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Latest Celiac Disease News & Research:
Everything posted by mushroom
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ARCHIVED Looking For Some Help For My Son....
mushroom replied to Nolan'smom's topic in Coping with Celiac Disease
As a psoriatic arthritis sufferer myself, I endorse what the previous poster said. My Vitamin D levels were in the pits I actually went gluten free to help my PsA but discovered that I was gluten intolerant too (as well as a lot of other things ) -
ARCHIVED Negative Blood Test?
mushroom replied to scootRN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, and welcome to the forum. Did you get a printout of your blood test results? Sometimes they do not run the total serum IGA; this is a control test to make sure you are a normal IGA producer. If this reading is low it could invalidate your other results. It is always a good idea to get a copy of your test results. That being said, there... -
ARCHIVED Pre Testing Advice
mushroom replied to Dace's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are two additional tests that can be performed, the Endomysial Antibodies (EMA) and the Deaminated Gliadin Peptide (DGP). This last one has been used with fairly good success on children by Dr. Rodney Ford, here is New Zealand, who is a world recognized child celiac pediatrician. I heard him speak a couple of years ago and he thinks this is the best... -
ARCHIVED I Hate Feeling Like I Am Crazy....
mushroom replied to tictax707's topic in Coping with Celiac Disease
I know, it really stinks to have to feel paranoid about everything you put in your mouth Don't let it get you down!. I think your plan following the race is a good one - go back to basics and start again, one by one. It's really the only way to be sure. Good luck with the race Hope you swim at high tide!! -
ARCHIVED What To Expect At Appointment?
mushroom replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I do hope your appointment goes well tomorrow, Becky. -
ARCHIVED General Mills To Debut Gluten-Free Bisquick
mushroom replied to sa1937's topic in Gluten-Free Foods, Products, Shopping & Medications
Make sure to find out what they put in it, and LET US KNOW!! Don't want to get excited for nuffin -
ARCHIVED What To Expect At Appointment?
mushroom replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
However, you will not react so quickly with the steroids in your system Just something to think about. -
ARCHIVED What To Expect At Appointment?
mushroom replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am glad your appointment is soon. I am worried that you are treating the lesions with steroids and avoiding gluten, both things designed to suppress the immune system response, prior to the testing. I am not a medical professional and have not been able to find an online reference to support this opinion, but it would seem that both these things would... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Lurved this whole post Then there are those of us who, despite our damnedest efforts, still pull our mouths into that funny little line (to prevent them opening??? ) when we're applying any cosmetics, just like our muvvers used to, and we used to make fun of them for doing that, and now we finds ourselves doing it too Sure proof of genetics at... -
ARCHIVED Why Cant I Eat Chicken Anymore?
mushroom replied to jasonD2's topic in Food Intolerance & Leaky Gut
From the list of foods that you can eat, try eating them on a rotational basis; if you eat something one day, don't eat it the next. Kinda like conditioning the body to expect different things. This is why I suggested you try and find a sub for rice on alternating days; you may reach the point where your body says "Enough of rice" if you have too much of... -
ARCHIVED What To Expect At Appointment?
mushroom replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know how soon your derm. appt. is, but be aware that if a biopsy is to be done it needs to be done of the skin immediately adjacent to an active lesion, so that there are antibodies present in the skin. If you stop eating gluten now, you may stop producing the antibodies and test negative when you should test positive. If your lesions are starting... -
ARCHIVED Why Cant I Eat Chicken Anymore?
mushroom replied to jasonD2's topic in Food Intolerance & Leaky Gut
Just possibly, consider that you may have eaaten too much of it and sensitized yourself to it. Then there's also the lectin angle I just discovered in my reading that grain-fed beef has a high lectin content, which now explains why I have to eat grass-fed beef. And here I always thought it was the hormones and antibiotics that were the problem I... -
ARCHIVED Has Anyone Been Told They Have "mild Or Early" Celiac?
mushroom replied to DebbieM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is a startling resistance on the part of doctors to tell patients they have a problem with gluten. Most of this is because they have been taught to believe that if it is not definitely "CELIAC" it is not a problem And to say someone is definitely *celiac* unrealistic hurdles must be mounted. If they would just say, "I don't know with your present... -
ARCHIVED Tapioca Vs Potato Starch In gluten-free Flour Mix
mushroom replied to AmandaP's topic in Gluten-Free Recipes & Cooking Tips
I substitute one for the other because I don't "do" potato starch. I believe others substitute the same way because they don't "do" tapioca. The starchy gluten free flours are all pretty similar in the way they react. If a recipe calls for potato, tapioca and rice, then I will add corn starch or arrowroot instead of the potato. They are pretty much mix... -
ARCHIVED Low Iga Serum? And Lab Results For Other Tests
mushroom replied to EmmaFrost's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with frieze - MCV is often overlooked by doctors if it is just slightly high. Mine went back to normal with B12 and folate. And you need to be mid-range on D to really feel good. The sublingual B12 is a good idea, and although I can't see your post right now, you probably need to up your D. Try taking the folate too, or a good strong B complex... -
Hi Msmini, good to see you pop in and give us your good news. Yep, after six months you have definitely beaten it. Enjoy your new smoke free lungs Doesn't it make you proud of yourself??
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ARCHIVED Low Iga Serum? And Lab Results For Other Tests
mushroom replied to EmmaFrost's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, and welcome to the forum. Has none of your doctors told you that you need to be consuming gluten for a valid celiac blood test??? Tests run when you are gluten free have no meaning because in order to make the antibodies which the tests measure, you must be consuming the gluten which triggers antibody production. No gluten = no antibodies. That... -
ARCHIVED Tinkyada Pasta W/ And W/o Rice Bran
mushroom replied to MartialArtist's topic in Gluten-Free Foods, Products, Shopping & Medications
According to the word of Wiki: Lectins are sugar-binding proteins that are highly specific for their sugar moieties. They play a role in biological recognition phenomena involving cells and proteins. For example, some viruses use lectins to attach themselves to the cells of the host organism during infection. Some of us just happen to have a few... -
ARCHIVED I Need Your Input!
mushroom replied to irish daveyboy's topic in Gluten-Free Recipes & Cooking Tips
Okay, David, here goes: Snack food - Snack, Crackle, Pop (maybe too American ) Starters - In the Beginning Soups - London Fog - a Pea Souper Side dish - A bit on the Side Main Course - The Real McCoy Dessert - Your Just Desserts Quick Recipes = Time for a Quickie Baking - Pie in the Sky -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Nope, just a thud and the bottom fell out -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
mushroom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Well I guess the one advantage is you wouldn't lose them Or disadvantage, you couldn't lose them Mo-om, where ARE you??? as mom puts car into gear and guns it Sorry kid, enjoy yourself with Jess, she'll love it. I'll be back later! I just notice that I rolled over my post 2000!!! Spending too much time on this place Anyone heard from... -
ARCHIVED Finger Nail Abnormalities
mushroom replied to k2626's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
All my fingernails, bar one, have come back to their normal strong selves - no more horizontal lines and weakness. My right thumb nail still splits vertically, though -
ARCHIVED Tinkyada Pasta W/ And W/o Rice Bran
mushroom replied to MartialArtist's topic in Gluten-Free Foods, Products, Shopping & Medications
I personally would avoid the rice bran because of the lectins in it. -
Okay, Americans bake apple pies, as American AS!! Those of British extraction tend to love meat pies, but when it comes to apples, apple short cake is the way to go. I have a friend who bakes ASC in her woodburning stove (yeah, she has a modern kitchen, but she's a farmer's wife and when they remodelled she wanted to keep her old stove too. We loved to...
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ARCHIVED Trader Joes Rice Milk
mushroom replied to jasonD2's topic in Gluten-Free Foods, Products, Shopping & Medications
Apart from your question, MORE rice, Jason? Why don't you try the hemp milk if you haven't already? I love it and it would get you away from so much rice