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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Celiac.com 08/25/2021 - For people who are old, pregnant, or suffering from compromised immune systems, listeriosis is a serious food-borne illness that is fatal for about 20 percent of patients, even with antibiotic treatment. Now...
  2. I also want to mention that if you wanted to be screened for celiac disease using a blood test, that you need to keep eating gluten for at least 6-8 weeks before the test. You could, of course, just try the diet to see if it helps, but this approach could also cost you knowing whether or not you have celiac disease (~1% of the population). Unfortunately...
  3. I've never heard of a hair analysis test to determine allergies or food sensitivities, so I can't speak to that. Can you share more about this test? I'm a bit skeptical here, but it's certainly possible that there is a newer technology or medical test that I'm not aware of.
  4. So your tTg was negative, so likely no celiac disease, but given your symptoms you can’t rule out NCGS, so perhaps continue your gluten-free diet, as it seems to help.
  5. Unfortunately your doctor was incorrect about celiacs all being skinny, actually many can be obese because they overeat because they feel like they are starving due to vitamin and mineral deficiencies. Because your sister has it means your chance of having it is around 44%. Given your test results, which are incredibly high, and your family history...
  6. Yes, I agree with @trents, and fully understand your decision not to do a gluten challenge.
  7. Celiac.com 08/24/2021 - We've written about high rates of tissue contamination in reprocessed duodenoscopes, and the FDA has warned about the deadly potential for infection in such cases, and encouraged the transition to disposable duodenoscopes...
  8. Do you include oats in your diet? Unless they are gluten-free oats they could have trace amounts of gluten on them, and some celiacs can't tolerate oats at all, gluten-free or not. Xanthan gum, and other gums like guar gum, used often in gluten-free foods, and they can cause IBS-like symptoms in many people.
  9. Welcome to the forum @janet.brunson. You are right, Dapsone can have some very serious side effects, so if you can avoid using it by keeping your diet 100% gluten-free, it's a better option. Another thing to consider, which is mentioned earlier in this thread, is that foods that are high in iodine can also trigger DH flareups, so many with it also avoid...
  10. Welcome to the forum. I merged your topic with the older one, as this topic is still active. Some people here have discovered that holding their baby for so long using the same arm caused their lines.
  11. I know that @knitty kitty and @Posterboy have posted extensively on nutrient deficiencies, so perhaps they can chime in here, but with iron absorption I do believe that there are tests that can be done to detect certain issues with being able to absorb iron. Also, be sure to take high dose vitamin C, especially when eating foods high in iron like red meat...
  12. Welcome to the forum! I believe you are asking about a safe list of ingredients/foods, which is here: Also, here are the forbidden foods:
  13. I almost forgot about this thread, which I believe has more posts than any other on the forum!
  14. You definitely need to eat a certain level of iodine, otherwise you could have serious health issues. Most people plenty of iodine in their foods, but for some people with DH it is important to not eat foods with high levels of iodine, like certain sea foods, sea weed, etc. Nobody should totally eliminate all iodine.
  15. Welcome! One other thing to consider is that gluten-free breads often use xanthan gum or other gums, and in some people, even though they are gluten-free, they can cause IBS symptoms:
  16. Welcome to the forum! Can you also share the cut off markers of each test results for their positive level? Each lab uses a different scale so it's hard to tell exactly where you fall based on just the numbers you shared. To answer your main question though, many celiacs are asymptomatic, or have symptoms that may seem unrelated, but go away once...
  17. It sounds like @Lindquist may have had an endoscopy for celiac disease, but the only way to be certain would be for you to confirm this. Also, to be screened for celiac disease using a blood test you would need to eat gluten daily, about two slices of bread, for at least 6-8 weeks. To me it certainly sounds like you may have undiagnosed celiac disease, especially...
  18. Welcome to the forum. If you got a blood test for celiac disease feel free to share the results. Sometimes negative isn't fully negative (perhaps you had elevated antibody levels, or low serum IgA which can skew the results, and perhaps they didn't do a full celiac disease panel. For most people with non-celiac gluten sensitivity they must remain 1...
  19. Celiac.com 08/23/2021 - Ever worry about whether your doctor is properly knowledgeable about the risk of nutritional deficiencies for celiac patients on a gluten-free diet? A gluten-free diet offers the best symptom relief for patients...
  20. Welcome to the forum @Lindquist! This thread is a few years old, so the OP may not reply to your post. Are you also taking a general B complex that includes other B vitamins? You may have additional vitamin and mineral deficiencies as well. How long have you been gluten-free?
  21. No worries, that came to mind because I recently ate a product from Costco call "Keto Krax" that are dark chocolate with almond. Sounds good right? I though I got some gluten contamination, but later realized that it contains an artificial sweetener, that is probably indigestible for many...at least it is for me, and it's called erythritol (ear-RITH-ri-tall...
  22. Celiac.com 08/21/2021 - Even with a clear declaration by the FDA that all distilled alcohol is gluten-free, we still get a lot of questions about alcohol, and cocktails. Specifically, get a lot of questions about gluten-free cocktails...
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