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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Welcome to the forum! There are two medically recognized conditions in those who can't tolerate gluten: 1) Celiac disease, which around 1% of people have, and 2) Non-celiac gluten sensitivity, which around 10% of people have. There is currently no test for the latter condition, NCGS, but if you have either a gluten-free diet is the only way to avoid...
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Trintellix (10mg)
Scott Adams replied to kels35's topic in Gluten-Free Foods, Products, Shopping & Medications
The ingredients you listed look gluten-free. You can also search here for the medication, where it also looks to be gluten-free: https://dailymed.nlm.nih.gov/dailymed/ -
IBS & Possibly Undiagnosed Celiac Disease
Scott Adams replied to cricketboots's topic in Related Issues & Disorders
It's better to learn about you having celiac disease later than never! It will be interesting to see how the gluten-free diet may affect your other issues, which definitely may be related to undiagnosed celiac disease. We've summarized much research on mental issues and CD here: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/schizophrenia... -
Covid caused reoccurrence of DH without eating gluten
Scott Adams replied to CDFAMILY's topic in Related Issues & Disorders
It's never too late to get vaccinated...that is, until it's too late! 🙂 And, welcome back! Although we've had reports here that the Covid-19 vaccine, or getting the virus itself, may have triggered celiac disease in some people, I've not heard that it could trigger a DH rash. To me it seems more likely that some gluten may have slipped into yo... -
I have late-onset Celiac Disease
Scott Adams replied to Vobl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My favorite gluten-free pasta is Barilla, which you can find at most major supermarkets now, including Target. My non-gluten-free friends can't tell it's gluten-free.- 3 replies
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If you have DH I would not recommend the Codex wheat starch products...most people with DH are in the super sensitive category.
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Lip Fillers
Scott Adams replied to Harriet Susan's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never heard that lip fillers would not be gluten-free. I'm no expert in this area, but don't they use Botox for that, which is gluten-free? -
You can see the active and inactive ingredients here, and it looks gluten-free but I did not look at every version: https://dailymed.nlm.nih.gov/dailymed/
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In Europe foods made with Codex wheat starch have been eaten for decades without issues, and it does contain at set level of gluten just below 20ppm. You can now buy product in the USA made from this, for example DiGiorno's gluten-free pizzas. This has been studied a lot, and the level in Europe was 200ppm back in the 90's, and at those low levels, even eating...
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Any certified gluten-free liquor?
Scott Adams replied to DaisySafe's topic in Introduce Yourself / Share Stuff
100% pure agave tequila, but all distilled spirits are gluten-free. I’ve not heard of any that are certified gluten-free, but some now include “gluten-free” on their label. This category has lots of articles on this topic: /celiac-disease/gluten-free-foods/ -
Welcome to the forum! I would just like to mention that I think you might have a bit of a misunderstanding about the 20 ppm level allowed for foods using the term gluten-free on their label. These foods are not fortified up to that level, and most would normally not test positive for any gluten, and might have zero gluten. This is just the level that...
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A formal diagnosis could be helpful to keep your daughter on a gluten-free diet for life, as some people may wander back to gluten later without this. However, it could also mean higher private health and/or life insurance costs going forward. I agree with @trents, high tTG-IGA levels mean she’s something like 97% likely to have it.
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Covid virus/vaccine triggering celiac
Scott Adams replied to Tintern21's topic in Related Issues & Disorders
I'm going by memory here, which could be dangerous, but I believe that around 23% of the population carries the genes that allow them to get celiac disease, however, only around 1% actually get it. Also, around 10x more people than have celiac disease are in the non-celiac gluten sensitivity category, and it's unclear exactly how the genetic makeup affects...- 30 replies
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So tired of being scared.Please help:((
Scott Adams replied to Sabaarya's topic in Coping with Celiac Disease
It is a grading scale that assigns a score to the villi damage seen during an Endoscopy. From this article regarding Michael Marsh: -
So tired of being scared.Please help:((
Scott Adams replied to Sabaarya's topic in Coping with Celiac Disease
Perhaps the study found undiagnosed celiacs who might not need an SSRI at all? It would be interesting to do a study that screened people on SSRI's for celiac disease, to see if they might have it at higher rates than the general population. -
Ambiguous Results?
Scott Adams replied to BeegYoshi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! The standard recommendation for a gluten challenge would be to eat around 2 slices of wheat bread daily for 6-8 weeks before a blood test, and 2 weeks before an endoscopy, so it's not clear if you were eating enough before your blood tests. You mentioned that you "had very elevated IgG levels (89)," so you had one positive blood... -
I agree with @Russ314 here, but do want to point out that for those who do take such risks, and there are many, AN-PEP enzymes could possibly help to mitigate any issues that might otherwise occur by eating food that has small amounts of contamination. Again, I'm not encouraging anyone do this, but surveys I've taken in the past have shown that over 20% of...
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Welcome to the forum! I also live in a mixed household that isn't 100% gluten-free. My family is very good at not "double dipping" a butter knife, for example, after they might put some mayonnaise on a piece of wheat bread, but I'm sure that this approach may not work for everyone, and some celiacs might want to keep their own condiments and label them...
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Gluten Intolerance Help?
Scott Adams replied to BME21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum @BME21! It does sound possible that you were not eating enough gluten before your celiac disease screening for it to allow for a positive test, but it's not clear how much gluten you were eating before the tests, and for how long. Normally you would eat 2 slices of wheat bread for 6-8 weeks before a blood screening, and for 2 weeks... -
Cashews in huge tub at aldis
Scott Adams replied to zenith12's topic in Gluten-Free Foods, Products, Shopping & Medications
It does seem like if you washed off the cashews well just before you ate them it would also wash off anything like wheat flour dust. I personally would do this, but I also understand that there are some very sensitive celiacs out there who wouldn't. -
In our recipe section we do have these: