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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    Welcome to the forum! It can take up to 2 years for some of these symptoms to go away, possibly even longer. This category is devoted to articles on this topic: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
  2. Scott Adams
    Welcome to the forum. The thread you posted in is pretty old, so they may not see your post, but I'm glad you found us! It sounds like you are self diagnosed with gluten intolerance, which is now called non-celiac gluten sensitivity, for which there currently isn't a screening test, but up to 10x more people have than celiac disease. It also sounds...
  3. Scott Adams
    I did not realize that such services were available, so it’s interesting to learn of this possibility.
  4. Scott Adams
    No, I believe the goal of the GliadinX study would be for urine samples to test negative, which would mean the gluten was neutralized before it could cause any damage.
  5. Scott Adams
    Be sure to keep eating gluten daily until all celiac tests are finished.
  6. Scott Adams
    Welcome to the forum! If I am reading your results correctly, it looks like you have one positive test for celiac disease: t-Transglutaminase IgG my value: 6 - U/mL 0 - 5 U/mL - H It's a bit less specific than the tTG IgA, but still a positive test. At this point your doctor may want to schedule an endoscopy to confirm a celiac disease...
  7. Scott Adams
    I understand your point, however, obvious classic celiac disease symptoms are often overlooked by doctors, and if a person has undiagnosed celiac disease any meds would simply mask those symptoms, not treat the cause. Too often this is the case. Of course there are examples of people who need such meds, but I believe the first step would be to address the...
  8. Scott Adams
    I agree with @trents and your doctor seems to be missing some key information. At this point you might be able to say that you have non-celiac gluten sensitivity, but not celiac disease. Around 10x more people have NCGS than celiac disease, and unfortunately there isn't a test for it, yet the treatment is the same, a gluten-free diet for life. Perhaps your...
  9. Scott Adams
    Welcome to the forum @Christy Sue, please let us know how your tests turn out. Be sure that you've been eating ~2 slices of wheat bread per day in the 6-8 weeks leading up to the blood tests, and 2 weeks before an endoscopy.
  10. Scott Adams
    and here is a recipe:
  11. Scott Adams
    I've had discussions with the owner of GliadinX and taking 2-3 pills will not cause any issues, besides making it more expensive for you. I've taken up to 3 when I got accidental gluten exposure, and this product review is about my mother's experience, and is a true story: I can't recommend knowingly eating gluten, for example from a shared fryer--I...
  12. Scott Adams
    Thank you for posting this...tons of info here!
  13. Scott Adams
    We've done several articles on these potential treatments, and Larazotide Acetate seems to be ahead of them all at this point: https://www.celiac.com/search/?q=Larazotide&quick=1&type=cms_records2&search_in=titles I don't believe any are designed to allow you to eat gluten regularly, but feel free to correct me if I'm wrong on this.
  14. Scott Adams
    Thanks for pointing out a new product, as I've not seen them here in the USA yet: https://www.nestle-cereals.com/uk/brands/products/nestle-gofree-corn-flakes Hopefully they will also show up here at some point. If you try them, please let us know how they are.
  15. Scott Adams
    Welcome to the forum. Were you gluten-free at all before your blood tests and biopsy? If so, this could create false negative results, as you should have been eating 2 slices of wheat bread per day for 6-8 weeks before the blood test, and 2 weeks before the biopsy. I also want to point out that around 10x more people have non-celiac gluten sensitivity...
  16. Scott Adams
    For around 3 years now I've been taking GliadinX whenever I eat in restaurants. Full disclosure, they are an advertiser here, but before they became an advertiser I had already read studies on AN-PEP enzymes and their ability to break down gliadin in the stomach, before it reaches your intestines. Multiple studies have been done that show AN-PEP does this...
  17. Scott Adams
    The studies that have been done focus on those diagnosed with celiac disease who eat gluten, and the cancer risks drop to nearly normal after a year on a gluten-free diet. I've not seen studies done on those with non-celiac gluten sensitivity, but it would not surprise me if they also had an increased risk due to inflammation. However, the overall risk is...
  18. Scott Adams
    Interesting article, thank you for sharing it! I've always thought that stress hasn't been researched enough. Here are some older articles on stress and celiac disease:
  19. Scott Adams
    Welcome to the forum. You definitely had extremely high results on your blood test. I think your doctor is right about being happy with your current results, and it may take you even longer to get them down close to zero, which should be your goal. Be sure you're not getting hidden gluten, for example if you eat out in restaurants it's pretty common, including...
  20. Scott Adams
    Thanks for sharing, as I've not heard of this amino acid before. It looks like some people with dry eye or lung issues take it: https://www.webmd.com/vitamins/ai/ingredientmono-1018/n-acetyl-cysteine-nac It's interesting that it's helped your symptoms, and hopefully others will chime in here about their experiences with it.
  21. Scott Adams
    I agree, all foods have shot up, but the gluten-free food prices are astronomical now. The gluten-free bread we get at Costco has gone up 30-40% in just a year. I'm not sure if you saw this article, but in the UK it's the same:
  22. Scott Adams
    The definition of "Science is the pursuit and application of knowledge and understanding of the natural and social world following a systematic methodology based on evidence. Scientific methodology includes the following: Objective observation: Measurement and data (possibly although not necessarily using mathematics as a tool) Evidence." So when it...
  23. Scott Adams
    Welcome to the forum. Since you're recently diagnosed, this article may also be helpful:
  24. Scott Adams
    Kettle River Products, an Askov, Minn., establishment, is recalling approximately 1,464 pounds of chicken alfredo pizza due to misbranding and an undeclared allergen, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The product contains wheat, a known allergen, which is not declared on the product label. ...
  25. Scott Adams
    Welcome to the forum. If you would like to get tested for celiac disease again, you would need to eat gluten again, specifically a couple of slices of wheat bread per day for 6 to 8 weeks until you take another blood test. If not, it’s likely gluten sensitivity and the outcome is the same—a gluten-free diet, as @trents mentioned.
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