyqueen
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by gfgypsyqueen
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ARCHIVED With Celiac, Do You Always React To Gluten?
gfgypsyqueen replied to jessdreams's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Not sure if I missed this in the original post somewhere, but be sure to continue to eat gluten after your blood test. Most doctors want a biopsy in order to declare Celiacs. And you need to be eating gluten to have the biopsy show any signs of damage. You can also request a gene test. I think the avaerage diet for most people contains gluten considering... -
ARCHIVED Introducing Myself; Seeking Diagnosis
gfgypsyqueen replied to zarfkitty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi and welcome to the world of Celiacs! It does get easier to figure this disease out over time. I've had it a little over 4 yrs now. Sounds like you already have a good handle of the basics. Ask tons of questions here, someone always has an answer or some good ideas. I found it helpful to write down al of your symptoms and problems before going gluten-free... -
How about the ever famous answer of "It's a female thing". Followed in a close second to "It's all in yuor head. Here's a prescription for Prozac." Yeah I'm sure that Prozac is just gonna make me happy that I have lower right abdominal pain, weight loss, diarrhea, gas, bloating, more weight loss, and chronic anemia. We should start a list of favorite...
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ARCHIVED I Know I'm Getting Better When:
gfgypsyqueen replied to Kaycee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes it is noce when noone has to ask how you are doing anymore. Glad to hear you are feeling better. Yes, the watching everything you eat part sucks! -
I have run into those doctors and they drive me nuts! I have two kids and the youngest is sick and has been for the last year or more (she is only two!). When we moved I started to go to new Pediatricians and I woudl tell all of them about the Celiacs, because I really think the baby has a problem with Gluten. (We recently found that dairy is a major...
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ARCHIVED More Questions!
gfgypsyqueen replied to Boffin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you already had the biopsy and blood work completed, you can go gluten-free now. The gluten-free diet can't hurt you and presumably you will feel better. Learn as much about this diet now. Try to understand the naturally gluten-free foods. Fresh fruits, cheeses, veggies, eggs, plain meats, etc. I find breakfast to be one of the easiest meals to eat out... -
ARCHIVED Chronic Persistant Ear Infections Vs Immunodeficiency
gfgypsyqueen posted a topic in Parents, Friends and Loved Ones of Celiacs
My youngest is on a roller coaster ride in the health area. She is currently doing well on a dairy free casein free diet. This is the best we have seen her in over a year and she is only two. However, she is getting constant ear infections and colds which are resistant to normal meds. Add to that she has a penecillian allergy. We can't get in to see the ENT... -
ARCHIVED My Son Is Having Problems.
gfgypsyqueen replied to Ridgewalker's topic in Parents, Friends and Loved Ones of Celiacs
Sorry to hear you are going through all these problems. The guilt is just part of having kids with these kinds of issues. I believe other foods are affecting the kids besides just gluten-like that isn't enough! My oldest also was very hard to potty train when it came to poop. Got very constipated, then it hurt, then she would hold it. Created a huge mess... -
ARCHIVED My Daughter's Having A Biopsy!
gfgypsyqueen replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is amazing how fast scars disappear on babies. I wouldn't worry too much about the scar. Keep the scar out of the sun for the first year to minimize any color changes to it. My daughter got a bad cut that ripped the corner of her lip when she was 1.5 yrs. They used dermaglue instead of stiches (results in bigger scar but less trama for the baby). She is... -
Yup ...hate hospitals!!!!! Unfortunately nutricionists are just like drs. Some are great and some are clueless. Sorry you had such a hard time in the hospital! Hope you feel better soon
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everyone has a hard time with this disease periodically. But overall, it is a healthy way to live. Your kids will grow up feeling not like the rest of the group for any number of reasons whether or not they have Celiacs. If your husband is against adopting, have a baby. See how it goes. Maybe this pregnancy will be easier for you. Maybe you'll find it isn...
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ARCHIVED Cinnamon Buns, Pizza, Perogies
gfgypsyqueen replied to Jessica04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiacs can "start" or flare up after a major trama and child birth or surgery qualify. My Celiacs started after my first child was born too. It took 2 1/2 to 3 years of active health problems to finally get a diagnosis. Many people have 10 plus years of problems before they ever hear about celiacs. Many of us have stories of years of stomach problems, bowel... -
Sorry to hear you got glutened by conditioner. Irritating isn't it Seems like gluten is in all the good stuff some days. I use Panteene products and don't have trouble. The intensive conditioners are really good too. I have to bring shampoo and conditioner with me when I get my hair cut and dyed. They all think I'm a bit touched in the head. Hope...
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ARCHIVED Worst Response From A Restaurant Yet!
gfgypsyqueen replied to gfgypsyqueen's topic in Gluten-Free Restaurants
Yes, I found the need for a note from my dr to be obsurd. I don't want the recipes and most restaurant understand that. I'll be calling to talk to a Mgr, so I'll post the result of the phone call. I hope it is just a huge misunderstanding by the legal dept. -
ARCHIVED Infant Child
gfgypsyqueen replied to Stacey123's topic in Parents, Friends and Loved Ones of Celiacs
I really don't know what to tell you about how to approach the doctor. But I would try to get a Celiac blood test, Celiac Gene test, and possible a biopsy. Also, request analysis for malnutrition. If he is that hungry and eating that much while failing to thrive, odds are his body is not absorbing nutrients. You can also request a nutritionalist. Some... -
ARCHIVED Worst Response From A Restaurant Yet!
gfgypsyqueen posted a topic in Gluten-Free Restaurants
We have a new food allergy in the family, so I started e-mailing the customer Service departments of restaurants to see if they could accomodate us. I include basic information about all of the allergies and ask if they can help me find foods that we can eat at their restaurant. I usually state that if it is easier, they can send me ingredient lists. Most... -
ARCHIVED Toddler With Celiac?
gfgypsyqueen replied to ELB3345's topic in Parents, Friends and Loved Ones of Celiacs
Keep in mind that two years old is not a magic number either. The tests are still not too reliable in young babies. If you can, look into Entero Labs. They do a stool test. Less invasive and many people swear by it when they can't get a conventional diagnosis. The gene test (blood work) would be an option too. That would let you know now if the child... -
ARCHIVED Gi Doctor And Possible Celiac Diagnosis
gfgypsyqueen replied to grey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are lucky your pc dr even saw the signs of celiacs. the dramatic weight loss with no dieting is a big indicator of Celiacs. Most pc Drs. miss it entirely. However, the dr is wrong. DO NOT STOP EATING GLUTEN. You must be actively consuming gluten to have an accurate biopsy and blood work. You do not want to go gluten-free and then be told you must start... -
ARCHIVED Torn Between Job And Job Opportunity
gfgypsyqueen replied to francelajoie's topic in Introduce Yourself / Share Stuff
Hate to say it, but take the job. If you want children, you will have even less free time once the kids arrive, plus your stress over finances and the cost that go along with kids will only increase. You need the moeny now. Take the job, resolve your finance problems and everything will work out. Many employers are still very flexible and allow 4 days at... -
ARCHIVED Stomach Hurts Today
gfgypsyqueen replied to LoveBeingATwin's topic in Food Intolerance & Leaky Gut
I'm not sure how long you have been on this gluten-free diet. Maybe try the strict diet you listed for a few weeks and let your body recover. It is a good idea to get used to listening to your body and you seem to be doing that well. Once you go gluten-free the sligtest amount of gluten will give you a bad reaction, worse than before you went gluten-free... -
Great topic! I am a Technical Writer for software. I'm the person who writes the manuals and instructions for software or cell phones. I also work on web pages, process and procedure documents, and training materials. It's fun! I have two kids: one with a peanut/tree nut allergy and one going through testing for allergies. So far I am the only...
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ARCHIVED Help....really Worried
gfgypsyqueen replied to Jenny1972's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You might want to look into Gastroparesis. It basically means your stomach fails to empty in a timely manner. With you it sounds like the opposite - add there must be a name for that? Some disease name?? Your system is moving the food through way too fast. They have a nuclear medicine test where you eat these loaded eggs and then the take pictures of how... -
ARCHIVED Recommend A Really Great gluten-free Dessert?
gfgypsyqueen replied to gfgypsyqueen's topic in Gluten-Free Recipes & Cooking Tips
Thanks everyone. I just bought the gluten-free Pantry angel food cake mix. And the Pavlova sounds AMAZING. I like the fact that it is a traditional dessert, so it should be great no matter what! -
ARCHIVED Recommend A Really Great gluten-free Dessert?
gfgypsyqueen posted a topic in Gluten-Free Recipes & Cooking Tips
Can anyone recommend a really great gluten-free dessert that the normal gluten eating population would love? I have to bring a dessert to a party. My normal standby awsome dessert is a flourless choclate cake, but this dessert has to be chocolate free. Any thoughts? -
ARCHIVED Need Ideas!
gfgypsyqueen replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
Hi, my child sounds exactly like yours! Not gluten-free, but I am gluten-free so there is limited gluten in the house. We also have a nut allergy, so no nuts allowed. I try to buy common foods gluten-free like meats, chips, pretzles, butters, cheeses, yogurts - of course all are dairy free too. Vegan fake dairy products are the way to go. I kept finding...