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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    I know this is not going to make me popular but here goes anyway. Ener-g crackers are great, however.... they follow the codex standards which for some of us is not really gluten-free. I used to eat a lot of them, every day. I stopped a couple of months ago. You may want to try dropping those for a couple of weeks and see if that makes any difference...
  2. ravenwoodglass
    I react to them also. I am another one who is a bit more than annoyed with these companies. They are fully well aware of CC issues but heck if they put that on the bag they won't sell as much of their product. I always make it a practice now on the rare times I eat anything labeled gluten-free to look and see if they make other poison products also. If...
  3. ravenwoodglass
    Beta Carotene is fine, it is a color that is derived from strongly colored veggies, carrots would be an example. It is also a form of Vit A. It should be fine. As for the carageenan, I am glad you brought that up. After looking at a couple of things on the net like the link below I think although it is gluten free it will be best for my personal tummy...
  4. ravenwoodglass
    I hope this resolves soon for you, while you are at your doctor have him also test your blood sugar. I would also, if you are still eating mainstream foods, go to pure and unprocessed for a bit. You may be getting a bit of CC that is effecting the brain but not enough to cause severe GI problems. Even the smallest amount of CC will bring back my neuro...
  5. ravenwoodglass
    I know we are not supposed to react gluten wise to distilled grain vinegars or alcohols but both my son and myself have clear gluten reactions. We use Heinz white distilled vinager it is corn or wood derived (I can never remember which) or Heinz apple cider vinager ( not the flavored apple one as that contains malt). We also use rice vinager and wine vinager...
  6. ravenwoodglass
    "I have to admit I eat out a lot, and because of that the potential for CC is high, although I eat mostly fresh unprocessed foods at home." I would stop doing this for at least a couple of months. Eating out is very risky for us. I would eat only whole unprocessed food I prepared at home untill symptoms resolve and then if I felt I had to eat out I would...
  7. ravenwoodglass
    Yea that cheese will do it every time. LOL My little dog now likes to take the bread and pizza crusts around the house and hide them, after he tortures the cats buy walking up to them with it in his mouth and then acting like they want to steal it. I have found bread in my bed under the covers, between the cushions on the chair, stuffed into my dirty laundry...
  8. ravenwoodglass
    If your have the time, the money and the energy I would go for it. I would also have an on site fresh baked goods store perhaps even on with a little coffee and sitting area and make sure the ovens vent to the outside. If you also do corn tortillas I bet you could draw nonceliacs also and perhaps even offer samples of gluten-free baked goods. Much of the...
  9. ravenwoodglass
    I would also contact this company and register a complaint. And I would go into vivid detail about the symptoms that eating this produced. Something needs to wise up these companies. I learned the hard way with a natural vitamin that was labeled gluten-free but had the same sort of ingredients. I hope this doesn't hit you too hard.
  10. ravenwoodglass
    I had the same concerns as you for a bit about food made in other countries. I discovered that the FDA requires all food that comes into the country to follow the same guidelines that we use as far as disclosure and labeling etc. However there is always a need to check ambiguous 'flavors' and also companies are not required to tell us of any CC risk. The...
  11. ravenwoodglass
    It is amazing how much better we can feel, and it only gets better. One word of caution though, ask lots of questions when you go to get that flour. Make sure they do not use the same mill for gluten-free flours that they use for gluten flours (this is a strong possibility) and do not purchase flours from a bin. You do not want all the progress you have...
  12. ravenwoodglass
    Hi, You haven't been on the diet for very long and things can be up and down for a bit. A couple questions for you. Have you been eating out? Have you deglutened your kitchen? Are you consuming a lot of gluten-free carbs? Have you eliminated gluten from all your toiletries and cosmetics? Have you had your scripts and OTC meds checked? There are no...
  13. ravenwoodglass
    After I went gluten-free I found that barley malt would give me a metalic taste that would last quite some time. This may not be what is causing this but thought I would mention just in case. In the early stages I was consuming Rice Crispies and also did not check 'natural flavors' as much as I needed to. Wheat will be listed as an allergen now but barley...
  14. ravenwoodglass
    With the nerve damage that comes from celiac the answer is yes. It will often show up on an MRI as what they call unidentified bright objects or UBO's. US doctors are not real up on this and will sometimes say they are an anomoly but in many other countries they are diagnostic of celiac. I am a neuropredominant celiac and I found that I have to be especially...
  15. ravenwoodglass
    In addition to the great advice you have already gotten I would like to add one thing. For many celiacs in the early stages of the disease D is an episodic event and often is not a daily occurance. Some will suffer D only a couple times a week, in some cases it may even seem to be tied to hormal issues. It is important to understand that gluten intolerance...
  16. ravenwoodglass
    I don't know if there is any genetic connection other than 'luck' but we have all three in my family. We have one family member with ED and Celiac and one who has all 3.
  17. ravenwoodglass
    I am so sorry to hear this. It is always so hard when someone we care deeply for is so ill. I am glad she has you there for her, I am sure you are a great comfort. You will both be in my thoughts and prayers.
  18. ravenwoodglass
    Your pharmacist may be the most helpful with this, but I don't think it would be an issue for him but more for the celiac person who was applying it. Like with lotions and such. I can only speak for myself of course but in my case I had no discomfort at all from the testing. I had a couple spots that were slightly itchy but mostly I just had little...
  19. ravenwoodglass
    I hope the testing goes well. If you have the actual preperation you may want to google the name and the word gluten and see what comes up. The one concern I would have is IF all of the things they test for show a reaction. It is unlikely and I don't know if that would happen so don't want to concern you unneccisarily but if that does occur then I would...
  20. ravenwoodglass
    You have gotten some great advice here from everyone and I think you are making the right choice in making the home gluten-free. I have only one other brief thing to add. Don't forget that gluten is also a neurotoxin for an awful lot of us. It has the ability to take any rational thought process we have and throw it right out the window. Many of...
  21. ravenwoodglass
    I have had a few bouts with pancreatitis. Most were prediagnosis. It is one of the most painful illnesses I have ever had. I had extreme vomiting and D with blood, severe pain under my rib cage, and was very much out of it and if I didn't live alone would have most likely been hospitalized. After the worst is over I go through a period where I do not...
  22. ravenwoodglass
    You should heal without the gluten in your system. The GI track replaces cells fairly quickly, we see this in the number of folks that get a false negative on endoscopy after being gluten-free only a relatively short time. It is the reason why so many are told to go back on gluten before the endo. As long as there are no other existing problems you should...
  23. ravenwoodglass
    My pancreas apparently took a real whap from the Levaquin. I still am not digesting things completely but at least they don't look like they did when they went in anymore. My blood sugar levels are still quite high for me. Since the CT scan they did showed what were thought to be pancreatic calcifications, (I think that means scarring), I looked up...
  24. ravenwoodglass
    Count me in. I have one toe I have broken so many times that it moves freely in any direction. I had two broken ribs in my teens from having someone fall on me at a concert and I have also broken fingers, and lets not even start with teeth, not technically bones but close. I think my Ehlers Danlos has actually saved my long bones a few times, I tear tendons...
  25. ravenwoodglass
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