Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    I do hope you told her that spelt is wheat and suggested true gluten free subs for those muffins like Kinnickkinik english muffins. Also keep in mind that excema is also associated with gluten for some folks so even if the babies rash isn't DH it could still be caused by the gluten.
  2. ravenwoodglass
    It used to be thought that children would outgrow celiac. It was thought that after years of a gluten free diet that the celiac was gone when they reintroduced gluten and they would seem to be symptom free. Research has shown that however is not the case. They have called the period symptom free to be the 'honeymoon' period. If you do a search using the words...
  3. ravenwoodglass
    If you enjoy baking you could try just using regular bread pans and the oven for a bit. Then if you really enjoy the bread and eat it often you could go and get the bread machine. The convience of a bread machine is that it cuts out the kneading step and not all our breads need to be kneaded.
  4. ravenwoodglass
    I agree, my arthritis flares badly with soy for example but the digestive symptoms I get from soy are just a little constipation and is only noticeable because I am so regular now that I dont consume gluten.
  5. ravenwoodglass
    I have arthritis also, or I should perhaps say had. You may find your GRRRR turns into YAY.... in a few months. It took about six months gluten free but my arthritis has been in remission now for almost 8 years. That was a real shock for me as I had been told it would only get worse. I had it for a long time so the joints most severely effected still look...
  6. ravenwoodglass
    You have a good doctor, I hope you listen to him. It is unfortunate that they couldn't do the biopsy right after the positive blood tests. Your 2 months gluten-free and then just one week of a challenge is the most likely reason why your biopsies were inconclusive. Many doctors would want you to stay on gluten, no matter how sick it makes you and then redo...
  7. ravenwoodglass
    Not everyone who has the celiac associated genes will develop the disease. Where you got the genes from is not all that important. The important thing is you are doing the best you can to overcome the issues that you have. There is also the issue of false negatives on testing. If family members have health issues just because they had a negative blood test...
  8. ravenwoodglass
    I just went out and got a regular bread machine when I was first diagnosed. It worked fine for gluten free bread. I also spent a fortune on all these different flours, egg replacers etc. I only used mine a few times. Most of the flours went in the garbage a few months later. For me, as one person, it has been more cost effective to simply buy gluten-free...
  9. ravenwoodglass
    Your hubby is a real keeper. I also would have eaten the one that he flipped with his fingers but it is okay that you didn't. The idea about wrapping the whole thing in foil was a good one.
  10. ravenwoodglass
    The blood test measures the antibodies that are produced from the gluten reaction. If you have been off gluten for months you need to do a gluten challenge for aoubt 3 months for any chance of an accurate result. Even with a challenge or on a full gluten diet there is a 20% chance of a false negative.
  11. ravenwoodglass
    This was quite an old thread. In the US modified food starch that is derived from wheat must say it is from wheat. Most are corn or tapioca derived. If it doesn't say 'modified food starch (wheat)' it is safe.
  12. ravenwoodglass
    If you have been gluten free and you are getting relief from the diet is a two month gluten challenge going to be worth the pain? You need to go back to a full gluten diet for at least 2 to 3 months and you may still have a false negative on the testing. If you are not having any problems with sticking with the diet and the diet has been successful for you...
  13. ravenwoodglass
    No she is not symptom free. As far as I know she hasn't had any more testing as she has a high stress job now and she considers the gene test to be conclusive and any symptoms she has are attributed to stress. It breaks my heart but there is nothing I can do as she will not discuss any health related issues with me. She does discuss them with her brother...
  14. ravenwoodglass
    I took them short term after a bout with panceratitis. I took them for about a month. Once my stool stopped having undigested food in it I stopped them. I think the brand was Country Life but I could be wrong. As far as how much to take, read the bottle and follow the directions on it. If you like pineapple you could try adding that to your diet as the...
  15. ravenwoodglass
    I agree this supplement looks like it would be a good fish oil to take. I do wish they would get the soy out of it though.
  16. ravenwoodglass
    I could be wrong but I think the ingredient referred to is olestra. It is something that keeps your body from absorbing fat. It is not in the tostitos or Lays chips and is usually found in 'diet' food. Open Original Shared Link "Olestra sometimes causes underwear staining. That phenomenon may be caused most commonly by greasy, hard-to-wipe-off fecal...
  17. ravenwoodglass
    Also keep in mind that it could have been the gluten.
  18. ravenwoodglass
    No your not. It is too bad that you couldn't find a doctor to test you since if one family member has celiac the NIH states that every one of their first degree relatives should be tested. In more celiac savvy countries they screen for celiac at age four, again in the teen years, even if the person is not symptomatic. When symptoms develop it is the first...
  19. ravenwoodglass
    2 and a half weeks is not long enough for a gluten challenge. If you are determined to try and get a biopsy defined diagnosis go back to a full gluten diet for at least 2 months. You have good reason to be fearful of a false negative. Even back on a full gluten diet for 2 months you still have a 20% chance of a false negative.
  20. ravenwoodglass
    False negatives with both blood and biopsy are not uncommon at all. You have 22 ft of small intestine and the damage can be patchy and be missed. I would not bother with the gene testing as that could confuse things even more. Commonly only 2 of the 9 celiac associated genes are tested for and if you don't carry one of those 2 genes you will be told you don...
  21. ravenwoodglass
    I agree completely with Skylark. My family has been through this and with tragic results. I was hard to diagnose but after my diagnosis we tested both the children. Both were positive to the blood tests and one of them then underwent a biopsy that was also positive. Issues they had resolved and all went well until my DD went off to college. She decided to...
  22. ravenwoodglass
    There could have been something you were missing on the diet. It is more than just food, it is how it is prepared, what the foods are that you are eating, are they produced in the same plant as gluten foods, are they actually gluten free or 'gluten free by ingredients', eliminating gluten in the stuff you cook with, for example we can't share toasters, colanders...
  23. ravenwoodglass
    The symptoms you are mentioning could be due to CC from somewhere. Recheck everything and if you can avoid restaurants for a bit. Have you checked all meds and supplements? Toiletries? Do you use any 'antislip' powders on your hands when practicing? I don't know if they use those in martial arts but it would be something to check if they do. What are you...
  24. ravenwoodglass
    You have to be on a full gluten diet to have any chance of a correct diagnosis on the endo. If you are planning on the endo please do go back to eating a regular gluten filled diet. You need to really load up on it if you have been gluten free or gluten light.
  25. ravenwoodglass
    Yea I had over 40 years of their 'it's all in your head' diagnoses myself. Even with brain lesions found on an MRI and a flat electromylogram on my right leg I was still told that I was just 'depressed' here's a prozac. I even had a neuro tell me that I was sick because I wanted to be sick. I don't think I will ever personally trust doctors for anything...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.