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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Charks, Labdoor is a site that lists info on various vitamin pills. You might find some helpful info on there. One thing they check is the actual amount contained vs what the label lists. The reason I think it's good for you to review is some vitamin D pills are not really very good in that regard. They aren't all the same. https://labdoor...
  2. GFinDC
    Hi H.A.N.D., You are pretty early in the recovery process. But, that doesn't mean you shouldn't look for answers. I tend to think swelling is sometimes related to allergic reactions. I used to have swelling in my feet/ankles. wrists and face. I gave up a lot of different foods and don't have that anymore. I am not sure just what got rid of the swelling...
  3. GFinDC
    Welcome to the forum Charks! I guess now you know why your mom told you to eat your veggies! One of the bad side affects of gut damage is not absorbing nutrients properly. You might want to have your blood levels of vitamins and minerals checked by a doctor or lab. The vitamins you are taking are good, but there are also a few minerals to consider...
  4. GFinDC
    Hi skifreedom, Yes, the endoscopy is usually done after positive blood antibody tests to confirm damage to the gut characteristic of celiac disease. The endoscopy isn't accurate if you aren't eating some gluten for 2 weeks prior. Antibody levels do not equate directly to a certain level of gut damage. So a low positive may be found or a high positive...
  5. GFinDC
    The Gluten Free Watchdog does gluten testing of foods and other products.
  6. GFinDC
    Most of the time there is an endoscopy done after the celiac blood tests to confirm that gut damage exists. The endoscopy is done by a gastroenterologist and may be scheduled months after the blood tests. if you are not eating gluten for a few weeks before the endoscopy the endoscopy will be useless. So check with your doctor on that. The gluten-free...
  7. GFinDC
    Hi It sounds like a gut flora imbalance or food intolerance issue to me. But the ongoing gut pain could be a sign of low level gluten exposure too. Gluten can be sneaky and get us where we don't expect it. Things like teas, medicine/vitamin pills, other drinks, shared toasters, kissing a gluten eater etc are all possible gotchas. So I suggest double...
  8. GFinDC
    Different labs may use different equipment and processes. They typically publish their own lab specific test result ranges. Any lab may also upgrade equipment or revise procedures and expected tests ranges when they feel it necessary to do so. Since you are on the gluten-free diet for a while, your test results for antibody levels should change. Hopefully...
  9. GFinDC
    I don't know of the book. But there are plenty of hucksters out there looking to make money off desperate people. Promising amazing cures that other people don't know about is a typical deception they use.
  10. GFinDC
    Hi Chris, broccoli- is a brasssica family plant. So you might try other brassicas and see if they cause problems. Tomatoes- are a nightshade, so other nightshades could be an issue. Potatoes, peppers, eggplant are nightshades too. Black pepper is not a nightshade. Pepsi- not sure if it has phosphoric acid or not. Phosphoric acid is in...
  11. GFinDC
    Maybe it's worth an email to the maker to ask what's in the spices? If there is something causing a reaction it would be good to know what it is. Might save you some itching in the future.
  12. GFinDC
    Hmm, i have no experience with FODY ketchup myself or DH. Some people do report getting flareups of DH from high iodine foods though. So maybe that's it? You could wait until the DH settles down and try just plain tomatoes and see if they cause a reaction. That's a slow but fairly reliable way of testing food reactions.
  13. GFinDC
    You can try a google search for celiac in x. X being replaced with your country name. Check some of the articles and see if you can find a doctor that knows about celiac. Maybe give one or two doctors a call and see what they say. That should get you started on learning about the diagnostic process there.
  14. GFinDC
    Hi Cody, It takes longer than 2 weeks for the immune response to settle down IMHO. That doesn't mean you won't begin feeling better, but it does mean the immune system is ready to attack. Also, the gut may not be healed and the bacterial flora may not be restored to a healthy balance that quickly. And people sometimes report feeling more sensitive...
  15. GFinDC
    Hi Dawn, Aldi has gluten-free wraps that work ok for me. They are cheaper than buying the gluten-free bread I think. Most of the extra cost of gluten-free items is for non-essentials. Basic meats, veggies, fish, nuts, eggs and fruit are the same price for all people and are gluten-free. You can try using Mission brand corn tortillas for some bread...
  16. GFinDC
    Happy Thanksgiving Scott, and all the other thankful people out there!
  17. GFinDC
    Hi inkapathic, The celiac disease diagnostic process generally is a two part thing. Usually the first part is to have blood antibody testing for gliaden antibodies. If the gliaden antibodies are positive, then an endoscopy is scheduled to take biopsy samples of the small intestine lining. The biopsy samples are checked for evidence of celiac disease...
  18. GFinDC
    Hi Roy, Here's a link to a list of GI disorders. I am not sure if Crohn's Disease could cause your mother's symptoms but it does cause ulcers in the lower GI system. Eisonophilic esopahgitis is also a GI disorder and does affect the throat and esophagus. But I don't think it causes ulcers like that. https://my.clevelandclinic.org/health/articles...
  19. GFinDC
    There was a list of 5 celiac signs that doctors sometimes used to diagnose celiac without an endoscopy. I think it was developed mostly for young children so they wouldn't have to go through the endoscopy. May have been something a GI group developed some years ago.
  20. GFinDC
    I never saw this before so thot it might be interesting to some people. Apparently this SPAM turkey product is gluten-free per the ingredient list. Although I am not sure what the turkey broth ingredients are. This could be just the ticket for pandemic loners this year. No need to thaw the turkey with SPAM in a can. Just add a can of cranberry sauce...
  21. GFinDC
    Hi Becktoria, There certainly is a lot to learn about celiac disease and eating gluten-free. The endoscopy is done by putting an endoscope into the mouth, through the stomach, and into the first 5 feet of the small intestine. There is about 20 to 22 feet of intestine but they can only reach the first 5 feet through the mouth. Coming in from the other...
  22. GFinDC
    Hi Becktoria, Often a doctor will do a ttg IgA test as a screen for celiac disease. There are also other tests like DGP IgA, DGP IgG, total IgA count, and EMA. This more complete celiac disease test panel is higher cost so it may not be done right away, if at all. Some people don't show positive on the ttg IgA but do show up positive on another antibody...
  23. GFinDC
    Hi Kathy, Getting a medical diagnosis is helpful for some people. But it is not necessary to have it. Medical treatment after diagnosis is sometimes lacking. Some follow up actions that may happen are a referral to a dietician for gluten-free diet advice, (I think you have that covered already), perhaps follow up blood antibody testing in 6 months...
  24. GFinDC
    Hi, My guess is the GI didn't see clear evidence of celiac damage visually through the endoscope. So he / she may have taken more biopsy samples from various spots hoping to get an area that will show damage under a microscope. Sometimes damage is severe enough to see through the endoscope with the naked eye. Sometimes a microscope is needed to see...
  25. GFinDC
    Sometimes they are permanent and sometimes they aren't permanent. It's not a certain thing that anyone can answer that I know of for each person except that person themselves. Some people do a rotation diet to try and avoid food intolerances. That (rotation diet) may help. I can tell you that some foods I tended to eat often are foods I developed intolerances...
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