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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    I think you are talking about joint pain? I don't have joint pain from gluten, but I do get joint pain from eating nightshades (tomatoes, potatoes, peppers eggplant). I avoid it by not eating nightshades. If your joint pain is caused by an immune reaction it could last for weeks or more. If it is caused by inflammation associated with gluten and not...
  2. GFinDC
    Symptoms changing after going gluten-free are a good indicator that gluten is affecting your body. A person who has no issues with gluten should not experience a change in digestion from removing it. So your body is confirming what your antibody tests showed, that you should not be eating gluten. Other people may not understand eating gluten-free,...
  3. GFinDC
    @Jm34It doesn't really make sense to take PPI's and antacids while also taking Betaine HCL. They are directly conflicting with each other. PPI's and antacids reduce stomach acid, while Betaine HCL increases stomach acid. So making a choice on which direction you want to move your stomach acid level is the first thing to do IMHO. No point wasting your...
  4. GFinDC
    I can understand why you are frustrated. The child should not have been taken off gluten before the all testing was completed. The University of Chicago celiac center is a great resource for information on celiac disease. The usual testing process is blood antibody testing followed by an endoscopy to take biopsy sample from the small intestine. They use...
  5. GFinDC
    Hi Marie, NCGS is more common than celiac disease, and it causes symptoms in some people when they eat wheat or other gluten foods. JMG has it right, you would need to eliminate gluten to see if your symptoms change. If you are not celiac but you do have symptoms from eating gluten, you could fall into the NCGS group. Something else you could read...
  6. GFinDC
    I agree.
  7. GFinDC
    Welcome to the forum MarieH33! You can find some tips on getting started on the gluten-free diet in the Newbie 101 thread in the "Coping with" forum section. But the basics are, eat only whole foods for 6 months, no restaurants, no dairy, avoid excess sugar and carbs (starchy foods). Eat meats, veggies, nuts, eggs, some fruit. Fruit has a lot of...
  8. GFinDC
    @JMG, I think I did something like 5 separate elimination diets over the first few years gluten-free. And usually the problem was something I had added to my diet without careful consideration, or a food that I had developed a new intolerance to. Elimination diets are our friends JMG, just the kind of friends we don't like to see often. Those...
  9. GFinDC
    Hmm, you haven't seen complaining yet! We have some real experts at it around here! It does seem like if it's food you should be able to stop it one day and feel better the next. That's what people are used to anyway. But celiac is different because it is not just a food issue, it is an autoimmune (AI) issue. Our immune systems are very powerful, and...
  10. GFinDC
    It would have been better for them to do the DGP IGA and DGP IGG tests IMHO. Although you seem to be IgA deficient so only the DGP IgG would mean anything. Sometimes the only answer we can get is that gluten makes us sick. And that's a pretty good reason not to eat it. Celiac disease testing isn't perfect, and there are no tests for NCGS yet. That...
  11. GFinDC
    The download link on this page tells about the ranges for the test. It looks like your readings are possible? Open Original Shared Link
  12. GFinDC
    Hi Kam, This article might be interesting for you. Kinda medical jargon, but it talks about benign causes of lymph node swelling, which is the most common situation it says. Open Original Shared Link I had night sweats for years myself. There is a thread about night sweats on the forum. If you try the search forum via Google option at the...
  13. GFinDC
    Hi, I am not sure what you are talking about in regards to not worrying about this? Anyway, we are here to help, so any questions are ok. We all had questions when we started the gluten-free diet too. But no, you shouldn't have to worry about kissing until you are 30 or so. That Karen is too lax. Joking aside, it is good you are trying...
  14. GFinDC
    Hi cstark, Eat more food, take Pepto Bismol. More food can help thin the gluteny stuff out some IMHO. Milk of Magnesia may help get it all out faster, which is good too.
  15. GFinDC
    Hi Allgood, This Mayo Clinic link suggests the PCAB test being positive could be related to pernicious anemia, a vitamin B-12 problem. That might be something to look into? I am not sure that is the same test you had of course. But quite a few celiacs are low on B-112 when starting the gluten-free diet it seems. Iron is usually not a problem for...
  16. GFinDC
    Welcome to the forum Sharlotta! If you are trying to learn gluten-free eating, you came to the right place. We do have a thread for beginners called Newbie 101 in the "Coping With" forum section that might help. Also, we have plenty of helpful members who can steer you forward. Feel free to fire away with questions! P.S. If you click the...
  17. GFinDC
    Hi Splishsplashy, There is nothing unhealthy about going gluten-free for 2 weeks, or any amount of time for that matter. The only precaution would be that a person who is planning to be tested for celiac disease should not go gluten-free until the testing is completed. Being gluten-free before testing would make the antibody tests inaccurate. Also...
  18. GFinDC
    Hi JMG, There is plenty of ways gluten can sneak into our diets. My plan when I didn't know what was making me sick was to drop back to a very basic diet for a while and see if that helped. Just eating a few foods that I knew were safe. And not taking any vitamin pills etc while troubleshooting. If things get better after a week then add foods back...
  19. GFinDC
    Hi Allgood, Have you ever scraped your knee? The skin probably formed a scab as it was starting to heal. Even with that scab though, I bet it hurt every time you touched it or rubbed it for a while. You gut is actually skin-like cells, and is considered specialized skin cells. That doesn't mean you'll get a scab in your gut, but that it will...
  20. GFinDC
    Hi Allgood, It can take a year to a year and half to heal your gut, or more. Even a tiny amount of gluten can cause the immune reaction to keep going. So it's real important to be sure you aren't getting any cross contamination of gluten in your food. The best way to start the gluten-free diet IMHO is to avoid all processed foods, don't eat in restaurant...
  21. GFinDC
    A retest sounds like a good idea RaRaLorna, You could also get the other antibody tests done at the same time, called a full celiac panel. The other tests are Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (ttg) IgA Deamidated Gliadin Peptide (DGP) IgA Deamidated Gliadin Peptide (DGP) IgG Total Serum IgA
  22. GFinDC
    Hi cbochner, I haven't take serokill myself, but I know people who have problems getting off prescribed medications. I hope you are tapering off it rather than going cold turkey? Tapering off is perhaps a little easier and safer for your system. Maybe cut the pills in half for a while? When glutened I think it helps to get the gluten out of our...
  23. GFinDC
    Hi Jammy, I am sorry to hear you are having problems on the gluten-free diet. Healing our guts is not always fast, as the immune response is not always shut down very quickly. Also, even a tiny amount of gluten can keep the immune response going, or kick it off in high gear again. Another problem is our gut bacterial flora can be out of whack...
  24. GFinDC
    Welcome to the forum Poodle3! Your doctor seems to be going by the usual celiac disease testing criteria, and looking for both a positive antibody results and positive biopsy result. Without both of those being positive, many doctor won't diagnose celiac disease. However there, are some times when other indicators can be used. It doesn't seem...
  25. GFinDC
    Hi Oniecharles, Id you have DH, then you have celiac disease, no other testing is needed. Welcome to the forum!
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