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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    For my DD gastritis was her primary symptom.
  2. ravenwoodglass
    I really like the pepto because for me it stops the pain very quickly and many times the pain doesn't return. That said you may want to check with your doctor as celiac is not the only reason for stomach pain. Other conditions independant of the celiac may be responsible.
  3. ravenwoodglass
    I agree with Jestgar. I am also an extremely senstitive celiac. I was also a professional chef in a restaurant that catered to folks with food sensitivities. The precautions that you mention taking would be sufficient for me to be comfortable eating your food.
  4. ravenwoodglass
    It sounds like you have a pretty good plan. I don't think sharing the oven would be an issue as long as stuff is not being cooked at the same time. I would treat gluten foods the same as you do you fresh meats in that I would keep them totally seperate from other items in storage or in your cooler. Do not store your gluten foods above the nongluten ones...
  5. ravenwoodglass
    Have you eliminated gluten from your nonfood items as well? Things like pet foods and litters, soaps, lotions, shampoos, conditioners, household remodeling stuff like drywall and wallpaper paste, craft items like glues and clays can all be sources of contamination. Does your wife use lipstick or other gluten makeup, do you consume gluten grain alcohols...
  6. ravenwoodglass
  7. ravenwoodglass
    You have a good neuro I hope you listen to him and become strictly gluten free. It wil not be an instant recovery but you will recover if you do. Chances are you are like me and don't show up on blood work. We are here to help with any questions you have. Please don't wait until your 'IBS' symptoms become more like chrons. You have been lucky to get...
  8. ravenwoodglass
    And as you have undoubtedly read here before, barley malt when used as a flavoring agent can be listed under just natural flavors and not disclosed. When grain is added as a FILLER it has to be declared but not when it is malted and used in small amounts as a flavoring.
  9. ravenwoodglass
    The NIH actually does consider DH to be celiac disease. Gluten ataxia is also celiac disease. Celiac disease can manifest in more than just the gut. Just because it is not GI related doesn't mean it is not celiac. You have also mentioned that DH can be caused by more than gluten I would be interested in seeing links to what other causes there are. DH...
  10. ravenwoodglass
    Not a pleasant way to spend your birthday. Perhaps when your feeling better you could treat yourself and your freinds to a 2nd gluten-free BDay party. There are some good gluten free pizza options available. Gluten Free Pantry makes a French Bread Mix that makes a good pizza dough that even gluten eaters will like, at least the ones I know. If you need...
  11. ravenwoodglass
    When chicken has broth added it is not uncommon for barley to be used as a flavoring agent. You should always verify that it is gluten free. As mentioned whole unprocessed chicken is safe. It's what's in the added broth that can get you.
  12. ravenwoodglass
    Celiac disease can impact the liver. There are a number of us who have had those issues resolve as your Mom did. You do sound like you could be one of us. The choice to get scoped is really a personal one. Some are not able to stick to the diet without a doctors confirming with a scope. However there is a false negative risk with the scope as with the...
  13. ravenwoodglass
    I have heard good things about henna but one thing that needs to be mentioned is that if you have used a regular hairdye on your hair you need to let that grow out before you use the henna.
  14. ravenwoodglass
    This most likely is not going to be very helpful as they at this point don't know the why. They do know it occurs and many of us have an early menapause and we freqently miscarry and have trouble concieving. But the reason why it happens has not be established anywhere that I have been able to find. I also had polycystic ovaries and also polycystic breasts...
  15. ravenwoodglass
    I am well aware of that and that is why I always urge folks to check with a doctor if symptoms do not abate. I also strongly urge folks to get tested for the disease before they go gluten free. I am one of the unlucky ones who don't show up in blood work so I had to go gluten free the hard way, through a true months long elimination diet guided by an MD...
  16. ravenwoodglass
    Welcome to the board. I hope you continue to improve. The withdrawl can be tough but it should resolve soon.
  17. ravenwoodglass
    I have to agree with the others. If your Ttg was 66 after 3 months gluten free I can only imagine how high it must have been beforehand. That combined with your response to the diet and the family history is pretty diagnositic. I would not risk the effects of a gluten challenge and just stay with the diet. If the SCD is getting to be too much for you...
  18. ravenwoodglass
    That would be my suggestion also. I do use just about any rice though that is unprocessed and not fortified. I always rinse it first before cooking.
  19. ravenwoodglass
    You may very well be right that the proteins can be absorbed, I don't know perhaps my reaction does come from absorption as well as 'injestion'. An old fashioned test for DH was to use an iodine patch on unbroken skin which sounds similar to the patch testing you had done. I'm tempted to strap a wheat germ soaked bandaid to my arm to see what happens. ...
  20. ravenwoodglass
    What a wonderful vet! I am so glad your little freind is going to be okay. We had a little mouse that one of the cats brought in still alive and I released it outside the back door. The next day during a raging thunderstorm I found it sitting on the back step. I brought it in and she lived happily for quite some time in an old aquarium. Mice can really...
  21. ravenwoodglass
    Do you have autoimmune issues other than the villi destruction that was found when you were diagnosed? For those of us who have multiple system impact including organs other than just the gut it is obvious that the autoimmune response has been triggered when it is. I do agree with you that gluten is not absorbed by INTACT skin but the residue that is...
  22. ravenwoodglass
    I was thought to have MS for quite a while before I was diagnosed but had effects in my nervous system since childhood. By age 11 I had lost reflexes in my legs and by the time I was diagnosed in my 40's I could barely walk. When they did testing on my legs my right leg was basically dead as far as nerve conduction goes. I also have ataxia which makes me...
  23. ravenwoodglass
    I agree with the previous poster. For most folks the morning reading should be the lowest and that is a large difference. I hope they figure it out for you soon.
  24. ravenwoodglass
    I had DH for well over 20 years before the gut stuff showed up. For me the damage done to my brain, bones and joints as well as the damage to my heart and other organs from the inflammation were well established by the time D became a daily occurance. Villi damage was really the least of my issues when you get down to it in the sense that at least the villi...
  25. ravenwoodglass
    I don't know how far out of the way they are but all their safe name brand goods have a circle G on them. It makes buying canned goods, barbeque sauces, chips etc so much easier. I don't know what I would do without them. Might be worth the drive for you just for the time you would save reading labels.
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