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Takala

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Everything posted by Takala

  1. Takala
    This sure beats the possible alternative scenarios of being told it's- AIYH (all in your head) Asthma/allergies arthritis not arthritis, fibro Heartburn MS brain lesions Fibro again Gallbladder Kidney cystitis Bone loss Fibroids/cysts/endometriosis Idiopathic (medical term for "unknown cause" actually my favorite, as the doc was cool) Peripheral...
  2. Takala
    Have her retested for celiac by a blood test, and also ask for guidance on getting her tested for other allergies. If none of this pans out, you can try an elimination diet.
  3. Takala
    If you have been on a gluten free diet for a year and a half, eating gluten for TWO DAYS and expecting this to show up as celiac positive in either a blood test or a biopsy is ludicrous. You didn't say what your living and work conditions are, nor if you are still getting cross contaminated. If you are still getting sick, then you either are likely getting...
  4. Takala
    ____________ The gluten reactions are pretty distinct in that I get certain neuro symptoms and I get really sleepy. And after that nap, my sense of balance is off - and I'm clumsier- I have to work on my balance, unlike a regular person, so this is more noticeable to me. I might still be able to do some of the test yoga poses, but I'll be struggling...
  5. Takala
    Pedi is correct, this may not show up on a blood test, but your son could still be gluten intolerant. Long reactions in the beginning, not uncommon until the gut heals. Look out for cross contamination from toasters, cutting boards, colanders, rubber/plastic tupperware, etc. What about shampoos, lotions, pet foods if you have inside pets that drool...
  6. Takala
    You should contact the store manager of that Costco and report the incident. They need to know that "sample lady" is an idiot who was going to make customers sick, if it was not a gluten free soy sauce - did you specifically ask what brand/type she used ? I would never assume anything about samples.
  7. Takala
    There is a brand of soy sauce, San-J Tamari, made without wheat, which is gluten free. Open Original Shared Link I don't know exactly what brand of soy sauce PF Chang's (Chinese food chain) uses in their gluten free menu offerings, but it is something they are calling gluten free. People vary in sensitivity. I consider myself less sensitive than some...
  8. Takala
    This is a new doctor. What was the purpose of the visit, from your point of view ? When a doctor sees a patient, they typically assume that they have come to them for some sort of prescription, whether or not that is true. More concerning is that you told him you've done this drug before, didn't do well on it, and he's still pushing it. Entocort...
  9. Takala
    ______________________ No, these products are dangerous because they would encourage a celiac or gluten intolerant person to be sloppy in their eating habits, and think that they could avoid damage by taking a supplement which is using deceptive marketing practices and misleading statements. Again, the elderly are more vulnerable to marketing scams...
  10. Takala
    Gluten intolerance takes years to slowly attack the inside of the body until there is enough damage that it makes you uncomfortable. This damage is caused by malnutrition and the antibodies attacking your own flesh. Many don't become gluten intolerant or celiac until the are adults. It can happen at any time. Most people take over a decade to be diagnosed...
  11. Takala
    Why would you want to start feeding your celiac mother a scam supplement and gluten again, to make her sick, just because of some slick marketing !? The Alvine Pharmaceuticals link was on the businesswire.com page linked from the celiace alliance site. It was news of a patent being issued so the company could study the proteases they have made, as a potential...
  12. Takala
    I think the spell checker is in your web browser/operating system Gluten intolerance is just like Celiac, or early Celiac, without the diagnosis, I used to say. Now the researchers are refining this definition, but it's still more of an auto immune response to a set of grain proteins gone awry, than it is an allergy. My being allergic to ragweed doesn...
  13. Takala
    Kraft. Also, around Passover you can find kosher, gluten free marshmallows in the specialty foods aisles of some supermarkets. Instant rice treat: take a rice cake and put some marshmallow halves on it, then microwave a few seconds, but not for long, just til they start to puff up. You can put cinnamon on the ricecake. Who needs graham crackers...
  14. Takala
    The only quibble I have with your description is that in the first post you're calling it "Diet Pepsi" when it is actually a generic diet cola marketed in the UK, "Sainbury's," which contains the barley. Not clear for what purpose, but when I compare the 2 ingredient lists it looks like the barley might be to make the caramel color. Don't want to...
  15. Takala
    If you make your own life, you have 2/3rds of it remaining. I have no idea where you live, but where I live, if I drive 20 -30 miles I can find several different types of gluten free dining where I can get my food and my spouse can get regular or he can opt and get gluten free with me, including pizza and Chinese, as PF Changs has a gluten free menu, and...
  16. Takala
    It has to be his decision and not yours to go gluten free, altho you can provide a supporting role. If he wants to continue to eat gluten if it makes him sick, then there is not much you can do about it, and there are plenty of people who have posted here with (partial) positive test results I've seen making entire sets of rationalizations as to why they...
  17. Takala
    Well.... this is sort of a typical mental reaction at first, but, if you keep it up, they should catch on eventually, and start bringing you gluten free chocolate sandwich cookies.
  18. Takala
    If you have to interact with this medical professional again, I would suggest you print out the latest findings from the leading researchers in the field and take a highlighter to the statistics on the number of people with celiac and gluten intolerance, and then another color on the percentage the common doctors are missing the diagnosis on, which is the...
  19. Takala
    See Hadjivassiliou, Gluten Intolerance as a Neurological Illness. Would hate to see what else your GP thinks people are "imagining," as this is a classic symptom for some of us.
  20. Takala
    Yeah, but the gluten intolerance or celiac damages the lining of the digestive tract and causes dairy intolerance. And many of the symptoms you described earlier in the first 2 posts are matching gluten intolerance and/or celiac. I hope that if you are getting gas, bloating, diarrhea, fatty stools, pain in upper rt side and bloody stools from eating...
  21. Takala
    Dr. Hadjivassiliou (I have to break it up into 3 segments Hadji vass iliou ) and Gr
  22. Takala
    I normally do not use "milk" in baked goods or pancakes, after making several batches of breads that had some boxed non dairy milk substitute in it, to which I reacted badly. Water is a lot safer. You can use canned coconut milk and if it's thick, dilute it a bit. There is also this gluten free, non dairy powdered milk substitute called Vance's Dairy...
  23. Takala
    The microwave buns? No, there is something about the combination of that heating process, the speed, and the vinegar water that makes them a bit softer, moist, and rubbery than a dried up type of rice based biscuit. I've also made them muffin flavored with sweetener and flavorings, such as lemon citrus peel, juice, and poppyseeds, and they come out surprisingly...
  24. Takala
    In the U.S. the "official" diagnosis is done with the Medical Professional running that scope down your gullet and then the biopsy finds the damage in the small intestines, but they also want a positive blood work panel first so the insurance will okay the cost of the biopsy scope. Alas, not everybody who has gluten intolerance or celiac successfully tests...
  25. Takala
    More protein, more good fats, more vegetables. Fewer grains. Beans and potatoes and nuts/seeds, avocados, coconut, olive oil, good chocolate, eggs. Peanut butter. Rice pasta and rice cakes. You'll get there. Promise.
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