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fedora

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by fedora

  1. fedora
    mamaw, thanks for responding. I hope your eyes improve. How long have you been gluten free? His eyes are healthy except for this horizontal(I accidentally said vertical before) misalignment. A patch won't help this. When he looks all the way up one iris is lower than the other. He has no symptoms of thyroid problems. he has never had steriods...
  2. fedora
    I recently posted about my son's eye alignment. He looks fine, but when he looks up as high as he can, you can see the iris on one eye goes up higher than the other. I mistakenly called this a vertical misalignment. It is actually a horizontal misalignment(oops). We discovered this because when he was reading he saw triple!!!!He would close one eye while...
  3. fedora
    I have back problems. They make my shoulder hurt so bad. When I ate gluten it was worse. Now that I am off gluten it is better in my shoulder for sure. sugar makes it worse too. My back problem is related to joints in my spine. My dr says it is due to my makeup, but that if certain foods make it worse than avoid them. If your pain does not go away...
  4. fedora
    I will pray for her, and you. I know how hard it is to watch our children suffer. I am 32 and I HATE needles(it is the reason I did not attempt to get a formal diagnosis). Good luck, I hope you find out what is going on and that it is easily fixable.
  5. fedora
    I wanted to bring this post back up. I usually shower, but when I take a bath I get head itching in the middle of the night. I use the exact same products(all gluten free). I shower first. Then I soak in a clean bath. This last time I even rinsed off my head again after getting out. I still itched like crazy. It is the lower half of the back of my...
  6. fedora
    Lizz, the thing about the half celiac genes is they are proven to cause a genetic gluten intolerance, but it does not usually reach the level needed to destroy villi. My theory is that if gluten intolerance is triggered then given enough time it probably will eventually reach the threshold to cause villi damage. This will just take much longer. This is...
  7. fedora
    When dealing with others I find it best to just tell my story and really emphasize the parts that I am trying to get across. I don't want to offend anyone and say your kid is awful, I just talk about how gluten made me awful and I am much more pleasant with out it. With friends I can be direct. Mom23boys, I wouldn't get "drunk" I would get stoned...
  8. fedora
    Ursa, Did you have problems with your eyes? I remember before you said you had bad leg pains. I did too as a child. It is sad when he cries from pain. Right now they are giving his eyes time to try and realign on their own. He was already reading with only one eye open. The dr. says he needs to be reading with both eyes open more. His is a misalignment...
  9. fedora
    Me too. The thing I hate about my intolerance is how it made me a worse mother It just breaks my heart. I felt like I was having a fight or flight response often. My dr. said I have an overactive immune response. He was right. Now I feel much better and calmer. Bellyfat(sorry), Total IGA should have been run. You can check with the drs...
  10. fedora
    Thanks for responding. What you describe happens to me too. I also use to get upper eyelid twitches on my left eye and sometimes it would droop. This was a more rare symptom for me. My son actually has issues with his eyeballs. They look fine but they are not aligned correctly. I don't know if this has any thing at all to do with gluten, just checking...
  11. fedora
    The genes are seperated into an alpha part and a beta part. The DQ2.2 gene I have is half of the celiac DQ2.5 gene because it has the identical beta part as the DQ2.5 gene There are actually several kinds of DQ7 genes. Of these some of them have an identical alpha part as the DQ2.5 celiac gene. So the DQ2.2 gene and the correct DQ7 gene can form a complete...
  12. fedora
    HI Liz, your HLA-DQB1 Molecular analysis, Allele 1 0201 is the celiac gene DQ2.5(commonly known as DQ2) HLA-DQB1 Molecular analysis, Allele 2 0601 is a DQ1(subtype 6) gene also known as DQ6 My daughter has this gene, but I don't know much about it. Your daughter has the other half celiac gene DQ7(DQ3 subtype 7) So you have positive blood tests...
  13. fedora
    My son just got diagnosed with a vertical misalignment of his eyes. It is not noticable when looking at him. It causes double vision while reading. Has anyone linked eye misalignment with gluten intolerance. He has not been tested at all for celiac or gluten intolerance. Thanks
  14. fedora
    Liz, sorry to be confusing.I only have two genes. Here is what my enterolab gene result says: HLA-DQB1 Molecular analysis, Allele 1 0202 HLA-DQB1 Molecular analysis, Allele 2 0501 Serologic equivalent: HLA-DQ 2,1 (Subtype 2,5) My DQ2 gene is DQ2(subtype 2).Also known as DQ2.2. It has been proven to cause genetic gluten intolerance...
  15. fedora
    hope I didn't offend you. I was definately not suggesting that was what you should say to your husband. I am probably not anywhere near as religious or conservative as you, but have managed to stay married for 13 years(since 19 years old). I am glad your tests were positive. Did the diet make you feel better? Were you still having problems? The results...
  16. fedora
    well, everything was negative except the antigliadin IgG test. This can be high for other reasons besides celiac. However a negative test can not rule out celiac. I know it is hard with a child. I have been dealing with my daughter,7, and this. I hope the diet helps him, cause then he will feel better. Your lucky his dr would diagnose so easily. ...
  17. fedora
    my daughter is 7 also!!!! We live in northern california(around Eureka). she has not been diagnosed celiac but is now on a gluten free diet. We are seeing if it helps with her issues(not growing, mouth sores, moodiness) She loves to write and would probably be interested in a penpal. We know lots of people who don't eat gluten, but they are all adults...
  18. fedora
    I am so glad your test was positive. congradulatons on a diagnoses. If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again. I would have told my husband to F off. But that is me. When you got your enterolab results, did you...
  19. fedora
    I wanted to say that I did not get the blood test or biopsy. I went on the diet then did the enterolab tests. my results were positve for gluten, casein, and tTg, I had no malabsortion, not even close. I have DQ1,5 and DQ2,2(the non celiac gene) Going off gluten fixed almost all my problems except for one my dr. says is unrelated(a genetic spine joint...
  20. fedora
    cloudy urine and peeing alot are symptoms of UTI and diabetes. Even if you don't have diabetes your blood sugars could be off.
  21. fedora
    I take floravital liquid iron and vit b supplement between meals. I like the way it tastes. I take it with a little chicken or fish(any fish, poultry, pork, or beef will do) and vit c. This helps absorption. Tannins(coffee and tea), phytates(in legumes and whole grain cereals),calcium, and phosphorus, fiber all inhibit iron absorption. I JUST took...
  22. fedora
    me, my twin pregnany I think I had celiac bad from9 to 13 years old. Then I went into the teenage remission thing. I still had some symptoms, but was not afraid I was dying anymore(for real I thought I might be dying). After I went off wheat at 19 for awhile, I got more healthy. I had one child at 22, then at 25 had twins. My rashes on my hands began...
  23. fedora
    hi, it is okay to be angry, feel it, process it,and important to move on from it. I was the sick child. I was dismissed, my dad never acknowledged there was something wrong with me and my mom was so overwelmed with terrible family situations that she did not fight for me. Finally at 19 I gave up wheat. After I got better I went back on it for a few...
  24. fedora
    I almost always had my period ever month just not clockwork like now. It is EVERY 28 days sharp now. Also before I had begun to have a few really long cycles(43,45, 48 days long) every once in a blue moon. My PA said I was not ovulating during that time based on symptoms. The thing is I was very fertile in my early 20s. I dropped two eggs at 24 and had...
  25. fedora
    I can understand your denial if you only had 2 symptoms that you did not consider awful. I cheated on and off with wheat for years before I gave it and all gluten up, not cheating. BUT the thing is that you have celiac disease and on a gluten filled diet you run a higher risk of several cancers. You are getting married, you want to be there in the...
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