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mushroom

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Everything posted by mushroom

  1. mushroom

    ARCHIVED "cheating"

    mushroom replied to klin03's topic in Coping with Celiac Disease

    When I get glutened now, it is generally overwhelming nausea - the kind where you want to retch and have too much saliia and just can't think of anything else.
  2. mushroom
    Also Earth Balance makes a soy-free spread - you have to look for the tub with the red writing on it.
  3. mushroom
    You say that both his IgA and IgG have tested low (the IgG in the past), so how can you believe tests that are based on your son being a normal producer of these antibodies. Normally if the IgA is low they rely on the IgG, but if that is low too I would suspect that another endoscopy would be the only way of of diagnosing because the blood tests won't work...
  4. mushroom
    As far as I know, clotrimazole is an anti-fungal, not an antibiotic, although it acts like an antibiotic. It would not be available in over-the-counter forms if it were an antibiotic.
  5. mushroom
    My story is anecdotal only, about my brother. I come from a family of gluten intolerants; it wasn't clear at the time we were all living together, but in retrospect it all fits together. My brother had major symptoms after drinking beer with the boys. He also developed a seizure disorder in his 40's. It was really neither petit mal nor grand mal; He...
  6. mushroom
    Your daughter's tTG is in the equivocal range, but her DGP (here called Gliadin Peptide) is positive for celiac. The DGP is the newest and probably the most specific for celiac disease. If I were you, since your daughter is on the verge of adulthood, I would have her see a regular gastroenterologist rather than a pediatrics GI. She is entering a new...
  7. mushroom
    Or encase yourself in plaster and go as a home-baked gluten free loaf (and let Mark be Wonder Bread).
  8. mushroom
    Hi and welcome to the board. It sounds like the first thing you need to do is get a copy of your test results from your doctor (this is good practice always, you need to be proactive in your health care and another pair of eyes looking at the results is a good idea ). Each testing lab develops their own range for negative, possible, and positive...
  9. mushroom
    Okay, I remember the show but never did watch it.
  10. mushroom
    T'would go way over my head Who the heck is Ellie May?
  11. mushroom
    I can. It was a hookers and johns party - either a high class callgirl or a street hooker. I chose the latter, made my own costume (NO, I did not just raid my wardrobe ) Hubs was a sailor.
  12. mushroom
    I would more likely term it ignorance and/or willful negligence.
  13. mushroom
    Lisa, you might try N-acetyl Glucosamine (NAG) instead of just plain glucosamine. It contains the specific sugar that the lectin wheat germ agglutin (WGA) binds to in the villi. I would link to an article on Celiac.Com but my copy/paste function is kaput. Do search for an article called The Dark Side of Wheat: New Perspectives on Celiac Disease and Wheat...
  14. mushroom
    Welcome to the board, Laura. I hope you get lots of responses because this is a great community of friends helping friends. I am sure catsmeow has told you that what you have is not actually an allergy, but an autoimmune response to gluten. Your body makes antibodies to gluten that can cause damage to many parts of the body - most commonly the intestine...
  15. mushroom
    I was considering boycotting all stores that try to hide their gluten-free stuff, but then, if they don't sell any it just means one less place that carries it. What to do? What to do? (I've tried threatening them, told them I drive past their market to shop somewhere else. Any other ideas on how to get them to have a dedicated gluten free section...
  16. mushroom
    I keep some good frozen shrimp in the freezer. That way all you need is an avocado to make a shrimp-stuffed avocado on a bed of salad, and take a baguette of Against The Grain out of the freezer (I like it toasted - either as bruschetta or just the little toasts hot with butter). Drool..... Nearly all of my previous go-to meals are now out of bounds
  17. mushroom
    You could always ask for olive oil and wine vinegar on the side. But then, maybe you like the creamy dressings.
  18. mushroom
    There is also the possibility that you are reacting to the lectins in the corn, like I do. I can eat highly refined corn as in corn starch or high fructose corn syrup, but any corn-containing food that has any trace of the skin in it - corn on the cob, corn chips, polenta, etc., gives me a gluten-type reaction. The lectins are the plant's defense against...
  19. mushroom
    You are asking for certainty in an uncertain world. Without doing a full gluten challenge there is no way of knowing if you have celiac disease. And even if you did the challenge, the results could still be negative if you have non-celiac gluten intolerance. You don't mention if you feel better when eating gluten free (the link you posted did not work...
  20. mushroom
    When I came to the U.S. (from a non-snake country - yep, St. Patrick visited NZ too) I was scared sh*tless of snakes. On our drive across country (I was a non-driver then) hubs pulled over in Nevada for 40 winks and I was afraid to get out of the car, seeing snakes and scorpions, and tarantulas too, under every sagebush. It was only when a yucky bug flew...
  21. mushroom

    ARCHIVED How About In Or Near Ct?

    mushroom replied to rml97's topic in Doctors

    Many doctors now will diagnose on the basis of symptoms, positive blood tests and response to the diet. However, I did misspeak when I said "diagnosed". He was presented with positive blood tests for celiac, and merely ordered the biopsy to confirm the diagnosis. Without "bashing" Dr. Hyams, I think he should re-evaluate his stance that there is no...
  22. mushroom

    ARCHIVED How About In Or Near Ct?

    mushroom replied to rml97's topic in Doctors

    With due respect for your feelings about Dr. Hyams, maitrimama, your experience was a little different from the OP's in that Dr. Hyams was presented with a diagnosis by blood test of celiac. He was not asked by you to make the decision as to whether or not to test for celiac disease. This tends to be the critical factor for celiacs -- finding someone who...
  23. mushroom
    Reactions for some people can last longer than a week; next time you are tempted to live dangerously realize that you may suffer from it for a long time. There is nothing like experience to learn from. Did you have a full thyroid work-up or just TSH, free T3 and T4, or maybe just TSH? Doctors are often reluctant to do full thyroid testing. One...
  24. mushroom
    Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer. I am certainly glad that eating gluten free has...
  25. mushroom
    Unless you had been eating lots of barley and rye, one would expect a negative tTG after nine years on a gluten free diet. It has been a while since I dealt with B12 ranges so can't comment. However, I am confused. When was the B12 run that you had only been gluten free for a week? Was that after a three-week gluten challenge. Three weeks is generally...
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