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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. I love this stuff. Make sure you try it for pizza. It is a bit hard to spread but is worth the effort. It also freezes well in the raw form. With just me at home I mix it and then freeze half in a plastic bag. I thawed it in the fridge overnight when I needed it. It makes the best pizza since I went gluten-free. If you let it rise a bit after you spread...
  2. There were two items that jumped out at me when I read your list. The first one was your acne wash, not all Neutrogena products are safe so you may want to double check. Also the Tyson Chicken, I have had horrible reactions from this product, not every time but enough so I will never touch it again. I hope you can get this figured out soon. It can be...
  3. Hi, I am sorry you are going through this. I am going to make a business suggestion, have you ever thought or done Ebay type auctions or stores? I was able to keep myself off welfare when I was disabled by dealing there. If you have a good eye for used stuff you can get some amazing sales. One of my best was a tattered and stained old cloth doll that...
  4. Hi, I was thought to have MS for a long time. I got to the point where I could not walk unaided, often dropped things I was holding, at one point I had difficulty even starting my car. I would get in and not remember how to start it. I would have the key in my hand and not know what to do with it. I had to drive by using my hands to move my legs from...
  5. (((((((((HUGS))))))))) I hope things are better today.
  6. I was given depakote for a seizure disorder that turned out to be gluten related, as were my migraines. My experience was not good. I trembled very badly, my hair fell out, my fingernails became extremely curved and ridged, I walked around in a cloud and my liver enzymes were eventually effected. It did get rid of my seizures but it was for me not worth...
  7. I used to get mystery glutenings a lot when I shopped at a small grocery store in my town. I could never figure out why until the day I looked through the open door and saw the butcher sitting at a stool at the butcher block having his lunch. I now buy my meat and produce only from the larger chain store in town. They have a lunch room for their employees...
  8. I have both. The diverticulitis was found 5 years before the celiac. When I first had celiac symptoms I presented with severe constipation and multiple childhood impactions. That is what caused the diverticuli to form. Diverticuli are out pouches in the wall of the large intestine. They are usually found on the left side of the decending large intestine...
  9. If it is just buttermilk it should be fine. It is simply put milk with a lot of cream in it that has started to 'curdle'. You can also make your own buttermilk very easily by putting one teaspoon of lemon juice in a cup of milk and stirring. I just did this for a gluten-free gingerbread mix. I never use an entire container of buttermilk so it saves money...
  10. Gluten does not discriminate, it can effect kidney function as well as other organs. If it is from your body trying to clear the gluten it should ease soon. If it does not let up soon you should see a doctor and make sure they check your blood sugar. Undiagnosed celiac took out my pancreas, the diabetes was discovered by accident in a routine blood test...
  11. Do you react to red meat when you eat it at home? I checked this out because I have recently realized I do not do well with beef. I had eaten it most of the summer when my son was here but went back to my usual fish, beans, pork and chicken after he left. I had ground beef for the first time in a couple months last week and ended up in the bathroom for...
  12. This is only my opinion but I avoid carmel coloring like the plague. It may at times be safe but when I see statements like the ones that the Coke company uses it scares me away. When I found out that Coke uses the codex standards for gluten-free I realized why I seem to react to coke products. I am very, very sensitive and I do not trust the idea that...
  13. My first presentations were neurological. I have had ataxia, loss of reflexes, depression, fibro and migraines since childhood. When full blown celiac set in I also began to have memory problems and parathesias and incontinence. I was misdiagnosed for years (15) after full blown celiac set in and was close to death before it was finally diagnosed. My...
  14. Most allergists do not deal with intolerances, however there is the rare bird out there who does. I was diagnosed by an allergist through an elimination diet. It took quite a bit of looking and calling but I was fortunate and found one. He did the typical skin tests then formulated a nutrient complete starting point for the elimination diet and I called...
  15. I just noticed you have not been diagnosed for very long. It can take a while for the liver to get back on track. I am glad your doc is checking this out but the elevation may come down after you have been gluten-free for a bit longer. Headaches can be associated with gluten CC so if you notice a lot of them double check everything you come in contact...
  16. I always liked the Oil of Olay lotions before diagnosis so I called recently and the rep stated that only the one that is fragrance free and for sensitive skin was okay to use. If you were using any of the others that could have been the culprit.
  17. This stood out to me. Are there gluten eaters in your house? Did you throughly degluten (clean) your frig when you were diagnosed? You mention that the bumps show up first on your hands. This could also be significant. Do you do any arts and crafts type of things? Things that would use paint, glue, clay, cement type products, drywall compound, wall...
  18. If you are not getting ill effects from the dairy I would think your body is wanting calcium. You consumption is not out of line, most of us should have at least this much in our diet and if you are not reacting enjoy.
  19. Julie, I am so sorry to hear this. Celiac autoimmune reactions can attack any area of the body. It chose to attack my twins liver. For him this was found too late so I am glad that your doctor is staying on top of this. Until you know what is causing this be sure you avoid alcohol in all forms and any meds that are metabolized by the liver like Tylenol...
  20. You have given some excellent info here. I also have DH and know it can take a very long time for an outbreak to heal. Some of mine have taken up to 5 months. I do want to ask if you can tell me why buckwheat is included in the foods to avoid list. It has been my understanding that buckwheat is actually a grass. I consume it all the time with no gluten...
  21. Has anyone else noticed the new commercials with the guy who eats their soup every day and then falls down? These ads drive me nuts. It is like they are advertising that their soups give you ataxia. No Gluten Ataxics on their board or in advertising I guess. Oh well just a little rant.
  22. Ah but if you did that well glutened why not study and go for a 100%? Sorry that was the teacher in me talking. I also get problems with my vision from gluten. I went to an eye doctor before diagnosis and he thought I was doing drugs and told me once I was off them my vision would improve I haven't had anywhere near the eye problems I had since I...
  23. The land of the snow. It must be nice to be so close to the falls. You are new, let me take this chance to welcome you. You have found a great place for info with a lot of very nice folks.
  24. I think I was thinking of Oneida, some of the Indian names get confusing. Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips...
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