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ravenwoodglass

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Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    When I have to take antibiotics I start upping the probiotic intake the day I start the antibiotic. It seems to keep the nasty effects of the antibiotic from ever starting. You may want to ask your doctor is that is okay for you do.
  2. ravenwoodglass
    And Ravenwoodglass will continue to do so. Please don't take it personally. I don't want what happened to me and my family to happen to anyone else. Unfortunatly not all doctors are up on the other genes that can be associated. After what happened with my daughter at one of the most well respected hospitals in the country I do feel the need. Hopefully someday...
  3. ravenwoodglass
    Xanax is similiar to Valium and the name brand is not gluten free. It is an antianxiety med. I take the generic form, alprazolam, made by sandoz. It is addictive and a controlled substance. Your doctor can prescribe it if there is a need. Be aware that with long term use it can be hard to get off of and you should not stop it cold if you have been on it awhile...
  4. ravenwoodglass
    It is possible to develop celiac with a large number of different genes. To rely on gene testing to tell you whether or not you can eat gluten is IMHO as big mistake as relying on the blood and biopsy for definate diagnosis or exclusion. My doctors relying on the blood work cost me many years, a great deal of pain and permanent damage. Doctors relying on...
  5. ravenwoodglass
    Please please as Jestgar said do not get hung up on the genes. There is much that is not known about celiac and the most important thing is how well you have responded to the diet not what genes you have. I would hate to see you give up the diet that is working well for you based on a science that is far from completely conclusive. I had that happen in my...
  6. ravenwoodglass
    If you can get a hard copy of the results and post them here someone will be able to answer your question. Please note that having or not having the most common celiac related genes is not diagnostic. Have you gotten relief from the gluten free diet and are you following it strictly. If the answers to both questions are yes then you really do already have...
  7. ravenwoodglass
    Soy doesn't contain gluten. The issue with soy is that some of us are intolerant to that also not that it contains gluten.
  8. ravenwoodglass
    This is just my opinion but I think you are going about this backwards. IMHO you should try the diet first not last. For one thing gluten can increase stress levels all by itself through it's action on the brain. On the diet you may find your tolerance for stress increases and not need the meds. In addition from this "Yeah... the librax wasn't helping...
  9. ravenwoodglass
    Yes.
  10. ravenwoodglass
    While your test results are negative please do keep in mind that the false negative rate is high, according to the NIH at least 20% of us have false negatives. Do be sure to give the diet a good strict try even with the negative results.
  11. ravenwoodglass
    The only problem with doing the gene tests is that if he happens to have one of the celiac related genes other than DQ2 or DQ8 you most likely be told that he is not celiac. We had that happen to my DD after she was positive with both blood and biopsy. As a college student she was overjoyed to go back to gluten and now considers all her symptoms to be stress...
  12. ravenwoodglass
    I would have been afraid of him also. I would have done the same thing you did.
  13. ravenwoodglass
    Exactly and there is also no requirement to label if an item is make with gluten free ingredients but has a risk of cross contamination in the plant. Even if wheat is used in other products.
  14. ravenwoodglass
    That could be a possibility for the original poster. I do react to soy but the reaction is distinctly different from my reaction to gluten. I do react to CC on shared lines, not all do. Those that don't are lucky and I am a bit envious of them but my gluten reactions are very distinct and have a pattern that is obvious to me. I did for quite a while early...
  15. ravenwoodglass
    Thanks for the warning. I'll be noting the name of this product so I can be sure to avoid it. I am not someone who considers stuff that has 'the gluten processed out' to be safe. It may be fine for others but the 'gluten processed out' products generally make me ill. Stuff prepared on shared lines that CC us sensitive folks would also test below the allowed...
  16. ravenwoodglass
    I can't say that you are for sure celiac or not. If you are planning on having the endoscopy then do keep eating gluten. If you are not then go ahead and drop both the dairy and the gluten for a couple of months and then you could add them back in one at a time for a couple of weeks and see if you react. Being gluten free will not effect the results of testing...
  17. ravenwoodglass
    Thanks for the link it will be helpful and I will be bookmarking it. It is true that wheat has to be disclosed but barley can be added as a 'flavoring' and not be disclosed. Oats and rye also do not have to be disclosed but they are rarely an issue as they are not used as a flavoring like barley is. Hopefully The regulations that allow other gluten ingredients...
  18. ravenwoodglass
    If gluten is entering the bloodstream IMHO yes that could cause the antibody reaction to occur. Whether it is enough to cause a gut reaction I don't know but for those of us who have antibody reactions in organs other than just the gut it could IMHO be a problem.
  19. ravenwoodglass
    The DNA test is not a diagnosis. For one thing many carry the genes and not all will have celiac. In addition gene testing is a relatively new science and many companies only test for 2 out of the 9 known celiac associated genes. IMHO you would be better off getting a celiac panel done through your doctor. If you have been seeing one for these issues they...
  20. ravenwoodglass
    You may be able to eat out on occasion but perhaps you might want to wait until you have healed fully. Then pick a place that has an actual gluten free menu as they are more likely to be aware of CC issues. It is getting easier for us as more and more people are getting diagnosed and places are getting more aware of what they need to do to feed us safely...
  21. ravenwoodglass
    They definately don't have dedicated facilities except for the Lay's Stax. I am very sensitve to CC and some times I will be able to eat their gluten-free by ingredients items and other times they will make me sick. I avoid all but the plain potato chips now as for me they are not worth the risk.
  22. ravenwoodglass
    Can you get him to at least get screened for celiac and then try the diet after testing? He may find that gluten free his arthritis goes into remission. No promises but mine did.
  23. ravenwoodglass
    I have. In my case it is due to kidney damage and becomes more pronounced when I get accidentally glutened or soyed. Do make sure that you investigate this throughly. No one wants to do a cystoscopy but if they want to do it and the diet hasn't lessened or relieved the bleeding get one done. The doctor can give you something to relax you about the procedure...
  24. ravenwoodglass
    Poor guy he was most likely hoping for the only meal he would have that day. No one should have to look through garbage for some food when so many of our dollars go to support the hungry in other countries.
  25. ravenwoodglass
    From what I understand they are not made in a dedicated facility. My box says nothing about the facility being a dedicated one and usually if a company goes to the trouble of having a dedicated facility they tell us.
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