Takala
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Latest Celiac Disease News & Research:
Everything posted by Takala
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ARCHIVED Celiac Cost Me Everything
Takala replied to ravenwoodglass's topic in Coping with Celiac Disease
Oh, I am so sorry. relatives - meh. need a pffffffffft icon. I have outlived so many. Pets, I mean. Let me give you the upside. If you subsequently adopt dogs from the pound, and they have a wheat allergy, (has happened to us 2x now) you will not only be the first one able to figure it out and get their hair to grown back in or their joints... -
ARCHIVED Rejoice With Me! I Have Good News...
Takala replied to love2travel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey! I remember when you showed up, you said you thought you couldn't do this. Hah ! Congratulations! -
ARCHIVED What Do You Think Of This Article Saying Celiacs Can Consume Gluten?
Takala replied to carecare's topic in Coping with Celiac Disease
I critiqued the article earlier in the publications section. I started something a bit more incendiary here, but decided not to hit "post." This is a terrible, flippant article, ("one researchers says.... " is not good sourcing) and I disagree with the theme and conclusion. The person who wrote it is a business writer and a newly diagnosed celiac... -
Quit hanging around with such losers for "friends" .
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ARCHIVED Help And Advice Deperatley Needed!
Takala replied to Sam81's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Isn't it bizzarro this obsession the medical profession has with wanting look up everybody's bum, when the problem is somewhere else ? Get a digital camera and start taking pictures of that rash right now, write down what you are eating in a diary daily, (ate "shreddies," now look like lobster on Aug 18, want to scratch myself with pitchfork) and make... -
ARCHIVED So Bloated!
Takala replied to AMom2010's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
More likely it's the dairy or soy- allergic reactions tend to be different and more sudden. I'm "less" allergic now than I was before going gluten free. Having your whole auto immune system revved up doesn't help allergies. -
ARCHIVED Omg I Just Had Vinegar In My Chicken Salad Im Itching
Takala replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Was this chicken salad specifically labeled gluten free ? Because who knows what was really in it. They could have marinated the chicken meat before cooking it, etc. And what about the work surfaces the bagel was exposed to, etc, in terms of cross contamination. -
ARCHIVED Gluten Free 4 Days Feeling Weak?
Takala replied to Rocketlegs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
More vegetables, more good fats such as olive oil, avocado, coconut milk. Low carb is tricky, have to use fats for the slow fuel. Try a gluten free B complex vitamin, too. -
ARCHIVED So Bloated!
Takala replied to AMom2010's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The first probable likely culprit is the lactose in the milk. Celiac damages the part of the intestinal lining that deals with dairy, but even normal adults, as they age, may get to where they cannot handle regular milk, just the low/non lactose versions of aged cheese and certain safe yogurts. Some people are further unable to handle dairy at all, including... -
You already have a diagnosis from the allergist, you react to the wheat family of grains. Why don't you want it to be "true?" You actually hold the power to make yourself feel better, unlike some of these other diseases, where the only alternative is treatment with medication which causes bad side effects. You have shown to yourself that you feel better...
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ARCHIVED Anyone Not Have Kids And Not Work Too?
Takala replied to GlutenFreeManna's topic in Coping with Celiac Disease
I tell them how many pets we have and roughly what size property we are taking care of, plus I do a certain sort of volunteer work, and that usually shushes them. If I were "healthy" and working for pay, I would still have a large time conflict problem as my husband, the healthy breadwinner with the ability to keep insurance, needs to have flexibility to... -
ARCHIVED FDA Open For Comments
Takala replied to LDJofDenver's topic in Gluten-Free Foods, Products, Shopping & Medications
no, it would be the opposite. one scenario is that they are getting cross contaminated anyway, and are not as truly gluten - free as they thought they were being. Remember, these adherence evaluations were done by having them interviewed - they said what they were eating - then they were biopsied to see if the intestinal mucosa had fully healed after... -
ARCHIVED Please Weigh In On The "new Pans/new Spoons/etc" Issue For Me
Takala replied to slee11211's topic in Gluten-Free Recipes & Cooking Tips
We get a lot of people here that start out on the gluten free diet and then after a few months they start complaining that the diet does not work, they're still sick, and it must be something else and they must be diagnosed wrong, and they can't figure out why they're still so fatigued and really, they don't think that celiac is just the problem... .... -
ARCHIVED How Many Ppm In A Piece Of Cake?
Takala replied to kellynolan82's topic in Coping with Celiac Disease
Don't eat the cake. It is about 5% gluten. -
ARCHIVED Word Of Caution At Pf Changs
Takala replied to CaraLouise's topic in Gluten-Free Restaurants
I like the San- J wheat free tamari much better than regular soy sauce. But now I don't like soy sauce on sushi at all. I guess I'm evolving. American food manufacturing seems to be de - evolving. Why would anyone put wheat into tofu, anyway ? Are they having some sort of contest to see the most absurd place they can hide gluten where it wouldn... -
ARCHIVED Is Anyone Else Just Angry That Drs Missed Celiac For So Many Years?
Takala replied to HaileyRay812's topic in Coping with Celiac Disease
_______________ And this is a prisoner of his culture, that does not understand that people who can exert control over their immediate environment, (such as growing,gathering,preparing their own food that makes them feel well) are going to seek out success if they have the support of others that see the benefit of that success. And he doesn't appear... -
ARCHIVED Can You Eat Gluten-Free Oats?
Takala replied to Skylark's topic in Gluten-Free Foods, Products, Shopping & Medications
I tried them accidentally in a chip that was not marked as having them, and I reacted. I was surprised. I haven't deliberately eaten them for .... I dunno, maybe 7 or 8 years ? I buy the certified gluten free ones for my husband, because he eats gluten free at home. I haven't really been that curious to re- test them on myself. Re the proposed gluten... -
ARCHIVED Is Anyone Else Just Angry That Drs Missed Celiac For So Many Years?
Takala replied to HaileyRay812's topic in Coping with Celiac Disease
Yes, but try to channel the anger in a good way. You're still relatively young compared to many of us. Just in case, if your testing still comes out "negative," (it happens...) stick with the gluten free diet anyway. The doctors will be more than happy to run test after test according to what the insurance companies will pay for, and I don't think... -
ARCHIVED Hair Getting Less Grey After Gluten Free
Takala replied to Austin Guy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It went darker, but it was not a good dark, as the steel- grey was coming in much darker than the lite reddish blonde- brown I had as a young adult. I remember looking in the mirror under florescent lighting in a restroom when out of the house, and going Oh My God, What Is This with the roots showing up this badly. It's made trying to color it to something... -
ARCHIVED First Time On Plane Celiac
Takala replied to slee11211's topic in Traveling with Celiac Disease
I will use a carry on bag with the handle and the wheels, but then a backpack that I've stuffed my very small purse or fanny pack into as well, so I can be completely hands free if I need to. In the backpack I will have packed the minimum, non perishable gluten free food I need to get through the entire experience, including delays. They don't like backpacks... -
ARCHIVED Can Eating Gluten Cause Damage?
Takala replied to bp1000's topic in Coping with Celiac Disease
Over time, continuously eating gluten does cause risk. In a way, your daughter is lucky that she reacts obviously enough that it cannot be missed as her body rejects it, otherwise, she could be eating gluten and nobody would know it. For us older adults who were not reacting in the "classical" sense, and who did not get diagnosed or figure it out until... -
ARCHIVED Researcher says proposed gluten-free standards are sound - Florida Times-Union (blog)
Takala replied to Scott Adams's topic in Publications & Publicity
And then there is this, from the same page: Open Original Shared Link Yee gads. How do I tell them let the manufacturers continue to make the gluten free tested and labeled oats for those who want them, but leave the stuff OUT of the regular category of gluten free foods so it is not showing up unannounced in things like gluten free chips,... -
ARCHIVED Researcher says proposed gluten-free standards are sound - Florida Times-Union (blog)
Takala replied to Scott Adams's topic in Publications & Publicity
Part of the mess: there is more at the link -
ARCHIVED Researcher says proposed gluten-free standards are sound - Florida Times-Union (blog)
Takala replied to Scott Adams's topic in Publications & Publicity
20 ppm - the "low gluten" $%^&*(*())@+!!! bull pucky manure. The Mark Basch, gluten glutton (name of blog) writer at the Jacksonville.com link has not been gluten free that long, (since Dec 2010) and hasn't been writing about it that long, and I don't think he's cooked gluten free that much yet, so we get dismissive, simplistic stuff like this ... -
ARCHIVED Do You Trust Distilled Vinegar?
Takala replied to mommyto2kids's topic in Gluten-Free Recipes & Cooking Tips
Distilled vinegar is okay. However, if you are a super sensitive, and the distilled vinegar is used in an item that doesn't call out everything accurately, like "spices" or "natural flavorings" the vinegar can get blamed. Also, some vinegars seems to have trace amounts of sulfites, which some can react to as an allergic reaction. If you are mistrustful...