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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    In the many years this forum has been around we have had people who have worked in bakeries get diagnosed with celiac disease, and they've shared mixed experiences. Some seem to be affected by being exposed to airborne gluten, especially those with dermatitis herpetiformis, which is the skin manifestation of the disease, while others haven't had issues. There...
  2. Scott Adams
    The high platelet count could be a symptom of untreated celiac disease, but I don't believe it is a common one, and it could also be related to other issues, so it's good you are following up with her doctor about all this. As far as why there is not test yet for NCGS, this was only recognized recently as a separate condition from celiac disease, and...
  3. Scott Adams
    It's difficult to make a recommendation because we don't really know what tests were done. If you could get a copy of what celiac blood tests were done it would be helpful. Also, were you eating gluten daily until you did those tests? Likewise, they did an endoscopy, but if your blood panel for celiac disease is negative they normally would not do this...
  4. Scott Adams
    This article might be helpful:
  5. Scott Adams
    We do list many of the common deficiencies in this article, but don't make specific dosage recommendations, as they would vary greatly from person to person:
  6. Scott Adams
    This is very informative, thanks for sharing.
  7. Scott Adams
    This site is very helpful to find drug ingredients: https://dailymed.nlm.nih.gov/dailymed/ If yours is the capsule it looks gluten-free: https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=90a6bfcf-faf9-21c0-e053-2995a90ad69f D&C YELLOW NO. 10 (UNII: 35SW5USQ3G) GELATIN, UNSPECIFIED (UNII: 2G86QN327L) FD...
  8. Scott Adams
    Thank you for this recipe!
  9. Scott Adams
    Just in time for Halloween! Thank you for this recipe!
  10. Scott Adams
    Perfect timing! Thank you for this recipe!
  11. Scott Adams
    I seriously doubt there would be airborne gluten, but even if there were having a covid-safe mask on should have filtered it out. Can I assume that you did not eat anything there? If not, my guess would be that it is coincidental, and perhaps you just have a normal bug, or ate something else that was contaminated or had an ingredient in it that you may also...
  12. Scott Adams
    I've shared a kitchen for over two decades with my wife and son who aren't gluten-free, while my daughter and I are gluten-free. The non-gluten-free family members fully understand the issue with cross-contamination, and the are very careful about things like not getting crumbs from wheat bread back into condiments, cleaning cutting boards, pots, pans, etc...
  13. Scott Adams
    Welcome to the forum! You can diagnose celiac disease without a positive biopsy, and in Europe they are doing this when a test like the one you took is 10x normal. Given that your tTG igA result was 27, and anything above 3 is positive, you more or less fall into that category. Also, thyroid issues are very common in those with celiac disease, and you can...
  14. Scott Adams
    Sounds good, and if you are going for chewiness the tapioca starch will help, and then there is xanthan gum if you have issues with them falling apart. Also, and I'm going from memory here, but I believe potato flour and potato start are two different things, and I'm not sure if it would help to experiment with potato flour as well.
  15. Scott Adams
    All of the symptoms you mention are very typical for those with untreated celiac disease. I would recommend that you contact the doctor who ran the "celiac" test and get a copy of her results so that you can share them here. Even if she does not have celiac disease, she may still have non-celiac gluten sensitivity, which is actually probably 10x more...
  16. Scott Adams
    Thanks for sharing this! We have a very old GF dumpling recipe in our recipes section, and it has similarities to yours. It may help you to perfect it:
  17. Scott Adams
    I just want to add that there is another condition called non-celiac gluten sensitivity that ~12% of people have for which there currently isn’t a way to test. If you end up not being able to get additional tests for celiac disease you may still want to try a gluten-free diet to see if it helps.
  18. Scott Adams
    What science are these results based upon? Are there any studies on these tests, and how they determine what you should eat and what you should avoid?
  19. Scott Adams
    Though I've seen this concept thrown around over and over, I've not seen any actual data on this idea. I mean people feed cats, and sometimes dogs, milk all the time, with no issues in those animals. I think the proper thing to throw around is that humans are the only animals that are smart enough to harvest milk and use it in their diets, while other animals...
  20. Scott Adams
    Given your positive endoscopy, your symptoms, and the fact that your doctor thinks gluten is your issue, you may want to go gluten-free to see if it helps. It can't hurt.
  21. Scott Adams
    We've published studies that show that a majority of restaurants, even those with gluten-free menus, cannot provide 100% gluten-free food. I take GliadinX (disclosure: they are an advertiser here) before I eat out, but for you excluding all gluten is likely very important due to your co-existing condition.
  22. Scott Adams
    I'm sorry to hear about your hypothyroid issues. Are you taking medication for this condition? I will assume that your gluten-free diet is under control, but if not, this would be something to consider, as it's well known that gluten can cause thyroid issues in people with celiac disease, and we've done many articles on this here: /celiac-disease/celiac...
  23. Scott Adams
    What you describe are very common celiac disease symptoms, so I'm not surprised that your doctor suspects it. Even though your tests were negative, it is still possible that you have non-celiac gluten sensitivity, which ~12% of people have, but they can't test you for this yet. If they don't plan to run more tests, then trying a gluten-free diet would...
  24. Scott Adams
    In children the DMG test is the most reliable, and it only takes on positive result to indicate celiac disease...all results do not need to be positve.
  25. Scott Adams
    Good advice @trents, you should definitely get tested, and a couple of slices of pizza a day would also be enough gluten before getting the test. Let us know how it turns out, and keep in mind that if the results are negative, you could still have non-celiac gluten sensitivity, for which there currently isn't a test.
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