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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Celiac can have impact on the liver. Can't say for sure but you might see those numbers come down after you have been gluten free for a while.
  2. ravenwoodglass
    Welcome to the board. When I get glutened if I have stomach pain Pepto Bismal liquid helps with that pretty quickly. Other than that asprin if my fibro gets bad or joints are bothersome asprin will help a little bit. Other than that just hot baths and a hot water bottle for my tummy is all that really helps. I do not take anything for the D because I want...
  3. ravenwoodglass
    Hi Carol, welcome to the board. I had a great deal of muscle, joint and bone pain before I was diagnosed celiac and went on the diet. I just expected my gut issues to resolve and was pleasantly surprised when my arthritis and fibro went away. You may want to have a celiac panel run and then give the diet a good strict try. They can't do the blood test after...
  4. ravenwoodglass
    The truest test is that you were feeling better gluten free and now that you have added it back in you are really sick. No matter what the tests results are your body is clearly telling you it wants you to be gluten free.
  5. ravenwoodglass
    Great list and thanks for posting. I do want to mention that I picked up a package of Reese's pnut butter chocolate eggs yesterday and they do contain wheat flour. It was listed in the ingredients so make sure you double check since they did have one kind listed as gluten-free make sure you are getting the variety that is.
  6. ravenwoodglass
    Go ahead and give the diet a strict try. It won't do you any harm and you should do it anyway because of the high rate of false negatives. Hopefully your doctor did more than one biopsy but damage can be spotty and be missed. I do hope the surgery helps and that you are feeling better soon.
  7. ravenwoodglass
    You could try adding some sweet potatoes or yams into your diet. Lots of vit A and they have both insoluable and soluable fiber so they can help with both D and C. I also think it might be a good idea to eliminate soy for a bit and see if that helps.
  8. ravenwoodglass
    Yea it would be nice if we could deduct those, but we can't.
  9. ravenwoodglass
    I think the best person to ask about this is your tax professional. You would have to itemize and save all your reciepts. You also would only be able to deduct as a medical expense so if your overall medical expenses are not real high then you wouldn't get any deduction.
  10. ravenwoodglass
    You really can not rule out celiac if the genes tested for are not one of the two most commonly associated celiac genes. You can still have celiac without either of them. With a positive blood test, relief from the diet and a reoccurance of symptoms when you start eating gluten again that is more diagnostic than the gene panel. It may take a few days before...
  11. ravenwoodglass
    If you can't find one that carries the Mylan see if you can find one that carries Sandoz. That companies is for sure gluten free.
  12. ravenwoodglass
    Some of us can tolerate distilled gluten grain alcohols, some of us can't. I am one who can't. I was made really ill by some tinctures I was given early on in my diagnosis. If they are something you can stop taking I would stop for a bit. After you have been gluten free for a bit and healed you could then try them one at a time and see if you tolerate. However...
  13. ravenwoodglass
    I mention this because it causes the same pain for me that gluten does, have you eliminated soy? Soy doesn't cause all the same symptoms for me that gluten does but it does cause that awful pain and it took me a really long time to finally figure it out. When you are able to go back to the gluten-free diet you may want to consider eliminating soy as well...
  14. ravenwoodglass
    Yea I know the pain your talking about. It hurts so bad you can barely breathe or move. I did have one trip to the ER where they thought I was having a heart attack but in the end the GI Cocktail took care of it. What I take for it now, when I get glutened, is Pepto Bismal. That seems to coat stuff pretty quick and ends the pain. You could try that or you...
  15. ravenwoodglass
    Garneir, Dove, Suave will all list gluten clearly. I use all Garneir products for skin and hair. Shikai and Giovanni list well also if you like organic stuff. With cleaning products I wear gloves when cleaning with most products.
  16. ravenwoodglass
    After looking at the levels of the vitamins and comparing them to what I already take I realized I need more of some individual vitamins than they provide. So I would still need additional vitamins and for me just sticking with the ones I take was the more cost freindly option.
  17. ravenwoodglass
    For some of us, myself included, I was always sick before diagnosis with colds and caught any virus or flu that was around. I think it was because my body was so taken up fighting gluten that it didn't have any reserves left to fight off anything else. I haven't been sick now in years so hopefully once you have been gluten free you will have the same effect...
  18. ravenwoodglass
    Sorry you in so much pain hopefully it will run it's course soon. I find plain asprin to help a bit with the muscle and bone pain. Sometimes sublingual B12 will help a bit with the fatigue. I also have taken Royal Jelly to help with the fatigue. Not something to take if you allergic to bees. Other than that hot showers and sleeping as much as I can seems...
  19. ravenwoodglass
    If you have Gluten Free Pantry mixes where you are try their French Bread mix, the pizza crust recipe is on the box. I like thick crusts so I use one box for one crust although they do say to split the 'dough' onto two pans. It took a bit for me to get used to having to use a spatula to spread the dough, I oil the spatula to get it to spread easier. I...
  20. ravenwoodglass
    Great to hear that you found a rice bread you like. If you do have soy sneak in again I have found liquid Pepto Bismal helps a lot with the pain quickly and usually with just one dose. Good for you figuring that out so quickly, it took me a couple years to realize I couldn't do soy. It is so great that we are having more and more people that are being diagnosed...
  21. ravenwoodglass
    The mood issues may be from withdrawl and if they are they should pass fairly soon as long as you keep being strict. Although I am not a male I do know that celiac can mess with hormones, and we all have both testosterone and estrogen just differing levels depending on whether you are male or female. I also noticed my sex drive return after I had been gluten...
  22. ravenwoodglass
    Great to hear you starting to feel better. Although hard do try and keep the dairy to as little as you can if you can't cut it out completely. We also often crave stuff we shouldn't be eating so if you can drop it entirely for a month or two and see if it helps, or even more important how your body acts when you add it back in, that would give you a clearer...
  23. ravenwoodglass
    Glad your giving the diet a try. Be strict and give it at least a couple of months as sometimes the first month or so can be full of ups and downs. Go with as much whole unprocessed food as you can. Be sure to check all meds and supplements.
  24. ravenwoodglass
    DH will resolve on it's own with the diet. It can take some time for the antibodies to leave the skin which can be a good thing as when it flares you will know that some gluten is sneaking in. Personally I wouldn't use any med, just be superstrict with the diet. Some with DH will find that gluten grain alcohols and vinegars will cause a flare and a food log...
  25. ravenwoodglass
    Growing up with DH is awful, mine was misdiagnosed as 'poison ivy in my blood'. Just make sure that the derm that does the biopsy does it correctly. They do not biopsy the rash but the area beside it and do make sure that they are looking for DH specifically because the lab needs to do a special test for it. I don't know if just a couple days on gluten...
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