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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Not all celiacs show up in blood work and some will show with numbers so low that the doctors call it negative anyway. You need to try him on the diet strictly for a couple of months and then if needed do a short gluten challenge (until symptoms return not weeks!) to be sure if there is still doubt. With a biopsy confirmed sister with a negative serum level...
  2. ravenwoodglass
    Thats correct and heaven help you if you are in and it is triggered as the military is for the most part as clueless as regular doctors. Been there, no fun.
  3. ravenwoodglass
    Just a quick heads up while the Fritos may be ingredient safe my family have found that Frito Lay are products to avoid. The CC issues with this company are extreme. Consume with caution and if you have a reaction don't think you have developed another sensitivity until you drop their products and try a less risky brand.
  4. ravenwoodglass
    You need to figure out what is safe for your own body. Some of us tolerate grain derived alcohols but some can't. The celiac sprue association has a excellent starter list that addresses alcohol consumption. I feel the safest way to decide whether you tolerate any food or alcohol is to do a challenge with it. Drink a bit for 3 to 5 days every day without...
  5. ravenwoodglass
    We saw fresh breakouts of acne stop within a couple of weeks. My DH however took a bit longer. I would get blisters frequently for the first few months, mainly due to CC from mainstream foods and toiletries. For a couple years the blisters would be the first sign of a glutening of CC. Now after 5 years gluten-free I have to have a lot of gluten before...
  6. ravenwoodglass
    My first signs of celiac, ataxia, depression, extreme muscle and joint pain and loss of leg reflexes appeared after I was impaled at the age of four. I was alone and had to pull myself free and then walk to a neighbors for help, I will never forget her face when she came to door. Then I had mono at 15 which added migraines and digestive problems to...
  7. ravenwoodglass
    I personally would not take the CC risk with this even if it appears to be gluten free. To be on the safe side you may want to call the company and ask about what other cereals are made in the plant.
  8. ravenwoodglass
    My entire family saw acne disappear within a very short time gluten-free. The only time we have a serious breakout now is when we come into contact with something with gluten. I would suggest that you call the maker of any and all supplements and any other meds you take. Many herbal preperations may say gluten free but some may contain barley and wheat...
  9. ravenwoodglass
    Hi and welcome to the boards. You could very well be feeling a resolution of some of the problems after only a few days, but be aware that things are very up and down for many at first. To answer the ataxia query, I have had ataxia since childhood. It feels like walking on a ship or a tilt a whirl to me. I feel like I am falling over sideways, always...
  10. ravenwoodglass
    I can not answer the first posters query but I do know that the reason he would want to test the spinal fluid would most likely be to look for the demylination that occurs with MS. The process throws cells into the spinal fluid. I had this done after my MRI showed UBO's to rule out MS. This is most likely what he is looking for in this instance. In my...
  11. ravenwoodglass
    He is so cute. My grandparents used to keep skunks as pets, two of them. On the rare times we would visit they would be the first things I would look for. Most of the time we found them under the bed by the chamber pots. They can be really sweet animals but they also know when they don't like someone. A boyfreind I had also had one who hated me. If...
  12. ravenwoodglass
    The chances of a false negative on blood work and biopsies are quite high. It delayed my diagnosis by many painful years and resulted in some permanent neurological damage. The diet is the best test when it is done strictly. IMHO
  13. ravenwoodglass
    You need to get ahold of nutritional services and also I would make a call to the person who runs the hospital. If you have a lawyer I would have him do it. Hospitals and doctors need to wake up to the fact that if they pay no attention to our needs we will fight back, we have the right not to have them poison us and we have the right to eat safely. I...
  14. ravenwoodglass
    I believe this person meant to say a false negative. I have never heard of a false positive but false negatives abound. If you are gluten free this may very well occur but it does not mean you don't need the diet. I had my longstanding back pain go away also along with my arthritis, I still have the joint damage but I have full movement again and no pain...
  15. ravenwoodglass
    Other than this site the one I have found most helpful is the one at the celiac sprue association. I am providing a link. Open Original Shared Link
  16. ravenwoodglass
    Please, please, please use great caution with a 'cleanse'. These are not something that we normally benefit from and can be extremely dangerous for those of us with celiac. There are some of us who have been made extremely ill by these and they really have no benefit other than money for the companies that make them. Your body has ways of cleansing itself...
  17. ravenwoodglass
    Have you checked everything you come into contact with for gluten ingredients? Are you taking any meds or supplements that you have not checked yourself, call the companies yourself do not rely on anyone else. Be sure to read the entire label on supplements, some will add wheat or barley grass and still call the item gluten-free. For the pain have your...
  18. ravenwoodglass
    Go with the diet, then if you still have doubts when you are feeling better you can always do a SHORT gluten challenge, in others words eat it in pure form, cream of wheat or triscuits, for a few days until you react. If you are not asymptomatic that is the best way of diagnosis that there is. Many, many of the testing procedures are woefully inadaquate...
  19. ravenwoodglass
    If they are causing you pain stop taking them. Then get the paper that comes with the script and call the company yourself to verify. If they are a generic or an OTC your risk of gluten is higher than if they are a name brand script. The drugs themselves may be gluten-free but the binders in them may not be. I recently threw away some allergy tabs from...
  20. ravenwoodglass
    I get Bette Hagmans and store it in the freezer. I don't use much and my bag in there has been fine now for 2 years.
  21. ravenwoodglass
    He passed so long ago that noone I know now ever had the joy of even meeting him. It is like losing a piece of yourself. Only someone who lost a twin could ever understand. I think what hurts the most is that it is so obvious in retrospect that both my Mom and him were celiac. It is hard not to think about what life would have been like if they had both...
  22. ravenwoodglass
    Boy do I know how you feel. I have only been out to eat 3 times in 5 years and have gotten so sick from CC that it just wasn't worth it. One thing that helps is I try to keep a couple bags of premixed Gluten Free Pantry French bread and pizza mix in the freezer. It spreads easier when cold anyway and I just take it out and let it thaw then spread it...
  23. ravenwoodglass
    I am glad you have gotten relief from the diet. Enterolab, as stated is going to be the way to go since you have been gluten-free since January. But with the resolution you have had of your problems you now know it was gluten that was causing them in the first place. The only treatment for gluten intolerance or celiac is the diet so you are doing the right...
  24. ravenwoodglass
    I did not too long ago. My DD has also. Mine in fact showed metaplasic changes that resulted from years of undiagnosed celiac. My DD had only ulcers and duodonal damage when endo-ed with only patchy inflammation to the small intestine, the doctor said the damage was from celiac, it just had not been going on long enough to damage the villi that he had...
  25. ravenwoodglass
    Actually to me it sounds less like a detox effect than a glutening. For many once the body clears the gluten for a bit, for some even a short time, the reaction that we get from accidental injestion is striking and even more severe than before we went gluten free. One reason why I believe the elimination and 'until you react' challenge is the most valid...
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