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fedora

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by fedora

  1. fedora
    leelee20, Why were you getting more tests done? Apparantly you have some other health issues. What were they before you started eating gluten again? Maybe you can't eat soy. There are scientifically documented cases of people having celiac disease without the 2 main genes, DQ2 and DQ8. This percentage is small, but real. It irratates me that big...
  2. fedora
    HI, I would like to add something about the chest pain. I had a horrible one last night, but mine is not reflux. Though I believe for many it is. I have skeletal issues. My bones go out of place all the time. I joke that I wish I was married to a chiropractor. I do believe this is glutten intolarant related. When I get my terrible chest pains, it...
  3. fedora
    hi, I wanted to let you know you are not alone. Although people may have varying neuro/mental symptoms, they do occur and are real. It could be antibodies attacking the nervous system, or vitamin or mineral deficiency. In my life (but not all at once or every day)I have had severe PMS, mild bipolar behavior, depression, getting stoned out of nowhere,...
  4. fedora
    weird, I thought I posted on here, but it did not show up. I have many mental symptoms(I'll spare you all the details), some have completely gone away!!!!!!! Instantly. Some have seriously improved. I haven't had PMS mood symptoms either. I would have totally blamed that on hormones, not gluten. But it is true. I don't even bloat up before my period...
  5. fedora
    Last wednesday, my daughter had blood drawn. They said the results would be in Friday or Monday. I waited very patiently. Today I called the clinic. The Dr. called me back and said everything came back normal. I was like oh. He said the large food allergy panel came back negative. It was the RAST test. Which is great. I asked about the thyroid, kidney...
  6. fedora

    ARCHIVED Dr. Kenneth Fine

    fedora replied to annacsmom's topic in Doctors

    No, he hasn't. They told me on the phone that he had been spending more time on speaking and getting the word out about food intolerances. They said he was planning on having it submitted at the end of the year.
  7. fedora
    Wonka, Wow. You have triplets. I had a 3 year old and twin newborns, not triplets, but alot going on. No one made the too many kids already in the world comment, but we got called a herd. Now lots of the families we know have 3 kids. We were trendsetters around here.
  8. fedora
    I checked out that link "the immune changes in celiac disease are unlikely to play a role in Alzheimer's disease. In control groups none was positive for anti-endomysium antibodies." FINALLY some good news
  9. fedora
    yes, that makes perfect sense. I have so much anxiety, depression, mood swings etc. Now that I am off gluten I feel kind of stale. No mood swings with their low lows and terrific highs. But that is fine by me!!! I am glad some have found relief like me. I hope it helps my daughter too.
  10. fedora
    What did you eat from the party bag? You said they were individually wrapped. I got sick from hershey's kisses at valentines. They are supposedly gluten free. It was really bad.
  11. fedora
    I live in a area with a unusually high amount of pot smokers. I have seen teenagers, pregnant women, nursing women, adults and seniors smoking. I have heard, but never seen, of kids smoking here. I have never heard of anyone starting to bob or shake from pot. Some people do get amped up from it. It is more of an upper than a downer for some. No bobbing...
  12. fedora
    Ditto what Cruel shoes said. No old cast irons, non stick pans, wood spoons, cutting boards, plastic. These should all be new( reasoned my cast iron though). Eating out is dangerous. I would encourage him to take his lunch. Some of my gluten free friends react to all vinegar, even apple cider. Not me though. Has he introduced a new food or one...
  13. fedora
    Nothing this extreme has happened over gluten. I get just a That sucks. But when I explain I feel better, they are glad for me. They could have just said the pies were good there. What this really reminded me of was when I had twins 7 years ago. Most people thought they were adorable, but some jerk would say things like "ouch" or "I would have run...
  14. fedora
    ah, how frustrating. I hope you can get in sooner than that. Make sure they run the full celiac panel, dont let them convince you otherwise. I hope you get answers soon. Let us know
  15. fedora
    I had 39 on anti gliadin and 18 on transglutaminase. I had been gluten free for 3.5 weeks and on a restricted wheat diet for years.
  16. fedora
    hi, The almond mild is blue diamond. some of the nuts are blue diamond. The other nuts are organic from the natural food stores. They are just plain almonds. I don't think they were cced. I have never heard of nuts being sprayed with wheat starch. That's crazy. How would I know?
  17. fedora
    hi, My tests were positive thru enterolab. I would have been confused if they had not been. They were very friendly and helpful when I called. Personally, I would call. EVERYONE makes mistakes. I would say, I DO have a problem with gluten. I think your tests may have messed up on my sample. Would you be willing to redo this? If they are hesitant...
  18. fedora
    I may be unable to eat almonds. I have been doing very well off gluten. I also went off dairy. While on gluten I had bad left shoulder pain, neck pain,TMJ-left jaw, and left knee problems. They went 95% away!!!! Truly a miracle. A week and a half ago I introduced almonds into my diet. Nuts and milk. A few days later my joint pain came back for a...
  19. fedora
    I had cut back on dairy alot. But now I get real sick, even with butter. I will spare you the terrible details, but it was the sickest I have been in years.
  20. fedora

    ARCHIVED Tough Times...

    fedora replied to Shawn's topic in Coping with Celiac Disease

    I was at the grocery store and the gluten free cookies were on sale. I bought 8 boxes!!! I don't binge on them, just when I absolutely need a treat they are there. I keep a box in the car. I had to get one out during the kid's akido pizza party. I had one today while the kids were eating Easter candy from school. I also have wonderful gluten free chocolate...
  21. fedora
    hey, Has anyone else noticed a correlation between gluten intolerance, being gluttened and nightmares. I just started thinking about this the other day. My DD gets nightmares and has some other symptoms of gluten intolerance. We are awaiting test results. I Have had nightmares on and off my whole life. Thinking back on it, I had more during times of...
  22. fedora
    We are rooting for you. I agree with cruel shoes, post your results up here when you get them. Make sure you get what the normal ranges of the tests were. also see if they tested for your Total IgA levels. Many people don't score high on their bloodtests but still have positive biopsies. I was already gluten free when I read up on all the tests. There...
  23. fedora
    Wow, what a great response. I was originally laughing at the 4 horsemen, but really appreciate the wonderful feedback on animals. I pictured these grusome Middle Earth evil creatures riding in with gigantic shafts of wheat or corn in hand or strapped to their back. All to reek havoc. My dog is 11 and in pretty good health except some aging. We have...
  24. fedora
    I read this entertaining informative article(ok, parts of it) on allergies in pets by this vet. His name is Dogtor J, Dr. John Symes. He is a celiac. "The other
  25. fedora
    Thanks for replying. I took my daughter today. She really wanted to go. I would have been fine just taking her off gluten. We do have a very supportive community with lots of awareness of gluten intolerance. She insisted(at 7) to get checked out. I am really rather proud of her. Miracuously, it went better than expected. The dr. we saw was okay...
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